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PBC Foundation

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All posts for December 2017

Diastolic

Hi, anyone’s diastolic blood pressure gone up since being diagnosed with PBC or taking Urso. Mine has jumped 20 points .

Hi, anyone’s diastolic blood pressure gone up since being diagnosed with PBC or ...

Gillian61

•6 years ago

5 Replies

To biopsy or not

I know in the US that biopsies are more of the norm than in the UK. For those that have a positive AMA and normal ALP a biopsy may catch PBC in its earliest of...

I know in the US that biopsies are more of the norm than in the UK. For those th...

Zelda5

•6 years ago

19 Replies

Is it ok to take motrin

My GI & PCP Dr's said to take Tylenol when needed but went to urgent care and was prescribed 800mg of Motrin 3 x's a day as needed for joint pain. Dr there...

My GI & PCP Dr's said to take Tylenol when needed but went to urgent care and wa...

Yankeerose3

•6 years ago

16 Replies

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Just diagnosed with PBC

Hi just been diagnosed with PBC which was a complete shock as started with routine blood test for something else.. trying to understand what this means and how...

Hi just been diagnosed with PBC which was a complete shock as started with routi...

Jnuttall

•6 years ago

63 Replies

Recently diagnosied

Hi everyone I have just been diagnoed with cirrhosis and she said my fibroscan result was 38. I was in total shock that I had cirrhosis as my GP said I was...

Hi everyone I have just been diagnoed with cirrhosis and she said my fibroscan r...

JacquelineRose

•6 years ago

8 Replies

Ocaliva and weight gain.

Hey everyone my name is Debbie, I have had PBC for at least 13 years but the title was put on it about 4 1/2 years. I was put on ursodol but my numbers didn't...

Hey everyone my name is Debbie, I have had PBC for at least 13 years but the tit...

Debrann62

•6 years ago

27 Replies

Just wondering

Hi all. Was referred to s hepatologist few weeks ago as ANA positive and M2 raised again after only few months. GGT raised also. Hepatologist wrote back to my...

Hi all. Was referred to s hepatologist few weeks ago as ANA positive and M2 rais...

Flower-powr

•6 years ago

5 Replies

Dizziness

Does anyone know what causes dizziness? Or whether it is just a symptom of pbc. I’ve been experiencing a lot of dizziness the last few months. It’s horrible...

Does anyone know what causes dizziness? Or whether it is just a symptom of pbc. ...

Angel_b

•6 years ago

27 Replies

Bone scan

I saw my consultant yesterday, he seemed pleased with my latest scan and bloods, but did some more ordered a scan plus a bone density to check for osteoporosis...

I saw my consultant yesterday, he seemed pleased with my latest scan and bloods,...

Margaret59

•6 years ago

16 Replies

Liver biopsy is it necessary?

So, I’m sitting in the hospital waiting for someone to come explain what’s happening today with my biopsy but I’m debating if it’s really necessary. I’ve had...

So, I’m sitting in the hospital waiting for someone to come explain what’s happe...

sylviaj

•6 years ago

36 Replies

Endless blood tests

Went to the rheumatologist today he's going to send me to I have a whole bunch of blood tests between him and the liver doctor they're going to drain all my...

Went to the rheumatologist today he's going to send me to I have a whole bunch o...

mjk98

•6 years ago

5 Replies

Anxiety with PBC

Hi Does anyone know if there is anything that can be taken for anxiety when you have PBC, I’m having real bad anxiety lately haven’t had it before, was...

Hi Does anyone know if there is anything that can be taken for anxiety when you ...

Rozm2004

•6 years ago

55 Replies

GENTLEMAN IN STAGE 4, LITTLE SCARED, ASKING FOR IDEAS/INPUT

Hi, I was the one who offered the PBCers Organization also in addition to HealthUnlocked. I write to a PBCer in Kentucky, 80 year old female, great, great...

Hi, I was the one who offered the PBCers Organization also in addition to Health...

kehello

•6 years ago

6 Replies

AMAs but normal bloodwork

I had written a couple of posts awhile back when I had AMAs in my blood and was waiting for follow- up bloodwork. I am posting my results from Nov. 8th so...

I had written a couple of posts awhile back when I had AMAs in my blood and was ...

SSMPCW123

•6 years ago

6 Replies

PBC and now Polymyalgia Rheumatica (PMR)

Hi I am new to this site but not to PBC, I have been living with PBC for 10 years, my journey has been mostly uneventful on Ursofalk, I enjoy my very active 6...

Hi I am new to this site but not to PBC, I have been living with PBC for 10 yea...

mtrafter

•6 years ago

2 Replies

Feeling energized

I have felt so tired and had no energy for so long, I thought that was my norm from here on. I started triplex and I cannot believe the difference in how much...

I have felt so tired and had no energy for so long, I thought that was my norm f...

Krichards1971

•6 years ago

13 Replies

False positive AMA test result?

I’m wondering if it can happen to get an AMA positive test and not having pbc? Just went to the hepatologist he said that it’s very minimal that I have pbc and...

I’m wondering if it can happen to get an AMA positive test and not having pbc? J...

3phyraX

•6 years ago

24 Replies

Pbc

Does anybody know what an antipdh test is mine was negative

Ballymahon2

•6 years ago

10 Replies

Men with PBC

My boyfriend of 7 years was recently diagnosed, stage 2, he is 64 & been on the medication for a few weeks. Started taking 4 tablets a day with bad stomach...

My boyfriend of 7 years was recently diagnosed, stage 2, he is 64 & been on the ...

Hello13

•6 years ago

45 Replies

Just an update

I posted a couple of months ago that I was going to do an 8/9 week boot camp. The results are in guys, I lost 11 lbs and 7.5 inches. Really pleased as I’d...

I posted a couple of months ago that I was going to do an 8/9 week boot camp. Th...

Jules-S

•6 years ago

5 Replies

Question about Mitochondrial AB

In April AMA was 73.8 and last Thursday results were normal.What is this test used for?I was diagnosed in May with PBC after Blood Work by Gastro.I had my...

In April AMA was 73.8 and last Thursday results were normal.What is this test us...

PBCTracy

•6 years ago

3 Replies

Being cold

Hello. I was diagnosed in August, I was just wondering if anyone can tell me if we are supposed to keep warm as my house is so cold with heating on it ranges...

Hello. I was diagnosed in August, I was just wondering if anyone can tell me if ...

SharonM69

•6 years ago

5 Replies

Not PBC

I have now been told I don't have PBC I have been diagnosed with: Benign recurrent cholestasis. Has anyone heard of this?

I have now been told I don't have PBC I have been diagnosed with: Benign recurr...

NycGirl

•6 years ago

3 Replies

Shoulder aches and weak arms

Do any of you suffer from pain in your arms and shoulders? Do you experience weakness in your arms while reaching?

Do any of you suffer from pain in your arms and shoulders? Do you experience we...

Ellewoods33

•6 years ago

9 Replies

New Biopsy report: The submitted biopsy does not have any diagnostic features of primary biliary cirrhosis

I was diagnosed in 2010 after elevated labs and AMA. Biopsy from 2010 states: Morphologic features consistant with an early stage of primary biliary cirrhosis...

I was diagnosed in 2010 after elevated labs and AMA. Biopsy from 2010 states: M...

Komiko

•6 years ago

19 Replies

Just an update and some questions :)

Hi everyone, First of all I wanted to say thank you for the support and kind words I received on my first post a few months ago. For those that didn't read it,...

Hi everyone, First of all I wanted to say thank you for the support and kind wor...

JessieKate

•6 years ago

4 Replies

My wife can't take URSO

Hello, My wife has early stage PBC and was subscribed URSO, but gets paralysing stomach cramps when she takes a single tablet. So now she's stopped taking...

Hello, My wife has early stage PBC and was subscribed URSO, but gets paralysing ...

Nicholas101

•6 years ago

46 Replies

symptoms

I get a recurring pain mostly feels like a dull ache, it occurs where my bra sits on my right side. I am wondering if liver pain can be felt this high up? When...

I get a recurring pain mostly feels like a dull ache, it occurs where my bra sit...

mtk0925

•6 years ago

29 Replies

My Fundraising Challenge

I am just about to close my just giving page and raised £265 and £15.50 gift aid, thank you every one, here is the page if you want to check it out Read...

I am just about to close my just giving page and raised £265 and £15.50 gift aid...

dollydaydreams

•6 years ago

2 Replies

Why does Urso just quit

I am reading that so many with pbc or psc took Urso for years and then all of a sudden it stops working for them. Does anyone know why Urso stops doing its...

I am reading that so many with pbc or psc took Urso for years and then all of a ...

Hidden

•6 years ago

19 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for December 2017

Diastolic

To biopsy or not

Is it ok to take motrin

Just diagnosed with PBC

Recently diagnosied

Ocaliva and weight gain.

Just wondering

Dizziness

Bone scan

Liver biopsy is it necessary?

Endless blood tests

Anxiety with PBC

GENTLEMAN IN STAGE 4, LITTLE SCARED, ASKING FOR IDEAS/INPUT

AMAs but normal bloodwork

PBC and now Polymyalgia Rheumatica (PMR)

Feeling energized

False positive AMA test result?

Pbc

Men with PBC

Just an update

Question about Mitochondrial AB

Being cold

Not PBC

Shoulder aches and weak arms

New Biopsy report: The submitted biopsy does not have any diagnostic features of primary biliary cirrhosis

Just an update and some questions :)

My wife can't take URSO

symptoms

My Fundraising Challenge

Why does Urso just quit

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