Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,404 members • 8,053 posts

All posts for August 2017

Pbc/Aih

Hi everybody Anybody still awake...The nights are terrible with this itch. Everyone asleep and only me awake x

Hi everybody Anybody still awake...The nights are terrible with this itch. Every...

janine541

•7 years ago

8 Replies

I had AMAs in my bloodwork and am being referred to a GI doctor I do not have a high ALP but my ALT is a little high because of drinking

I had ANAs in my bloodwork but nothing esle ALP normal only ALT high because of recently using alcohol. I am being referred to aGI doctor and having an ultra...

I had ANAs in my bloodwork but nothing esle ALP normal only ALT high because of ...

SSMPCW123

•7 years ago

10 Replies

I AM SCARED!!

HI , MY NAME IS RUTH, I AM 42 YEARS OLD, HAVE TWO SONS AGES 17 AND 11, AND WAS DIAGNOSED WITH PBC A COUPLE OF DAYS AGO. I LIVE IN MEXICO AND THERE IS NO...

HI , MY NAME IS RUTH, I AM 42 YEARS OLD, HAVE TWO SONS AGES 17 AND 11, AND W...

YADILURO

•7 years ago

25 Replies

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Facebook

How many people here are in Facebook pbc group?

Sachin1234

•7 years ago

8 Replies

Fed up with my family!

Hi everyone. It's been a long time since I last posted but thought I would update you on a few things. Good news is that I got awarded early retirement on...

Hi everyone. It's been a long time since I last posted but thought I would updat...

nazgoddard

•7 years ago

20 Replies

Pbc/Aih

Does any body keep a food diary to help them with the dreadfull itch. Just wanted to see what foods were not good

Does any body keep a food diary to help them with the dreadfull itch. Just wante...

janine541

•7 years ago

2 Replies

blood work results

I'm waiting on my blood work results today. I have my pups to keep me busy. My prednisone was lowered to 15 mgs. Aza and Urso are the same. I am not going...

I'm waiting on my blood work results today. I have my pups to keep me busy. My...

Hidden

•7 years ago

3 Replies

Anyone here from Savannah Ga?

I was diagnosed Jan 2017. I had to go to the Mayor Clinic to get any real info as my GI hasn't been very helpful. Does anyone know of a good Doctor for PBC in...

I was diagnosed Jan 2017. I had to go to the Mayor Clinic to get any real info a...

Chrissy64

•7 years ago

7 Replies

Once again in trying to wrap my head around this thing called PBC

I had a appointment today with my GI to go over my labs he had requested last week. I get them pretty much the very next day on my chart. I apparently read...

I had a appointment today with my GI to go over my labs he had requested last we...

Shulsey

•7 years ago

12 Replies

I got pups!!!

I couldn't make up my mind out of the two My husband bought me both of theM But I got my cuttle pups sort of. For now they are all over but they will cuddle...

I couldn't make up my mind out of the two My husband bought me both of theM But ...

Hidden

•7 years ago

10 Replies

PBC and painkillers

I am newly diagnosed by Kings with PBC, I don't know what stage I am, my ALP is 527, GGT 521, Fibroscan 14.9kpa. I am now taking URSO. I have Arthritis and...

I am newly diagnosed by Kings with PBC, I don't know what stage I am, my ALP is ...

pmpaula

•7 years ago

26 Replies

Having to cancel fun things

Hi all, I am grateful for this community. I am 2 years in to my PBC dx and find so much help and information here. I got dx just as I retired from high...

Hi all, I am grateful for this community. I am 2 years in to my PBC dx and find...

EileenUSA

•7 years ago

4 Replies

Rectal Ozone Therapy

Hi, I was wondering if anyone had tried rectal ozone therapy to relieve symptoms and help generate cells. I have massive issues with fatigue to the point where...

Hi, I was wondering if anyone had tried rectal ozone therapy to relieve symptoms...

MissT137

•7 years ago

10 Replies

Oclavia

Has anyone here taken Oclavia for PBC?

gwillistexas

•7 years ago

8 Replies

VARICES

I went for an endoscopy a few days ago to check my peptic ulcer and ended up getting 3 varices banded. For the first time in this PBC journey I feel very...

I went for an endoscopy a few days ago to check my peptic ulcer and ended up get...

HelenTM

•7 years ago

18 Replies

Gastro appointment

Hi I live in uk and was diagnosed November 16. I had my first GI appointment in March who sent me for a bone scan, this came back fine, I was not prescribed...

Hi I live in uk and was diagnosed November 16. I had my first GI appointment in...

Elanie

•7 years ago

5 Replies

Profile pic

A little embarrassed. Tried to put a profile pic on here but it didn't show my face. Now I can't delete it & use the original smiley. Any ideas?

A little embarrassed. Tried to put a profile pic on here but it didn't show my f...

gwillistexas

•7 years ago

4 Replies

Gastro monitoring possible PBC

Hi All, I have tested positive for AMA, ANA, SMA, and my ALT/AST are both high. I have had a biopsy done, however, the biopsy came back negative even with a...

Hi All, I have tested positive for AMA, ANA, SMA, and my ALT/AST are both high. ...

iFr4g

•7 years ago

6 Replies

PBC

I was recently diagnosed with PBC. I was shocked & scared. I have never had a major health issue. I was referred to a GI who prescribed Urso. I began taking it...

I was recently diagnosed with PBC. I was shocked & scared. I have never had a ma...

gwillistexas

•7 years ago

7 Replies

Hemorrhoid

I eat lots of fiber still get hemorrhoid😔does black pepper trigger hemorrhoid?

Sachin1234

•7 years ago

14 Replies

Pbc/AIH

Well hope everyone is ok. The vitamin D vitamin is very helpfull only had one but dont feel like i need to go back to bed as when ive just got up. Hope...

Well hope everyone is ok. The vitamin D vitamin is very helpfull only had one bu...

janine541

•7 years ago

2 Replies

Fatigue

Hi I am VMcnK and have had PBC for a while. With no side effects thank goodness yet. Recently, however, I have had the ridiculous (in my view!) tiredness. If...

Hi I am VMcnK and have had PBC for a while. With no side effects thank goodness ...

VMcnK

•7 years ago

21 Replies

PBC Day Events

https://www.pbcfoundation.org.uk/news/latest-news/pbc-day-2017---whats-happening-where This page will update on a regular basis, so keep an eye to see if any...

https://www.pbcfoundation.org.uk/news/latest-news/pbc-day-2017---whats-happening...

PBCRobert

Partner•7 years ago

1 Reply

Pbc/Aih

Well been to doctor and having a course of vitamin d Does this mean my Pbc/Aih is getting worse

Well been to doctor and having a course of vitamin d Does this mean my Pbc/Aih i...

janine541

•7 years ago

6 Replies

"Just a little itch. . ."

. . . Said no PBCer ever! In trying to describe it, does anyone else feel that it's comparable to coming into contact with fiberglass -- except it feels like...

. . . Said no PBCer ever! In trying to describe it, does anyone else feel that i...

ILik3Pizza

•7 years ago

4 Replies

Finding out a lot from requesting all my records!

My new liver doc has asked me to get all my medical records as he wants to look into my lab work going all the way back to 2010. I'm finding it very...

My new liver doc has asked me to get all my medical records as he wants to look ...

Pbcgirl28

•7 years ago

4 Replies

TIA or Stroke - medication ?

Has anyone had a TIA or stroke after being diagnosed with PBC and if so have you had any success in receiving statins and blood thinners that don't make you...

Has anyone had a TIA or stroke after being diagnosed with PBC and if so have you...

EiJo

•7 years ago

5 Replies

Pbc/Aih

Has any body recieved an abnormal blood test for vitamin d. See my doctor tomorrow to discuss

Has any body recieved an abnormal blood test for vitamin d. See my doctor tomorr...

janine541

•7 years ago

11 Replies

Hot

My left year and body is too hot today..I'm trying to sleep but I can't close my eyes 😔😔

My left year and body is too hot today..I'm trying to sleep but I can't close my...

Sachin1234

•7 years ago

7 Replies

Denied Disability

Yes, in only four months it was decided that I cannot get disability. So, I went to get a attorney & while I was going over paperwork with her it was realized...

Yes, in only four months it was decided that I cannot get disability. So, I went...

Shulsey

•7 years ago

16 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for August 2017

Pbc/Aih

I had AMAs in my bloodwork and am being referred to a GI doctor I do not have a high ALP but my ALT is a little high because of drinking

I AM SCARED!!

Facebook

Fed up with my family!

Pbc/Aih

blood work results

Anyone here from Savannah Ga?

Once again in trying to wrap my head around this thing called PBC

I got pups!!!

PBC and painkillers

Having to cancel fun things

Rectal Ozone Therapy

Oclavia

VARICES

Gastro appointment

Profile pic

Gastro monitoring possible PBC

PBC

Hemorrhoid

Pbc/AIH

Fatigue

PBC Day Events

Pbc/Aih

"Just a little itch. . ."

Finding out a lot from requesting all my records!

TIA or Stroke - medication ?

Pbc/Aih

Hot

Denied Disability

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