Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,404 members • 8,053 posts

All posts for January 2017

Afraid there won't be a liver for me when time

I have had pbc for about 2 yrs, was stage 3 when diagnosed, i now have cirrhosis which i probably have had for about a year. My#are a little high but not over...

I have had pbc for about 2 yrs, was stage 3 when diagnosed, i now have cirrhosis...

tama

•7 years ago

7 Replies

Primary Billiary Cholangitis

Hello there. Can anyone tell me whether AMA positive antibodies without other significant liver abnormalaties means you have PBC or not? I seem to be reading...

Hello there. Can anyone tell me whether AMA positive antibodies without other si...

cath1917

•7 years ago

15 Replies

Janine

Hi i was tested with pbc in january 2016. My doctor did several tests as i was feeling really ill and tired. I have also ulcers which im not sure is......

Hi i was tested with pbc in january 2016. My doctor did several tests as i was f...

janine541

•7 years ago

2 Replies

Want to take advantage of all our features? Just log in!

This time 4 wks ago I was in the middle of my Transplant. Raising awareness for Organ and Blood donation & an Opt out system Ireland. ⤵❤❤❤❤

https://www.facebook.com/Livertransplantsurivor/

lynda75

•7 years ago

13 Replies

Concerned

Hello. I'm concerned about the possibility of pbc. My ama 2 came back eqivical twice and high negative once. Alp and ggt are normal. Ana negative. Smooth...

Hello. I'm concerned about the possibility of pbc. My ama 2 came back eqivical t...

Sarabear123

•7 years ago

3 Replies

Day throat

I have PBC. just got rid of a very irritating cough. I now find when I swallow it is very dry. Is that a symbol of PBC or the cough. Anybody have an idea. I...

I have PBC. just got rid of a very irritating cough. I now find when I swallow i...

Sandie1

•7 years ago

2 Replies

Infections

Hi just wondered if anyone can help. Been diagnosed several years with PBC but managed with Urso and not experiencing any complications (as yet). However...

Hi just wondered if anyone can help. Been diagnosed several years with PBC but m...

Mollymoo50

•7 years ago

4 Replies

medical alert bracelet

hi - I've been considering purchasing a Medical Alert Bracelet. I have PBC and AI Hepatitis - but also listing my medications (mainly concerned about the...

hi - I've been considering purchasing a Medical Alert Bracelet. I have PBC and A...

Becca75

•7 years ago

8 Replies

Good afternoon. I'm Pinny. I h...

Good afternoon. I'm Pinny. I had two liver transplants within 5 days in February 2015 as a result of PBC. Happy to chat to anyone that may be about to find...

Good afternoon. I'm Pinny. I had two liver transplants within 5 days in February...

vpinny

•7 years ago

39 Replies

PBC and cholesterol

Does anyone know if there is a connection between PBC and high cholesterol and possibly heart problems?

Does anyone know if there is a connection between PBC and high cholesterol and p...

Philippastcarin

•7 years ago

6 Replies

Over the counter

Since I can't take urso could I take milk thistle. Pharmacist didn't know anything about it.

Since I can't take urso could I take milk thistle. Pharmacist didn't know anythi...

Urso462

•7 years ago

21 Replies

Ascities

Stomach X-ray,shows fluid,being sent for ultra sound. What I thought was fat in the stomach region, must have been fluid. Did anyone experience this? I am...

Stomach X-ray,shows fluid,being sent for ultra sound. What I thought was fat in ...

Tacnap

•7 years ago

12 Replies

Oh no.... im not in the UK... ...

Oh no.... im not in the UK... can i not post here?

Tris79

•7 years ago

4 Replies

Thanks for the reply...

It has been awhile since I have allowed myself to consider my illness. I just try to keep pushing on threw. Urso made me so sick... like sicker than I ever...

It has been awhile since I have allowed myself to consider my illness. I just tr...

Tris79

•7 years ago

3 Replies

Alternative

Has anyone else not been able to take urso?

Urso462

•7 years ago

13 Replies

Cholesterol and Statins

Results from a blood test brought to light that I have a slightly raised cholesterol level. I was asked to attend an appointment at the doctor's surgery to...

Results from a blood test brought to light that I have a slightly raised cholest...

MoPo

•7 years ago

8 Replies

Contacts

Any problems with PBC and wearing contacts

Laj457

•7 years ago

5 Replies

New to this site

I was taking urso and had tongue pain and swelling allergic reaction. Went off for 3 weeks went back on, same reaction. I take 2 other medications for fibro....

I was taking urso and had tongue pain and swelling allergic reaction. Went off f...

Urso462

•7 years ago

5 Replies

Contact met mensen uit nederland

haHallo ik ben Petra 52jaar wil graag contact met mensen uit nederland woon zelf in brabant

haHallo ik ben Petra 52jaar wil graag contact met mensen uit nederland woon zelf...

Peetje195

•7 years ago

1 Reply

Eye issue

Just recently diagnosed with PBC very beginning stage on ursodiol and milk thistle . I have had red dry eyes for 5 weeks now . Could this be part of PBC or...

Just recently diagnosed with PBC very beginning stage on ursodiol and milk thist...

Laj457

•7 years ago

14 Replies

Hospital appointment

Hello, was wondering if anyone has Milton Keynes as their hospital, they forgot me when my pain started and I had to get in contact with them and they rushed...

Hello, was wondering if anyone has Milton Keynes as their hospital, they forgot ...

Yvonnejulie

•7 years ago

5 Replies

New auto immune disease with Stage IV

I was dx'd 4 yrs. ago with PBC. I was at stage IV. Has anyone been dx'd with auto immune hepatitis?

I was dx'd 4 yrs. ago with PBC. I was at stage IV. Has anyone been dx'd with a...

Calogia

•7 years ago

2 Replies

New Year, Same Message

Hi Everyone, I want to post this information again, as it seems highly relevant to many of us. "The time from detection of AMA to development of PBC is about 6...

Hi Everyone, I want to post this information again, as it seems highly relevant ...

Kevin733

•7 years ago

9 Replies

Turmeric

Who uses turmeric to help ?? Anyone have any success with it (I'm thinking of using it to help with the inflammation with AI Hepatitis)

Who uses turmeric to help ?? Anyone have any success with it (I'm thinking of us...

Becca75

•7 years ago

2 Replies

...without urso

Hi there... im actually wondering what does happen if you stopped taking urso? I have done this. I can't say I feel worse.. Came up as secondary thought when...

Hi there... im actually wondering what does happen if you stopped taking urso? I...

Tris79

•7 years ago

10 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2017

Afraid there won't be a liver for me when time

Primary Billiary Cholangitis

Janine

This time 4 wks ago I was in the middle of my Transplant. Raising awareness for Organ and Blood donation & an Opt out system Ireland. ⤵❤❤❤❤

Concerned

Day throat

Infections

medical alert bracelet

Good afternoon. I'm Pinny. I h...

PBC and cholesterol

Over the counter

Ascities

Oh no.... im not in the UK... ...

Thanks for the reply...

Alternative

Cholesterol and Statins

Contacts

New to this site

Contact met mensen uit nederland

Eye issue

Hospital appointment

New auto immune disease with Stage IV

New Year, Same Message

Turmeric

...without urso

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