Posts - My Ovacome | HealthUnlocked

My Ovacome

18,204 members•20,344 posts

All posts for November 2023

Second opinion

Just to share that I saw Prof Jayson today at Christies. I am very impressed. He is so knowledgeable and thorough and discussed my options with clear rationale...

Just to share that I saw Prof Jayson today at Christies. I am very impressed. He...

Laz66

•11 months ago

6 Replies

Update

Hi ladies. I haven’t posted or even looked at this site for a few weeks now, as I defaulted to my usual stance of avoidance. If I don’t talk about it or read...

Hi ladies. I haven’t posted or even looked at this site for a few weeks now, as...

Beaver54

•11 months ago

30 Replies

Thuja occidentalis - homeopathy for ovarian mass

[Edited by moderator to include the following: please note this study involved three people with pathological ovarian cysts. Pathological cysts are abnormally...

[Edited by moderator to include the following: please note this study involved t...

Ova104

•11 months ago

6 Replies

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preventative mastectomy

Good afternoon, Not been on here for a while , I was wondering if anyone here with the BRCA gene has had a preventative mastectomy, if so how was your...

Good afternoon, Not been on here for a while , I was wondering if anyone here ...

March2017

•11 months ago

5 Replies

trial for Debbie Summergold2

for got to post the number of the trialDS6000-A-U101 clinical trial, NCT 04707248.

for got to post the number of the trialDS6000-A-U101 clinical trial, NCT 0470724...

Summergold2

•11 months ago

1 Reply

is there any hope for me

I haven’t posted much about my journey. I am in the USA. I have never been in true remission. I am braca neg, her2 negative, folate on at 60 % HGS. No...

I haven’t posted much about my journey. I am in the USA. I have never been in t...

Summergold2

•11 months ago

28 Replies

Stay positive

Diagnosed march 2021. Debunking surgery 12 rounds chemo. Then onto Zedula . All good until November 2022 more chemo for recurrence then Avastin . My Ca125...

Diagnosed march 2021. Debunking surgery 12 rounds chemo. Then onto Zedula . All...

Guenivere

•11 months ago

1 Reply

Third recurrence, very worried.

I've just started Caelyx ,after my CA125 went up , always a good predictor for me. CT showed a 3cm tumour pressing on my ureter so I needed a stent to release...

I've just started Caelyx ,after my CA125 went up , always a good predictor for m...

Seedlings

•11 months ago

14 Replies

chemo break

my lovely mum just finished 6 rounds of carbo caelyx after recurrring 11 months from frontline. Her mid treatment scan showed a reduction in all tumours and...

my lovely mum just finished 6 rounds of carbo caelyx after recurrring 11 months ...

Worrieddaughter95

•11 months ago

1 Reply

Ultrasound

Hi - I have posted on here a few weeks ago and you brave ladies were fantastic with your responses. After an urgent referral for an abdominal and pelvic...

Hi - I have posted on here a few weeks ago and you brave ladies were fantastic w...

Tray4321

•11 months ago

8 Replies

Hello

I've been diagnosed with advanced ovarian cancer. It's been nearly a year, but I felt sick for at least 3 months before I was diagnosed. In spite of the fact I...

I've been diagnosed with advanced ovarian cancer. It's been nearly a year, but I...

IndigoHusky3

•11 months ago

3 Replies

reoccurance

Hi Ladies Just facing a reoccurrence in lymph nodes. About to stat carbo/gem. How did you find this? Worse or easier than frontline? Julie x

Hi Ladies Just facing a reoccurrence in lymph nodes. About to stat carbo/gem....

Helvelyn

•11 months ago

22 Replies

Just some general advice while undergoing investigation.

Hi Thanks in advance for responses. My story, I am on long term zolodex, so medical menopause (due to endometriosis in right kidney) so I am in medical...

Hi Thanks in advance for responses. My story, I am on long term zolodex, so m...

Louisesc

•11 months ago

9 Replies

Seeking advice about starting my Ovarian Cancer journey

Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able...

Hello Everyone, Let me say thanks in advance for any and all advice or comments....

Texas_Mom

•11 months ago

26 Replies

Looking to hear personal experiences of bevacizumab/ Avastin

Good morning everyone I'm posting on behalf of someone who has contacted Ovacome support services and hope you may be able to help please. This person will...

Good morning everyone I'm posting on behalf of someone who has contacted Ovacom...

OvacomeSupport

Partner•11 months ago

22 Replies

Ovarian cancer advice

Ovarian cancer stage 4 mastised serious high grade hello brave ladys can anyone help had partial bowel surgery 2 years ago been good now recurrence...

Ovarian cancer stage 4 mastised serious high grade hello brave ladys can anyone...

PaumicB123

•11 months ago

4 Replies

surgery

Hi ladies, has anyone had surgery on a tumour that is 17cm please?

Guilane

•11 months ago

11 Replies

What's on at Ovacome next week? (week commencing 27 November 2023)

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•11 months ago

Be the first to reply

Abraxane

Hi ladies, I’m absolutely over the moon to hear that my oncologist has been able to get the Abraxane chemotherapy funding for me! I am due to start in...

Hi ladies, I’m absolutely over the moon to hear that my oncologist has been ab...

Willowsmum51

•1 year ago

13 Replies

Waiting for answers

Hello! I was referred to gynaecologist by my GP because for over a year I was having heavy irregular periods and bleeding every 10-14 days. My appointment was...

Hello! I was referred to gynaecologist by my GP because for over a year I was ha...

SheRex

•1 year ago

9 Replies

Any suggestion for constipation caused by Niraparib

Hey dear ladies, I am on niraparib (200mg/ day in the evening) since august 2023 and experience constipation. I try to go daily but is not always happening....

Hey dear ladies, I am on niraparib (200mg/ day in the evening) since august 202...

Beatyourself

•1 year ago

25 Replies

Survey to understand experiences of inhibin testing for granulosa cell tumours in the U.K.

Good morning everyone This post is to let you know about a survey to understand experiences of inhibin testing for granulosa cell tumours in the U.K. Ovacome...

Good morning everyone This post is to let you know about a survey to understand...

OvacomeSupport

Partner•1 year ago

Be the first to reply

Caelyx side effects and duration of treatment plus follow up with target therapy or immunotherapy.

Dearest,Thank you for this great forum. Sorry to bug you again with questions about Caelyx...is that I've been reading all your post and some information does...

Dearest,Thank you for this great forum. Sorry to bug you again with questions a...

Pumpkininja

•1 year ago

6 Replies

Worried i have O/C

Hi. Sorry it may be long. Im 39. Mum of 3 Its been 2 months since iv been having alot of pain in my pelvic and lower back its like constant period pain. When...

Hi. Sorry it may be long. Im 39. Mum of 3 Its been 2 months since iv been having...

Stressedmum247

•1 year ago

40 Replies

Next OC vlog

Am I allowed to post a vlog here (YT link) - just checking. If not, I will put it on Profile page.

Am I allowed to post a vlog here (YT link) - just checking. If not, I will put ...

candyapplegrey

•1 year ago

1 Reply

What's on at Ovacome next week? (week commencing Monday 20 November 2023)

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•1 year ago

Be the first to reply

Ovarian mass continued...

Hi all still in limbo. I got my results recently of MRI repeated in October last one was March. The mass has only increased marginally in size. I have...

Hi all still in limbo. I got my results recently of MRI repeated in October las...

Ova104

•1 year ago

25 Replies

New trial in the West Midlands seeks to diagnose early-stage ovarian cancer

Good morning everyone This post is to let you know about the SONATA trial which is looking at whether taking two blood tests together (CA125 and HE4), and...

Good morning everyone This post is to let you know about the SONATA trial whic...

OvacomeSupport

Partner•1 year ago

11 Replies

Laparotomy, Radical hysterectomy, bilateral salpingo-oophrectomy

I had a major surgery about 8 months ago but the pain around my stomach hasn't gone away. My blood tests and CT scan results are normal.They mentioned that...

I had a major surgery about 8 months ago but the pain around my stomach hasn't g...

Bandung

•1 year ago

10 Replies

Advice

Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic...

Just started chemo again mastactiic high grade serious carcidoma on ovarian ma...

PaumicB123

•1 year ago

2 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for November 2023

Second opinion

Update

Thuja occidentalis - homeopathy for ovarian mass

preventative mastectomy

trial for Debbie Summergold2

is there any hope for me

Stay positive

Third recurrence, very worried.

chemo break

Ultrasound

Hello

reoccurance

Just some general advice while undergoing investigation.

Seeking advice about starting my Ovarian Cancer journey

Looking to hear personal experiences of bevacizumab/ Avastin

Ovarian cancer advice

surgery

What's on at Ovacome next week? (week commencing 27 November 2023)

Abraxane

Waiting for answers

Any suggestion for constipation caused by Niraparib

Survey to understand experiences of inhibin testing for granulosa cell tumours in the U.K.

Caelyx side effects and duration of treatment plus follow up with target therapy or immunotherapy.

Worried i have O/C

Next OC vlog

What's on at Ovacome next week? (week commencing Monday 20 November 2023)

Ovarian mass continued...

New trial in the West Midlands seeks to diagnose early-stage ovarian cancer

Laparotomy, Radical hysterectomy, bilateral salpingo-oophrectomy

Advice

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