Posts - My Ovacome | HealthUnlocked

My Ovacome

18,221 members•20,359 posts

All posts for July 2022

Taxol or carboplatin?

Morning all you lovely people. Hope you re keeping well. I am on my second recurrence. Two years ago I had carboplatin/taxol but they discovered the OV cancer...

Morning all you lovely people. Hope you re keeping well. I am on my second recur...

Cumbrianlass5

•2 years ago

21 Replies

Anyone know much about, or tried the fruit graviola / guanabana / soursop?

Morning all, Quick one.. so mums going in for biopsy this week due to the recurrence on the lining of the bowel, her and my Dad are in a bit of a frenzy as...

Morning all, Quick one.. so mums going in for biopsy this week due to the recu...

LouieB123

•2 years ago

8 Replies

Lymph nodes

I have peritoneal/ovarian cancer. Diagnosed October 2021. Have had 1st line chemo (carbo/taxol and avastin) and debulking surgery. Then I had 3 cycles of...

I have peritoneal/ovarian cancer. Diagnosed October 2021. Have had 1st line ...

NewtonEmma1900

•2 years ago

23 Replies

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Lynparza (Olaparib)

Hello ladies. I have a question about Olaparib. Is it covered by the NHS? Is it for free or you have to pay for it , or some part of it? I am new to the UK...

Hello ladies. I have a question about Olaparib. Is it covered by the NHS? Is i...

Vilinew

•2 years ago

22 Replies

Rubraca

Hello everyone, Looking for reassurance really, after reoccurrence and 8 Carbo Caelix, consultant suggested Rubraca , which after much discussion l agreed...

Hello everyone, Looking for reassurance really, after reoccurrence and 8 Carbo ...

Lmc52

•2 years ago

12 Replies

Ovacome Summer Raffle

Hello All This is to let you know about Ovacome’s Summer Raffle! 🎉 Tickets are just £3 each or £10 for a strip of 5 🎟️ There are some excellent...

Hello All This is to let you know about Ovacome’s Summer Raffle! 🎉 Ticket...

TheOvacomeTeam

Partner•2 years ago

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Post surgery intermittent pain

Hi Ladies I had a laprascopic assisted vaginal hysterectomy and bilateral salpino oophrectomy 6 weeks ago for OC. Since my operation I have had a lump on my...

Hi Ladies I had a laprascopic assisted vaginal hysterectomy and bilateral salpin...

Hota

•2 years ago

4 Replies

Avastin Sore Mouth

Hi there, my mum has had 2 infusions of Avastin and although seems to be tolerating it well she has developed a really sore mouth and eating is really...

Hi there, my mum has had 2 infusions of Avastin and although seems to be tolera...

Pitchperfec

•2 years ago

8 Replies

Carboplatin hypersensitivity Update

so yesterday I went for my chemotherapy cycle 3a d they just gave me paclitaxel and I had to go back today for my Carboplatin desensitization. I had it...

so yesterday I went for my chemotherapy cycle 3a d they just gave me paclitaxe...

kadabra12

•2 years ago

20 Replies

Touch of Teal Fashion Show - 10 September 2022

Hello All This is to let you know that there are still a few tickets available for our 12th annual Touch of Teal Fashion Show 👗💅 on 10 September 2022 at the...

Hello All This is to let you know that there are still a few tickets available ...

TheOvacomeTeam

Partner•2 years ago

1 Reply

new to this forum

just trying to get used to using this forum it seems great

123george

•2 years ago

8 Replies

Niraparib

Hi does anyone go to the Christie hospital and on Niraparib maintenance (zejula)? had bloods my ca125 has alivated but consultant not worried as I've had...

Hi does anyone go to the Christie hospital and on Niraparib maintenance (zej...

123george

•2 years ago

1 Reply

Recovery after debulking surgery

hi all, I’m 59 and I was diagnosed with stage 4 in May and after 4 cycles of chemo thankfully a good response and I’m pretty fit otherwise so debulking surgery...

hi all, I’m 59 and I was diagnosed with stage 4 in May and after 4 cycles of che...

Belindajw

•2 years ago

13 Replies

Statins and Metformin for Ovarian cancer

Hello, This forum has been such a huge support for me while I go through this journey with my partner. Lately I have read some studies regarding the efficacy...

Hello, This forum has been such a huge support for me while I go through this j...

Stuee01

•2 years ago

18 Replies

abdominal discomfort

has anyone experienced long term lower abdominal discomfort following de- bulking surgery or worsening of IBS?

has anyone experienced long term lower abdominal discomfort following de- bulki...

Tabby13

•2 years ago

9 Replies

TV Programme Royal Marsden

Series on RM on Channel 4, second one on tonight.

Rosebine2

•2 years ago

2 Replies

second opinion re radical surgery

Hi fellow OC fighters I start 3rd line chemo (Caelyx) this week and have a strong inner voice telling me to seek a consultation with Prof Christina...

Hi fellow OC fighters I start 3rd line chemo (Caelyx) this week and have a st...

pants22

•2 years ago

6 Replies

Hi ladies confused 🤔avastin question?

I'm getting my 3rd chemo tomorrow and just read that avastin isn't offered if you have more than 2 chemotherapy treatments? Is this a mistake? I haven't had...

I'm getting my 3rd chemo tomorrow and just read that avastin isn't offered if y...

Newbery3

•2 years ago

38 Replies

concerned

so sorry to hear you are feeling unwell. Which hospital are you being treated at?I finished my chemo in December 2021 after 6cycles carbo/paclitaxol which...

so sorry to hear you are feeling unwell. Which hospital are you being treated a...

Myspain

•2 years ago

2 Replies

sickness

well am hoping for some advice chemo was monday nothing new apart from reduced dose and normally cope really well aches and pains nausea but usually by day...

well am hoping for some advice chemo was monday nothing new apart from reduced ...

Tezzaa66

•2 years ago

8 Replies

Reoccurrence on the bowel

Afternoon all, bit of an update on my Mum since my last post yesterday. She has been into The Christie today and told she has some cancer on the lining of her...

Afternoon all, bit of an update on my Mum since my last post yesterday. She has ...

LouieB123

•2 years ago

3 Replies

cyclophosphamide

Hi, I've just started cyclophosphamide after finding my current is not working. I was first diagnosed in 2016 and have had several previous lines of...

Hi, I've just started cyclophosphamide after finding my current is not working....

Suzannevans

•2 years ago

8 Replies

New Here

Hi Everyone, I'm writing on behalf of my mum. Aged 60iagnosed HGSOC stage 4 Feb 2022. Initial plan was debulking surgery 1st, went for surgery too much...

Hi Everyone, I'm writing on behalf of my mum. Aged 60iagnosed HGSOC stage 4 ...

Mum8757

•2 years ago

10 Replies

Blockage or reoccurrence worry

Afternoon you lovely lot. Hope everyone is keeping well. Been a while since I’ve posted about Mum, mainly as she has been doing so fantastic. Bit of a worry...

Afternoon you lovely lot. Hope everyone is keeping well. Been a while since I’...

LouieB123

•2 years ago

13 Replies

2 years up on Olaparib

scared. Onc says I cant continue with Olaparib as have reached my 2 year quota. She actually said it was ‘eye wateringly expensive’ for the NHS. It is...

scared. Onc says I cant continue with Olaparib as have reached my 2 year quota....

RoseMS

•2 years ago

28 Replies

Ovacome Magazine - Summer 2022

Hi everyone Ovacome release a magazine three times a year which covers the latest ovarian cancer news, as well as expert information from top clinicians and...

Hi everyone Ovacome release a magazine three times a year which covers the late...

TheOvacomeTeam

Partner•2 years ago

Be the first to reply

Avastin and Olaparib

Hi everyone. I am seeking some advice from this fabulous forum in the hope you can share your experience. I have been on Avastin since March 2021 and then a...

Hi everyone. I am seeking some advice from this fabulous forum in the hope you ...

Mysticmeg123

•2 years ago

13 Replies

Good news post!🥳😊

Had over the phone appointment yesterday after 2nd chemo and was told my CA125 2098 and was 712 after 1st bloods! 2nd bloods due friday so should be lower...

Had over the phone appointment yesterday after 2nd chemo and was told my CA125 ...

Newbery3

•2 years ago

23 Replies

update

after having someone elses blood results last month with the shock that there was a high marker for bowel cancer repeat blood test showed normal numbers but...

after having someone elses blood results last month with the shock that there w...

Tezzaa66

•2 years ago

12 Replies

OLAPARIB

Hello all I started Olaparib at the very end of Dec 2021 I have had 2 blood transfusions after low HB one in march and then 1 in April with a dose reduction...

Hello all I started Olaparib at the very end of Dec 2021 I have had 2 blood tra...

Hidden

•2 years ago

46 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for July 2022

Taxol or carboplatin?

Anyone know much about, or tried the fruit graviola / guanabana / soursop?

Lymph nodes

Lynparza (Olaparib)

Rubraca

Ovacome Summer Raffle

Post surgery intermittent pain

Avastin Sore Mouth

Carboplatin hypersensitivity Update

Touch of Teal Fashion Show - 10 September 2022

new to this forum

Niraparib

Recovery after debulking surgery

Statins and Metformin for Ovarian cancer

abdominal discomfort

TV Programme Royal Marsden

second opinion re radical surgery

Hi ladies confused 🤔avastin question?

concerned

sickness

Reoccurrence on the bowel

cyclophosphamide

New Here

Blockage or reoccurrence worry

2 years up on Olaparib

Ovacome Magazine - Summer 2022

Avastin and Olaparib

Good news post!🥳😊

update

OLAPARIB

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for July 2022

Taxol or carboplatin?

Anyone know much about, or tried the fruit graviola / guanabana / soursop?

Lymph nodes

﻿Lynparza (Olaparib)

Rubraca

Ovacome Summer Raffle

Post surgery intermittent pain

Avastin Sore Mouth

﻿Carboplatin hypersensitivity Update

Touch of Teal Fashion Show - 10 September 2022

﻿new to this forum

﻿Niraparib

Recovery after debulking surgery

Statins and Metformin for Ovarian cancer

﻿abdominal discomfort

TV Programme Royal Marsden

﻿second opinion re radical surgery

﻿Hi ladies confused 🤔avastin question?

﻿concerned

﻿sickness

Reoccurrence on the bowel

﻿cyclophosphamide

﻿New Here

Blockage or reoccurrence worry

2 years up on Olaparib

Ovacome Magazine - Summer 2022

Avastin and Olaparib

﻿Good news post!🥳😊

﻿update

OLAPARIB

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive

Lynparza (Olaparib)

Carboplatin hypersensitivity Update

new to this forum

Niraparib

abdominal discomfort

second opinion re radical surgery

Hi ladies confused 🤔avastin question?

concerned

sickness

cyclophosphamide

New Here

Good news post!🥳😊

update