Posts - My Ovacome | HealthUnlocked

My Ovacome

18,204 members•20,344 posts

All posts for October 2018

Sore mouth

Can anyone who’s had mouth ulcers tell me how long they last, I’ve had them about 10 days and don’t seem to be getting any better, I’ve been using difflam 3...

Can anyone who’s had mouth ulcers tell me how long they last, I’ve had them abou...

Elfed

•6 years ago

10 Replies

Avastin and muscle cramps

Hi all! sorry I haven’t been on here for a long while. I have my last Avastin tomorrow after 18 cycles. I would like to know if anyone on long time Avastin...

Hi all! sorry I haven’t been on here for a long while. I have my last Avastin to...

Manyin

•6 years ago

11 Replies

Westminster Hall debate - official record

Hello All The official record of yesterday's Westminster Hall debate on ovarian cancer is available to read here:...

Hello All The official record of yesterday's Westminster Hall debate on ovarian ...

OvacomeSupport

Partner•6 years ago

3 Replies

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Debulking

After debunking how does it take for stomach to flatten and not to get ant twinges

After debunking how does it take for stomach to flatten and not to get ant twing...

Aotters

•6 years ago

9 Replies

Ovary removal

Hi I had cervical cancer 10 years ago and kept my ovaries. Next week I’m getting one out as it’s attached to bowel and I get cysts on it..about 6 a year. I...

Hi I had cervical cancer 10 years ago and kept my ovaries. Next week I’m getting...

Debrunning

•6 years ago

10 Replies

Remission , recurrent ovarian cancer.

I am interested in how second or higher remission in advanced ovarian cancer was achieved, surgery, chemo or both? Is it possible to achieve remission just...

I am interested in how second or higher remission in advanced ovarian cancer was...

ivanco1

•6 years ago

12 Replies

Still waiting

So fed up its been almost 3 weeks since I saw consultant had biopsy of womb lineing ,3 blood tests,examinations I was told they'd get back to me re I'll get a...

So fed up its been almost 3 weeks since I saw consultant had biopsy of womb line...

Hidden

•6 years ago

14 Replies

Belly Dancing Exercise Class - Sunday 11 November

Hello All This is to let you know that Ovacome will be holding a dance exercise afternoon on Sunday 11 November, from 2 - 4:30 PM, in Central London. Fleur...

Hello All This is to let you know that Ovacome will be holding a dance exercise ...

OvacomeSupport

Partner•6 years ago

7 Replies

Keep losing the debate in parliament live will we be able to view later in full?

Aaaagh so frustrated the current debate re OC keeps stopping on my device! Will I be able to view it in full later anyone?

Aaaagh so frustrated the current debate re OC keeps stopping on my device! Will ...

BeeWild

•6 years ago

5 Replies

Recurrence of LGSC

Hi I’m new here was diagnosed with low grade serous carcinoma stage 4b in 2017 got operated lot was taken out hysterectomy spleen GB intestine and colon...

Hi I’m new here was diagnosed with low grade serous carcinoma stage 4b in 2017 g...

Skud

•6 years ago

2 Replies

Surgery postponed

Hello again I’m supposed to have my big surgery tomorrow - total hysterectomy, salpingo-oophorectomy and omentectomy. But surprise, surprise I’ve acquired a...

Hello again I’m supposed to have my big surgery tomorrow - total hysterectomy, ...

purejoy12

•6 years ago

23 Replies

Stage 1A

Hi I had a complete hysrectomy 6 weeks ago and diagnosed with stage 1 a clear cell. Having 6 sessions of chemo. Anyone having same diagnosis as me? Thank you

Hi I had a complete hysrectomy 6 weeks ago and diagnosed with stage 1 a clear c...

Purplish

•6 years ago

17 Replies

Sex after ovarian cancer treatment - various links

Hello All There's an article in today's Guardian about sex after hysterectomy for ovarian cancer which I thought might be of interest. It's a letter sent to...

Hello All There's an article in today's Guardian about sex after hysterectomy fo...

OvacomeSupport

Partner•6 years ago

3 Replies

Update post - let people know how you're doing! (Autumn 2018)

Hello All It's that time of year again in the UK when the clocks change, which means its time for an update post which I will pin to the side bar. If you...

Hello All It's that time of year again in the UK when the clocks change, which m...

OvacomeSupport

Partner•6 years ago

16 Replies

Chemo after optimal debulking

When I had chemo before the debulking surgery I felt positive and strong. Now a month after debulking surgery I have started with chemo again. I'm struggling...

When I had chemo before the debulking surgery I felt positive and strong. Now a ...

JenSA

•6 years ago

10 Replies

I'm Locked out of my account also

HI ADMIN TEAM , I tried with the help line and still can not post when i post it does not show up on the site, it must be there as i get reply's but only if...

HI ADMIN TEAM , I tried with the help line and still can not post when i post it...

lorraine71-Australia

•6 years ago

7 Replies

"Ellen Pompeo gives terrible advice about ovarian cancer screening on The Ellen Show"

On a recent Ellen Degeneres show (on fundraising for breast cancer) the actress Ellen Pompeo incorrectly gave advice on ovarian cancer screening. Dr. Jen...

On a recent Ellen Degeneres show (on fundraising for breast cancer) the actress ...

Luci22

•6 years ago

7 Replies

Cover Up

Land's End Nightdress, beads and scarf all covering the hospital gear. Much love to all responders from eccentric potter (according to brother)

Land's End Nightdress, beads and scarf all covering the hospital gear. Much love...

angeladale

•6 years ago

46 Replies

Pathfinder Wales

My CNS Sarah has been involved in producing a booklet about Ovarian Cancer. I have copied the pages but cannot upload more than one page at a time (approx 18)...

My CNS Sarah has been involved in producing a booklet about Ovarian Cancer. I h...

Hidden

•6 years ago

6 Replies

Minion Ovarian Champions

I saw this picture on FB courtesy of a lovely lady called Tam Smith, who is an OC Warrior and thought you may like to see it. For all my fellow warriors hope...

I saw this picture on FB courtesy of a lovely lady called Tam Smith, who is an O...

Hidden

•6 years ago

7 Replies

Rash on Caelyx?

Has anybody been on Caelyx and developed a blistery rash on their palm? It came up so quickly today and my hands are very tender

Has anybody been on Caelyx and developed a blistery rash on their palm? It came ...

Etakeloop

•6 years ago

17 Replies

Catch up time ....again ....

Am I overcome's worst correspondent ? I hope not but I do know I slip out of the loop . It's been a bad year ....along with so many of us , I seem to have been...

Am I overcome's worst correspondent ? I hope not but I do know I slip out of the...

angeladale

•6 years ago

50 Replies

Parps and Non-Brca genes

Hello ladies, I'm wondering if anyone can help me understand what the maintenance treatment options are for women without the brca gene for high grade serous...

Hello ladies, I'm wondering if anyone can help me understand what the maintena...

Luci22

•6 years ago

26 Replies

Mucinous cancer for beginners

Hi all. I am nearly at the end of chemo for grade 1a mucinous ovarian cancer. Initially I remember hearing somewhere by the medics that this type of cancer...

Hi all. I am nearly at the end of chemo for grade 1a mucinous ovarian cancer. I...

Helenafrost53

•6 years ago

13 Replies

Westminster Hall debate - your comments needed

Hello All As you may know, Lee Rowley MP is leading a Westminster Hall debate on ovarian cancer diagnosis and treatment on Tuesday 30 October. In the lead up...

Hello All As you may know, Lee Rowley MP is leading a Westminster Hall debate on...

OvacomeSupport

Partner•6 years ago

7 Replies

GOOD side effects from chemo

I wondered if anyone else had some good side effects from chemo. I had two: a persistent sebaceous cyst which I had gotten cut out of my ear lobe 3 times but...

I wondered if anyone else had some good side effects from chemo. I had two: a pe...

BellmoreBelle

•6 years ago

21 Replies

TINZAPARIN INJECTIONS

My surgeon said I had to self inject Tinzaparin for 28 days. We have managed 14 and now want to give up. My thighs are black and blue, my hubbie has to...

My surgeon said I had to self inject Tinzaparin for 28 days. We have managed 14 ...

Hidden

•6 years ago

58 Replies

question about PALB2 mutation

Hi. I thought I posted this last night, but don't see it anywhere. Yesterday I had my genetic results and am told I have this mutation which gives me a 58%...

Hi. I thought I posted this last night, but don't see it anywhere. Yesterday I h...

delia2

•6 years ago

8 Replies

MRI results - very confused

Hi there, I first posted about 4 months ago after a ultrasound picked up 11.5cm complex ovarian cyst. My CA125 was in normal range and was referred for...

Hi there, I first posted about 4 months ago after a ultrasound picked up 11.5cm ...

Linzif75

•6 years ago

1 Reply

Student project - your help needed

Hello All Ovacome has been put in contact with Honor, who is a final year design student at Loughborough University studying Product Design and Technology......

Hello All Ovacome has been put in contact with Honor, who is a final year design...

OvacomeSupport

Partner•6 years ago

6 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for October 2018

Sore mouth

Avastin and muscle cramps

Westminster Hall debate - official record

Debulking

Ovary removal

Remission , recurrent ovarian cancer.

Still waiting

Belly Dancing Exercise Class - Sunday 11 November

Keep losing the debate in parliament live will we be able to view later in full?

Recurrence of LGSC

Surgery postponed

Stage 1A

Sex after ovarian cancer treatment - various links

Update post - let people know how you're doing! (Autumn 2018)

Chemo after optimal debulking

I'm Locked out of my account also

"Ellen Pompeo gives terrible advice about ovarian cancer screening on The Ellen Show"

Cover Up

Pathfinder Wales

Minion Ovarian Champions

Rash on Caelyx?

Catch up time ....again ....

Parps and Non-Brca genes

Mucinous cancer for beginners

Westminster Hall debate - your comments needed

GOOD side effects from chemo

TINZAPARIN INJECTIONS

question about PALB2 mutation

MRI results - very confused

Student project - your help needed

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