Posts - My Ovacome | HealthUnlocked

My Ovacome

18,204 members•20,344 posts

All posts for June 2023

Update on swollen legs/feet

Hi, I posted 2 days ago that I was experiencing swollen legs and feet and was unsure if it was due to GSF injections. Had bloods done today prior to seeing...

Hi, I posted 2 days ago that I was experiencing swollen legs and feet and was un...

Nov5

•1 year ago

4 Replies

blood transfusion prep

I completed exactly one year on Olaparib today. I had high grade serous OC stg4, brca1, and started in op after chemo and surgery was very effective. My HB...

I completed exactly one year on Olaparib today. I had high grade serous OC stg4,...

Goodgirl98

•1 year ago

24 Replies

From cancer to Kilimanjaro

hi everyone, I put an update on recently and people wanted to know more. Last year I was diagnosed with stage 3c low grade serous. It was a complete shock...

hi everyone, I put an update on recently and people wanted to know more. La...

Mrs_Thomas

•1 year ago

3 Replies

Want to take advantage of all our features? Just log in!

Liver and gall bladder

Hello ladies, I am currently experiencing a lot of pain on the right side of my torso, front and back. I have tumours ontop and inside of my liver but they...

Hello ladies, I am currently experiencing a lot of pain on the right side of my...

Kaitlinsmum

•1 year ago

3 Replies

What happens after niraparib

Hi everyone New to the forum was diagonised with stage 1c3 clear cell mixed ovarian cancer had surgery november 2021 and finished chemo June 22 been on...

Hi everyone New to the forum was diagonised with stage 1c3 clear cell mixed ovar...

BallyMacfan

•1 year ago

7 Replies

update

hey guys, Just wanted to give a positive update! I had my latest bloods through and my ca125 is 6 and ct results say NED. So happy I am 16 months on from...

hey guys, Just wanted to give a positive update! I had my latest bloods throug...

Mrs_Thomas

•1 year ago

24 Replies

Clear cell ovarian cancer

Hi, I was discharged from my oncologist in February and told I was to have gyny/onc appointments every three months for the first year at my own hospital. My...

Hi, I was discharged from my oncologist in February and told I was to have gyny/...

Rexrescue

•1 year ago

6 Replies

GSF side effects

Morning all,I've been on GSF injections due to persistent neutrophils. The bone pain has been quite debilitating, but with this last round I've also noticed...

Morning all,I've been on GSF injections due to persistent neutrophils. The bone ...

Nov5

•1 year ago

9 Replies

confusing results regarding septated cyst

hi all, I’m not sure if I have posted in the right spot here and am new to this forum. In the past month I have been in to see my doctor with persistent...

hi all, I’m not sure if I have posted in the right spot here and am new to thi...

Mountainmum27

•1 year ago

3 Replies

First recurrance, advice needed

Good evening lovely ladies I was diagnosed with Ovarian cancer stage 4a in August 2021. Also am BRIP1. I Have had debulking surgery and 8 rounds of...

Good evening lovely ladies I was diagnosed with Ovarian cancer stage 4a in Augu...

Skyeplus

•1 year ago

7 Replies

Another delay

Chemo delayed again for another week as blood work has not recovered again!!! Has anybody else had this ?? Got my self ready for tomorrow as well it just feels...

Chemo delayed again for another week as blood work has not recovered again!!! Ha...

Cazy1010

•1 year ago

17 Replies

Feeling down

Hi to you all,I'm a bit down today and hope it's okay to offload on you guys. Been having back and stomach pain on 'watch and wait' and my onc said this...

Hi to you all,I'm a bit down today and hope it's okay to offload on you guys. B...

Riverflo

•1 year ago

52 Replies

hair care with olaparib

has anyone tried hair colouring or smoothening when on olaparib. My grays have become prominent in the last year and my hairs are growing back curly (never had...

has anyone tried hair colouring or smoothening when on olaparib. My grays have b...

Goodgirl98

•1 year ago

16 Replies

Olaparib - how long to get used to it

Hi allI've been taking Olaparib for just under a month now. I don't have terrible side-effects but am often tired and nauseous. (I'm on my second anti-nausea...

Hi allI've been taking Olaparib for just under a month now. I don't have terribl...

Demelzatheseagull

•1 year ago

9 Replies

leg swelling

Hi, I've been told I have an obstruction on my left kidney I think the uretha area, not working properly... I'll find out tomorrow more with oncologist but now...

Hi, I've been told I have an obstruction on my left kidney I think the uretha ar...

Melnie

•1 year ago

5 Replies

Niraparib question

Does anyone was taking Niraparib know if it's ok to have your hair dyed? Now I actually have hair I like I don't fancy it turning green!

Does anyone was taking Niraparib know if it's ok to have your hair dyed? Now I ...

Ova-whelmed

•1 year ago

5 Replies

hair woe

hi everyone Had my first chemo 2weeks ago My hair seems to be coming out now Just wondering did anyone have scalp pain ? marie

hi everyone Had my first chemo 2weeks ago My hair seems to be coming out now ...

Le-gra143

•1 year ago

21 Replies

Recurrence

Hi everyone. I was originally diagnosed 4 and 1/2 years ago, 3c high serrous ovarian cancer. I now have my first recurrence. I have ovarian cancer cells...

Hi everyone. I was originally diagnosed 4 and 1/2 years ago, 3c high serrous ova...

KimLJ

•1 year ago

11 Replies

No scan offered!

I have a recurring ovarian cancer. I'm treatable but not curable.I had radiotherapy in January to reduce a recurrence and my Ca125 went down to 21. It's now...

I have a recurring ovarian cancer. I'm treatable but not curable.I had radiother...

loobilou

•1 year ago

31 Replies

CA125

Morning lovely ladiesJust wondering if anyone knows anything about a 'normal' CA125 level, mine has now dropped to 9.2 and had my last chemo yesterday, CT scan...

Morning lovely ladiesJust wondering if anyone knows anything about a 'normal' CA...

Hidden

•1 year ago

20 Replies

low grade serous ovarian cancer

hello I’m new to the group but I was diagnosed with low grade ovarian cancer in October 2020 and have since had a radical hysterectomy in December 2020...

hello I’m new to the group but I was diagnosed with low grade ovarian cancer in ...

Gillianpickle

•1 year ago

18 Replies

Living with cancer

Hi All, Hope you are all keeping strong and positive, which is not always easy! I was wondering if there is anybody out there who is or has been in my...

Hi All, Hope you are all keeping strong and positive, which is not always easy!...

2016Mags

•1 year ago

18 Replies

How long was remission with caelyx?

I was wondering among those who received carbo/caelyx/doxil for first recurrence, if you achieved remission or stable disease, how long did it last?

I was wondering among those who received carbo/caelyx/doxil for first recurrence...

Frags4

•1 year ago

7 Replies

Lost fertility

hi ladies, I had my debulking last year at 34, I was trying for a baby and found my cancer accidentally, 3c lgs. At the time I couldn’t have fertility saving...

hi ladies, I had my debulking last year at 34, I was trying for a baby and fou...

Mrs_Thomas

•1 year ago

6 Replies

pathology results !

Hello ! Ok, to follow up from my previous post: The good news is, no ovarian tumour residue etc. The “we don’t know yet news” is: The cervix , when...

Hello ! Ok, to follow up from my previous post: The good news is, no ovaria...

Atai

•1 year ago

2 Replies

10 Years

Hi everyone. At noon today it will be ten years since I went to A&E with pain in my legs. I couldn't get a doctors appointment which on this occasion turned...

Hi everyone. At noon today it will be ten years since I went to A&E with pain in...

ZenaJ

•1 year ago

70 Replies

Travel Insurance

Hi Ladies have any of you managed to find a travel insurance policy after completing treatment. Despite successful debulking surgery for stage 1C so am now...

Hi Ladies have any of you managed to find a travel insurance policy after comple...

Jholly4

•1 year ago

13 Replies

CA125

Hi there I have had raised CA125 for a while now - keeps going from 35-51 - had an ultrasound but it was fine (small cyst) and I also have had endometriosis...

Hi there I have had raised CA125 for a while now - keeps going from 35-51 - had...

ew6948

•1 year ago

4 Replies

Just to say THANK YOU

Thanks to you all for your kind words after a had a melt down the other day over my chemo !! I’m ok and taking it day by day , half way through now so keep...

Thanks to you all for your kind words after a had a melt down the other day over...

Cazy1010

•1 year ago

4 Replies

Trapped wind!

Has anyone got any pearls of wisdom of how to get rid of this? Had for a while after my hysterectomy. Tried peppermint tea, peppermint tablets, chewing gum and...

Has anyone got any pearls of wisdom of how to get rid of this? Had for a while a...

Tallulah55

•1 year ago

16 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for June 2023

Update on swollen legs/feet

blood transfusion prep

From cancer to Kilimanjaro

Liver and gall bladder

What happens after niraparib

update

Clear cell ovarian cancer

GSF side effects

confusing results regarding septated cyst

First recurrance, advice needed

Another delay

Feeling down

hair care with olaparib

Olaparib - how long to get used to it

leg swelling

Niraparib question

hair woe

Recurrence

No scan offered!

CA125

low grade serous ovarian cancer

Living with cancer

How long was remission with caelyx?

Lost fertility

pathology results !

10 Years

Travel Insurance

CA125

Just to say THANK YOU

Trapped wind!

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive