Posts - My Ovacome | HealthUnlocked

My Ovacome

17,818 members • 20,056 posts

All posts for November 2019

Kidney problems

Hi all. Since my operation in 2016, I have had recurring issues with urine inflections, which I now manage pretty well with probiotics. When tested however...

Hi all. Since my operation in 2016, I have had recurring issues with urine infle...

27-359

•5 years ago

3 Replies

Update on Treatment

Evening friends I have just got back from my appointment with consultant , the cancer is on the surface of the liver as we thought. They propose Taxol given...

Evening friends I have just got back from my appointment with consultant , the c...

1916

•5 years ago

19 Replies

PARP inhibitor availability in Scotland - your comments needed

Hello All We'd like to gather information about the experiences of forum members in Scotland around accessing PARP inhibitors and your views on their...

Hello All We'd like to gather information about the experiences of forum member...

OvacomeSupport

Partner•5 years ago

4 Replies

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In focus: hair - wigs and scarves

Hello Continuing our series of posts on hair, this week we're focusing on wigs and scarves. If you’re affected by hair loss due to chemotherapy, you may...

Hello Continuing our series of posts on hair, this week we're focusing on wigs...

OvacomeSupport

Partner•5 years ago

7 Replies

Help! Does anyone have information about Taste Alteration?

I am on Taxotere - 3 weeks on, 1 off. I just finished my second round of three infusions last week. About 4 days ago I started having serious mouth issues. I...

I am on Taxotere - 3 weeks on, 1 off. I just finished my second round of three i...

Superkim

•5 years ago

6 Replies

Gutted - the results of my CT scan - I've recurred

I had the dread news today. The surgical team have managed to squeeze me into their schedule NEXT TUESDAY, so I'm back on the treadmill. Will anyone else be at...

I had the dread news today. The surgical team have managed to squeeze me into th...

BellmoreBelle

•5 years ago

42 Replies

Second Opinions and Referrals

Hello everyone, I am asking on behalf of so many of us, who are not quite sure our medical teams are offering us all the options that might be open to us. In...

Hello everyone, I am asking on behalf of so many of us, who are not quite sure o...

Lindaura

•5 years ago

35 Replies

Ova to You, Leicester this Wednesday, 20 November

Dear All This is to remind you about our event in Leicester on Wednesday 20 November, from 2pm to 6 pm. It's an opportunity to meet others with a similar...

Dear All This is to remind you about our event in Leicester on Wednesday 20 Nov...

OvacomeSupport

Partner•5 years ago

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Bad Timing

Just fancied a mint humbug but I am regretting it now as a big lump of filling has fallen out just in the middle of my chemo sessions. So do I get it fixed as...

Just fancied a mint humbug but I am regretting it now as a big lump of filling h...

jenny8c

•5 years ago

17 Replies

Thank you for all the Love and support

I am coming to the end of my journey and battle. Four years with ovarian 3C Cancer. Gene mutation and carbo resistant. While I'm healthy I want to enjoy the...

I am coming to the end of my journey and battle. Four years with ovarian 3C Canc...

Luvliving

•5 years ago

58 Replies

Thank you to all you lovely people who responded to my abraxane enquiry

I have had many responses to my post about abraxane. Thank you to all of you who took the time to give me your advice. I really appreciate it. Had my 1st...

I have had many responses to my post about abraxane. Thank you to all of you who...

Lynnn53

•5 years ago

2 Replies

The b****** is back

Morning lovely ladies. I had my appointment with my oncologist yesterday and she went through my scan with me. Basically the segment 5 liver metastasis has...

Morning lovely ladies. I had my appointment with my oncologist yesterday and she...

Welshandproud

•5 years ago

86 Replies

Update

Afternoon friends. I have posted two updates but dont know where they have ended up?. Anyway I had my fluid removed on mon 4 half litres, so I certainly feel...

Afternoon friends. I have posted two updates but dont know where they have ended...

1916

•5 years ago

8 Replies

Back to it

After a lovely break in Lanzarote today is back to chemo day. Feeling very anxious for some reason maybe it’s because of the chemo I’m having and remember 5...

After a lovely break in Lanzarote today is back to chemo day. Feeling very anxio...

Samjane

•5 years ago

13 Replies

In focus: hair - scalp cooling

Hello Continuing our series of posts on hair, this week we're focusing on scalp cooling. Although there isn’t a way to completely prevent hair loss due to...

Hello Continuing our series of posts on hair, this week we're focusing on scalp...

OvacomeSupport

Partner•5 years ago

4 Replies

Deja Vu. CEBOC may not be working.

So after great results from chemo and again two months after, I've come crashing down again 😔. Ca125 has started rocketing again just as it did in February,...

So after great results from chemo and again two months after, I've come crashing...

LittleSan

•5 years ago

41 Replies

Slightly worried

Just had a call from oncology saying that although my CT scan looked okay generally, there is a very tiny fuzzy bit on my liver so to be thorough, they are...

Just had a call from oncology saying that although my CT scan looked okay genera...

Lockygill

•5 years ago

14 Replies

Further treatment

Hi ladies I had a total hysterectomy and appendix removal surgery on the 31st October, after my right ovary was previously removed in August for mucinous...

Hi ladies I had a total hysterectomy and appendix removal surgery on the 31st Oc...

Emm77

•5 years ago

15 Replies

Lymph nodes

Hi I was diagnosed HGS peritoneal cancer April 2017 by finding a lymph node in my groin no other symptoms felt very well no ascites. Had 3 carbo\\taxol then...

Hi I was diagnosed HGS peritoneal cancer April 2017 by finding a lymph node in m...

transf2856

•5 years ago

13 Replies

Icon 9 trial

Is anyone on Icon9 trial? I’m planning to but would like to hear how others are getting on with it.

Is anyone on Icon9 trial? I’m planning to but would like to hear how others are ...

dramaredgerbil

•5 years ago

12 Replies

CA on the rise

Hi Ladies me again with more to the saga , so after getting onc to give me cisplatin sadly after my first infusion my ca has now gone from 506 to 950 😰 I am...

Hi Ladies me again with more to the saga , so after getting onc to give me cispl...

Lorent

•5 years ago

12 Replies

MSI

Hi wondering what MSI means for ovarian cancer if someone could explain I see people talking about MSI in different online boards Thank you 🙏 xo

Hi wondering what MSI means for ovarian cancer if someone could explain I see pe...

caroline9090

•5 years ago

1 Reply

Update rising Ca125 on Niraparib

Morning lovely ladies and thank you to all of you who replied to my previous post. I had my ct scan on Wednesday and my consultant appointment yesterday. My...

Morning lovely ladies and thank you to all of you who replied to my previous pos...

Welshandproud

•5 years ago

45 Replies

In focus: hair - hair care before and after hair loss

Hello As you may already know, we are doing a series of posts each month focusing on a particular health topic such as diet or complementary therapies. For...

Hello As you may already know, we are doing a series of posts each month focusi...

OvacomeSupport

Partner•5 years ago

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Anyone heard anything from Kryssy?

Hi lovelies, Has anyone heard from Kryssy recently? Xxx

CallmeMum

•5 years ago

9 Replies

Ova to You.. Leicester

Dear All This is to let you know we will be holding an event in Leicester on Wednesday 20 November, from 2pm to 6 pm. It's an opportunity to meet others with a...

Dear All This is to let you know we will be holding an event in Leicester on Wed...

OvacomeSupport

Partner•5 years ago

Be the first to reply

mum 4 months on 💗💗

Hello everybody... thought you would like to see my mum 4 months since last chemo for ppc grade 3... doing very well! Next appointment is on 21st nov which Im...

Hello everybody... thought you would like to see my mum 4 months since last chem...

claireRoberts76

•5 years ago

16 Replies

Ned 💕🤞😉

Hello ladies. I hope you are all getting along with the beast. I just got home from the hospital and I can't stop smiling. My pet scan showed alot of tumors...

Hello ladies. I hope you are all getting along with the beast. I just got home...

Unlockes

•5 years ago

18 Replies

Laura & the DICE Trial Update

Hello everyone, Hope you are all as well as can be and are keeping warm as we head into winter. Well I have more good news to report. Entering the first week...

Hello everyone, Hope you are all as well as can be and are keeping warm as we he...

Lindaura

•5 years ago

70 Replies

CA125 increase

Hi Teal Sisters: Has anyone on Lynparza had their CA125 slowly increase. Finished my last infusion October of 2018 and it was at 16 and in a little overr a...

Hi Teal Sisters: Has anyone on Lynparza had their CA125 slowly increase. Finis...

retired2013

•5 years ago

4 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for November 2019

Kidney problems

Update on Treatment

PARP inhibitor availability in Scotland - your comments needed

In focus: hair - wigs and scarves

Help! Does anyone have information about Taste Alteration?

Gutted - the results of my CT scan - I've recurred

Second Opinions and Referrals

Ova to You, Leicester this Wednesday, 20 November

Bad Timing

Thank you for all the Love and support

Thank you to all you lovely people who responded to my abraxane enquiry

The b****** is back

Update

Back to it

In focus: hair - scalp cooling

Deja Vu. CEBOC may not be working.

Slightly worried

Further treatment

Lymph nodes

Icon 9 trial

CA on the rise

MSI

Update rising Ca125 on Niraparib

In focus: hair - hair care before and after hair loss

Anyone heard anything from Kryssy?

Ova to You.. Leicester

mum 4 months on 💗💗

Ned 💕🤞😉

Laura & the DICE Trial Update

CA125 increase

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