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Aplastic anaemia
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IFA negative, Low Active B12 - advice please.
Hi - a brief update and request for advice on B12. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had the chance to discuss my concerns properly with her junior. This was granted
Hi - a brief update and request for advice on B12. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had the chance to discuss my concerns properly with her junior. This was granted
GW1000
in
Pernicious Anaemia Society
2 years ago
Anemia
dealing with iron deficiency anemia of chronic diseases and suspect a B12 deficiency too but I almost think my immune system has attacked something else, to the point that I have a whole nother level of Anemia’s … It’s been 6 weeks since I had my last iron infusion and I’m starting to feel really weak
dealing with iron deficiency anemia of chronic diseases and suspect a B12 deficiency too but I almost think my immune system has attacked something else, to the point that I have a whole nother level of Anemia’s … It’s been 6 weeks since I had my last iron infusion and I’m starting to feel really weak
SouthernBell50
in
Pernicious Anaemia Society
2 years ago
Iron Panel Results High
Hello, I have been reading the posts on this site for a few months and the information has been very beneficial. Thank you all! I stopped taking the prescribed daily dose of Ferrous Sulfate 325 mg 48 hours before getting the Iron lab test. Also, fasted before test and had done 1st thing in the morning
Hello, I have been reading the posts on this site for a few months and the information has been very beneficial. Thank you all! I stopped taking the prescribed daily dose of Ferrous Sulfate 325 mg 48 hours before getting the Iron lab test. Also, fasted before test and had done 1st thing in the morning
briscc
in
Restless Legs Syndrome
2 years ago
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Constantly high white blood cells and raised CRP
hi everyone, please could someone help me with this question, I have for the past year have had raised white blood cell count ranging from 11-19 cut off labs are 4.5-10 also raised CRP 18-25 cut off lab 0-9, They now never come down to the normal range and I’m feeling pretty poorly constantly, I have
hi everyone, please could someone help me with this question, I have for the past year have had raised white blood cell count ranging from 11-19 cut off labs are 4.5-10 also raised CRP 18-25 cut off lab 0-9, They now never come down to the normal range and I’m feeling pretty poorly constantly, I have
Steph0077
in
Pernicious Anaemia Society
2 years ago
Preparing for antibodies test
Good morning, my GP has approved an antibodies test and a full blood count (the only 2 things that were missing from my last test on 3rd October). I’ve never had an antibody test before Am I okay taking b12 & b complex prior to both these tests or should I refrain until after? And should I
Good morning, my GP has approved an antibodies test and a full blood count (the only 2 things that were missing from my last test on 3rd October). I’ve never had an antibody test before Am I okay taking b12 & b complex prior to both these tests or should I refrain until after? And should I
SleepingDisco
in
Thyroid UK
2 years ago
any higher strength iron glycinate supplements?
Hi, thanks in advance. My teenager is taking iron glycinate 27mg iron per tablet. I sourced this after the fumarate prescribed by GP seemed to be giving stomach pain. Current dose of 1 per day is maybe not sufficient to increase her ferritin. It was around 15 for several years (till I read up about
Hi, thanks in advance. My teenager is taking iron glycinate 27mg iron per tablet. I sourced this after the fumarate prescribed by GP seemed to be giving stomach pain. Current dose of 1 per day is maybe not sufficient to increase her ferritin. It was around 15 for several years (till I read up about
camomile9
in
Thyroid UK
2 years ago
Can you give me advice on my blood results please?
Full blood count Monitoring Total white blood count 4.7 10*9/L [3.9 - 10.2] Red blood cell count 4.48 10*12/L [3.9 - 5.2] Haemoglobin concentration 144 g/L [120.0 - 156.0] Haematocrit 0.449 L/L [0.355 - 0.455] Mean cell volume 100.1 fL [80.0 - 99.0] Above high reference limit Mean cell haemoglobin
Full blood count Monitoring Total white blood count 4.7 10*9/L [3.9 - 10.2] Red blood cell count 4.48 10*12/L [3.9 - 5.2] Haemoglobin concentration 144 g/L [120.0 - 156.0] Haematocrit 0.449 L/L [0.355 - 0.455] Mean cell volume 100.1 fL [80.0 - 99.0] Above high reference limit Mean cell haemoglobin
bubbatetley
in
Thyroid UK
2 years ago
Iron Info Heme vs Non Heme
So, Heme iron is from animal sources and is apparently better absorbed than non Heme iron (from plant sources). The two different iron types are absorbed by different pathways. But, there are real risks in supplementing with Heme iron - Coronary Artery disease and Cancer incidence increases. I would
So, Heme iron is from animal sources and is apparently better absorbed than non Heme iron (from plant sources). The two different iron types are absorbed by different pathways. But, there are real risks in supplementing with Heme iron - Coronary Artery disease and Cancer incidence increases. I would
DicCarlson
in
Restless Legs Syndrome
2 years ago
Questions for Hematologist?
Good afternoon, I’m scheduled to meet a new oncology hematologist on Wednesday, September 7th. I would appreciate suggestions for questions. Background: I have Hashimoto’s and two thyroid cancers. Fortunately I have no evidence of disease (remission) at this time. I learned on August 4 that 55% of
Good afternoon, I’m scheduled to meet a new oncology hematologist on Wednesday, September 7th. I would appreciate suggestions for questions. Background: I have Hashimoto’s and two thyroid cancers. Fortunately I have no evidence of disease (remission) at this time. I learned on August 4 that 55% of
BgpjbA
in
Pernicious Anaemia Society
2 years ago
Discussing Doctors Blood Test
hello all I’ve been on previously, last year, with my daughters blood test results from medicheks. Our Gp has just taken these bloods and here are the results. Could you please have a look and advise as she has a telephone call to discuss them. Just a little reminder background information, she was
hello all I’ve been on previously, last year, with my daughters blood test results from medicheks. Our Gp has just taken these bloods and here are the results. Could you please have a look and advise as she has a telephone call to discuss them. Just a little reminder background information, she was
sunnyday7
in
Thyroid UK
2 years ago
Spacing between Peg injections
Hello, I’ve been on Peg for PV for 2 years. Now down to 45 mcg every two weeks. Platelets remain where my doc wants them (between 100 and 200). Despite PV, I have only ever had HCT at higher end of normal - never higher than that. Over last year, my lymphocytes have been a bit low but no cause for concern
Hello, I’ve been on Peg for PV for 2 years. Now down to 45 mcg every two weeks. Platelets remain where my doc wants them (between 100 and 200). Despite PV, I have only ever had HCT at higher end of normal - never higher than that. Over last year, my lymphocytes have been a bit low but no cause for concern
Mymble
in
MPN Voice
2 years ago
Test results - can someone help?
Hi all, I had an iron test (fasted, no supplements for iron in months) and could do with some help, if anyone can? Iron: 36.1 (r5.8 - 34.5) Ferritin: 60.1 (r13 - 150) So my ferritin is a little low, but why then is the iron in my blood over the normal range? Should I be worried? I can't take supplements
Hi all, I had an iron test (fasted, no supplements for iron in months) and could do with some help, if anyone can? Iron: 36.1 (r5.8 - 34.5) Ferritin: 60.1 (r13 - 150) So my ferritin is a little low, but why then is the iron in my blood over the normal range? Should I be worried? I can't take supplements
Suzanneharb
in
Thyroid UK
2 years ago
Taking B12 injections daily.
Hi Guys and Girls, This site has been a tremendous help and blessing for me and my GP, who knew little about PA. I am injecting 1ml of methylcobalamin EOD, I have been injecting since Nov. 2021, in the early days, I really didn’t know what I was doing and my GP knew less, I was injecting once a month
Hi Guys and Girls, This site has been a tremendous help and blessing for me and my GP, who knew little about PA. I am injecting 1ml of methylcobalamin EOD, I have been injecting since Nov. 2021, in the early days, I really didn’t know what I was doing and my GP knew less, I was injecting once a month
RisingOne
in
Pernicious Anaemia Society
2 years ago
abnormal MCV - what does it mean? Any ideas please?
I have had an abnormal MCV result after having routine blood tests and have had many abnormal MCV and MCH results in the past. Years ago I asked my GP what it meant I think he said it just meant I had a lot of blood… he didn’t think it was anything to be concerned about. I haven’t had contact with
I have had an abnormal MCV result after having routine blood tests and have had many abnormal MCV and MCH results in the past. Years ago I asked my GP what it meant I think he said it just meant I had a lot of blood… he didn’t think it was anything to be concerned about. I haven’t had contact with
Artemis2
in
Pernicious Anaemia Society
2 years ago
Vertigo as a side effect of B12 injection?
Hello all, I have “spells” of vertigo which I usually chalk up to sinus congestion or chronic ear problems. I injected 2 days ago, not having had any vertigo prior for a few months. The vertigo started within 12 hours of the hydroxy injection and is quite severe now 48 hours later. Could this be a side
Hello all, I have “spells” of vertigo which I usually chalk up to sinus congestion or chronic ear problems. I injected 2 days ago, not having had any vertigo prior for a few months. The vertigo started within 12 hours of the hydroxy injection and is quite severe now 48 hours later. Could this be a side
EiCa
in
Pernicious Anaemia Society
2 years ago
co-trimoxazole and anaemia/folate deficiency
I was wondering if anyone in the community has had any experience of taking Co-trimoxazole long term and anaemia/folate deficiency ? I have been prescribed Co-trimoxazole for roughly 6 years, and over the last 9 months I have become more and more anaemic, even though I was taking Iron, I have just had
I was wondering if anyone in the community has had any experience of taking Co-trimoxazole long term and anaemia/folate deficiency ? I have been prescribed Co-trimoxazole for roughly 6 years, and over the last 9 months I have become more and more anaemic, even though I was taking Iron, I have just had
fapumpkin
in
CLL Support
2 years ago
Just been approved for Vitamin B12 injection treatment.
hello everyone this is my first post. I have been experiencing many of the symptoms of functional b12 deficiency/pernicious anemia for close to 7 years. My doctor was reluctant for whatever reason to authorize the injections, even though I had a positive parietal cell antibody test. I guess my question
hello everyone this is my first post. I have been experiencing many of the symptoms of functional b12 deficiency/pernicious anemia for close to 7 years. My doctor was reluctant for whatever reason to authorize the injections, even though I had a positive parietal cell antibody test. I guess my question
MikeyO
in
Pernicious Anaemia Society
2 years ago
David Cassidy, alcoholism or pernicious anemia?
just watched David Cassidy's last interview with Dr Phil. It was extremely sad. I feel very strongly that David Cassidy who died of dementia had pernicious anemia along with his mother and his grandfather. I'm wondering I don't know if I'm allowed to post this link but I would love for people to watch
just watched David Cassidy's last interview with Dr Phil. It was extremely sad. I feel very strongly that David Cassidy who died of dementia had pernicious anemia along with his mother and his grandfather. I'm wondering I don't know if I'm allowed to post this link but I would love for people to watch
EllaNore
in
Pernicious Anaemia Society
2 years ago
Anti iFAB tests
Good morning all, I’m wondering about the anti IFAB test. I am aware that only 50% of people with PA test positive for these, but not sure why. Does anyone know if it’s just your luck on the day (I.e. do antibody levels fluctuate significantly, possibly when you are having a gastritis flare - I’ve
Good morning all, I’m wondering about the anti IFAB test. I am aware that only 50% of people with PA test positive for these, but not sure why. Does anyone know if it’s just your luck on the day (I.e. do antibody levels fluctuate significantly, possibly when you are having a gastritis flare - I’ve
Sparklyjenson
in
Pernicious Anaemia Society
2 years ago
Adjusting to new thyroxine dosage
Please could someone help as have recently had my dosage of thyroxine increased after blood tests indicated that it needed to be done. I also managed to have my brand changed back to Goldshield recently. Have been feeling like hell for some time so eventually my GP agreed to have bloods done, thus
Please could someone help as have recently had my dosage of thyroxine increased after blood tests indicated that it needed to be done. I also managed to have my brand changed back to Goldshield recently. Have been feeling like hell for some time so eventually my GP agreed to have bloods done, thus
JennyWrenn4
in
Thyroid UK
2 years ago
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