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Aplastic anaemia
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Will NHS GP accept results of Medichecks IFAB test if positive?
Thinking of testing privately for PA as have not managed to persuade my GP that declining B12 levels are a possible cause of increased fatigue, nerve pain and other symptoms. Latest test showed B12 at 212 range (211 - 911). I have Hashimotos and have corrected folate deficiency on prescription for
Thinking of testing privately for PA as have not managed to persuade my GP that declining B12 levels are a possible cause of increased fatigue, nerve pain and other symptoms. Latest test showed B12 at 212 range (211 - 911). I have Hashimotos and have corrected folate deficiency on prescription for
Realtiger
in
Pernicious Anaemia Society
1 year ago
Iron Levels
Hi, Just a quick question if anyone is able to answer. I had some blood tests done a few weeks back at my GP Practice, thought everything was fine as didn't hear back with the results but was called this morning out of the blue. I have been advised that my iron levels are high and he may need to refer
Hi, Just a quick question if anyone is able to answer. I had some blood tests done a few weeks back at my GP Practice, thought everything was fine as didn't hear back with the results but was called this morning out of the blue. I have been advised that my iron levels are high and he may need to refer
Lynzyc
in
MPN Voice
1 year ago
Ferritin
A blood test last Friday shows low ferritin. I eat loads of iron rich foods and self inject on top of my 8 weekly gp injections. Symptoms have increased recently with very easy bruising and bleeding after injections and blood test as well as pins and needles, fatigue....all the usual symptoms.Does anyone
A blood test last Friday shows low ferritin. I eat loads of iron rich foods and self inject on top of my 8 weekly gp injections. Symptoms have increased recently with very easy bruising and bleeding after injections and blood test as well as pins and needles, fatigue....all the usual symptoms.Does anyone
Hidden
in
Pernicious Anaemia Society
1 year ago
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Why do I have a high pulse?
I hope someone can help me. I was diagnosed with pernicious anaemia after asking to be tested. It turned out my Vitamin B12 level was 117 pmol/l. I was given cyancobalamine injections every 3 months. No loading doses. Later SI weekly with methylcobalamine I order from Germany. Lately, I have the
I hope someone can help me. I was diagnosed with pernicious anaemia after asking to be tested. It turned out my Vitamin B12 level was 117 pmol/l. I was given cyancobalamine injections every 3 months. No loading doses. Later SI weekly with methylcobalamine I order from Germany. Lately, I have the
Bluemuffin
in
Pernicious Anaemia Society
1 year ago
B12 Injections/B12 Drops ?
I have had a number of neurogical symptoms for over a year so my GP agreed to my having EOD B12 injections for two weeks - my main improvements were instant, I was waking earlier 7am - (against 9am or later) and able to watch television without falling asleep in the evening - he then agreed to my having
I have had a number of neurogical symptoms for over a year so my GP agreed to my having EOD B12 injections for two weeks - my main improvements were instant, I was waking earlier 7am - (against 9am or later) and able to watch television without falling asleep in the evening - he then agreed to my having
Lemondrizz1
in
Pernicious Anaemia Society
1 year ago
augmentation pregabilin
Hi I have been taking pregabilin 150 mg early evening which has been very effective up until recently, for my RLS. I have complex medical issues and have recently had an iron infusion. I have a 12 hour abdominal surgery due on 26 th September. I would just like clarification that augmentation is
Hi I have been taking pregabilin 150 mg early evening which has been very effective up until recently, for my RLS. I have complex medical issues and have recently had an iron infusion. I have a 12 hour abdominal surgery due on 26 th September. I would just like clarification that augmentation is
Esme2007
in
Restless Legs Syndrome
11 months ago
Please help with blood results for iron status
Hi everyone, I hope someone can tell me what's going on with my iron status and whether I need iron supplements ( hair loss, fatigue).My GP isn't that attentive and I was told all was OK with now explaining about markers. Serum Tibc 45 umol/l (range 53-85) Serum iron level 27 unol/l ( range 12-36) Serum
Hi everyone, I hope someone can tell me what's going on with my iron status and whether I need iron supplements ( hair loss, fatigue).My GP isn't that attentive and I was told all was OK with now explaining about markers. Serum Tibc 45 umol/l (range 53-85) Serum iron level 27 unol/l ( range 12-36) Serum
sasha_nico
in
Thyroid UK
11 months ago
Book I just bought about Vitamin B12 Deficiency
In order to better prepare myself for my next visit with my GP, I bought the book "Vitamin B12 Deficiency in Clinical Practice" by Dr Joseph Chandy. My GP has been renewing my B-12 prescriptions for a few years and I self inject every 2 weeks. For some reason this year he tested my B-12 level and
In order to better prepare myself for my next visit with my GP, I bought the book "Vitamin B12 Deficiency in Clinical Practice" by Dr Joseph Chandy. My GP has been renewing my B-12 prescriptions for a few years and I self inject every 2 weeks. For some reason this year he tested my B-12 level and
prillyb12
in
Pernicious Anaemia Society
1 year ago
New pernicious anaemia diagnosis
Hi, I am a 20 year old female who has recently been diagnosed with pernicious anaemia (around the start of April). I was experiencing extreme tingling in my hands and feet which promoted the doctors to check my B-12 levels. Since having my initial loading doses, some of my symptoms have improved whilst
Hi, I am a 20 year old female who has recently been diagnosed with pernicious anaemia (around the start of April). I was experiencing extreme tingling in my hands and feet which promoted the doctors to check my B-12 levels. Since having my initial loading doses, some of my symptoms have improved whilst
Ellamae2
in
Pernicious Anaemia Society
1 year ago
letter from consultation
just had my letter from my meeting last week … still awaiting diagnosis but please I welcome your thoughts on this….. I note the serial blood counts that you kindly sent through from a number of different laboratories. These demonstrate a mild thrombocytosis, normal renal and liver function tests,
just had my letter from my meeting last week … still awaiting diagnosis but please I welcome your thoughts on this….. I note the serial blood counts that you kindly sent through from a number of different laboratories. These demonstrate a mild thrombocytosis, normal renal and liver function tests,
Carthe
in
MPN Voice
1 year ago
Tummy
Everytime I eat I get short of breath I have pain under sternum I don't no if it's lung n heart related ot it's my tummy I'm due endescopy in 2 weeks...I've had chest CT scan n 12hour holter test just waiting on results any one av any ideas?
Everytime I eat I get short of breath I have pain under sternum I don't no if it's lung n heart related ot it's my tummy I'm due endescopy in 2 weeks...I've had chest CT scan n 12hour holter test just waiting on results any one av any ideas?
Purple_1963
in
Lung Conditions Community Forum
1 year ago
A case study post bariatric surgery
For anyone who has access to twitter, this case study posted yesterday might be of some interest. Probably as much for the discussion as the original case. (Don't get too excited! It is just another case where the origination of the problem doesn't get blamed. As I see it, the cause was iatrogenic and
For anyone who has access to twitter, this case study posted yesterday might be of some interest. Probably as much for the discussion as the original case. (Don't get too excited! It is just another case where the origination of the problem doesn't get blamed. As I see it, the cause was iatrogenic and
helvella
in
Pernicious Anaemia Society
11 months ago
Iron. So confused.
Hi all, I'm going crazy with trying to understand what is going on with my iron levels right now. I recently got a NHS iron panel test that came back high - suggesting iron overload to which my GP panicked, but critically they missed off serum ferritin as there was a national reagent shortage. Following
Hi all, I'm going crazy with trying to understand what is going on with my iron levels right now. I recently got a NHS iron panel test that came back high - suggesting iron overload to which my GP panicked, but critically they missed off serum ferritin as there was a national reagent shortage. Following
Ebx_design
in
Thyroid UK
1 year ago
blood test results
I have a multi nodular goitre and am awaiting ENT assessment. I had bloods redone as I’m feeling extremely fatigued and have symptoms such as breathlessness, tremors. my results were: Total white cell count: 5.2 X10^9/L (normal range: 3.9 - 11.1) Red blood cell (RBC) count: 3.97 ×10^12/L
I have a multi nodular goitre and am awaiting ENT assessment. I had bloods redone as I’m feeling extremely fatigued and have symptoms such as breathlessness, tremors. my results were: Total white cell count: 5.2 X10^9/L (normal range: 3.9 - 11.1) Red blood cell (RBC) count: 3.97 ×10^12/L
Kellyellen
in
Thyroid UK
1 year ago
MMA results - supplements or further test?
Can I ask for your advice please? I have Hashmito’s. Since learning that this can influence the absorption of nutrients, I have been to the doctor’s to request tests. Last B12 test: 229 ng/l (190-910) I used B12 symptoms checklist which suggests severe deficiency. Neither of this seemed to worry
Can I ask for your advice please? I have Hashmito’s. Since learning that this can influence the absorption of nutrients, I have been to the doctor’s to request tests. Last B12 test: 229 ng/l (190-910) I used B12 symptoms checklist which suggests severe deficiency. Neither of this seemed to worry
Dandelions
in
Pernicious Anaemia Society
1 year ago
Blood Tests for Children
Hi all Finally managed to get blood tests for my children but annoyingly, my daughter was not tested for all cofactors - just B12. Son is being tested tomorrow and I want to give him a list to give to the nurse, but I can’t remember all the cofactors. Not one off my best days today! B12 Vitamin
Hi all Finally managed to get blood tests for my children but annoyingly, my daughter was not tested for all cofactors - just B12. Son is being tested tomorrow and I want to give him a list to give to the nurse, but I can’t remember all the cofactors. Not one off my best days today! B12 Vitamin
Wwwdot
in
Pernicious Anaemia Society
1 year ago
8 week bloodtest
After my last bloodtest I reduced my levothyroxine dose to 137.5mcg, i am still supplementing with B Complex, 1 ferrous fumarate iron tablet a day with vit c capsule, 5000iu vitamin D and a magnesium capsule. These are my latest test results after 8 weeks, i stopped the B complex and iron tablets a
After my last bloodtest I reduced my levothyroxine dose to 137.5mcg, i am still supplementing with B Complex, 1 ferrous fumarate iron tablet a day with vit c capsule, 5000iu vitamin D and a magnesium capsule. These are my latest test results after 8 weeks, i stopped the B complex and iron tablets a
catpurple7
in
Thyroid UK
11 months ago
Ferratin level
Hi. Probably in t he wrong section but all thoughts welcome. My ferratin is in the 'normal' range but low and dropping, even though I have been taking oral iron spray daily, liquid iron supplement given by my doctor, high iron foods in my diet. I get days of complete fatigue, other days I can cope but
Hi. Probably in t he wrong section but all thoughts welcome. My ferratin is in the 'normal' range but low and dropping, even though I have been taking oral iron spray daily, liquid iron supplement given by my doctor, high iron foods in my diet. I get days of complete fatigue, other days I can cope but
fiftyone
in
Thyroid UK
11 months ago
Anemia question
Hello there, I've been tested multiple times over the years and gets results similar to my most recent results which follow. I am hypothyroid and have psoriatic arthritis and Drs say that these results are typical for people with these conditions and not to worry about them overly. I have chronic insufficient
Hello there, I've been tested multiple times over the years and gets results similar to my most recent results which follow. I am hypothyroid and have psoriatic arthritis and Drs say that these results are typical for people with these conditions and not to worry about them overly. I have chronic insufficient
EchoWS
in
Thyroid UK
1 year ago
Postherpetic Neuralgia and B12
Not directly related to PA, but nonetheless of potential interest to those with PA as well as anyone with Postherpetic Neuralgia. (I currently have PHN and am taking methylcobalamin every day. Alongside capsaicin cream. Difficult to know if it is helping, but I think it is.) [i]
Patterns and Trends
Not directly related to PA, but nonetheless of potential interest to those with PA as well as anyone with Postherpetic Neuralgia. (I currently have PHN and am taking methylcobalamin every day. Alongside capsaicin cream. Difficult to know if it is helping, but I think it is.) [i]
Patterns and Trends
helvella
in
Pernicious Anaemia Society
1 year ago
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