TIL/ACT Therapy

[TT10]

I’m starting to run out of treatment options locally, and my Dr. is considering referring me to the National Cancer Institution for their TIL/ACT therapy program. Has anyone in the community explored or gone down this path?

[kellyOd]

I know someone who is going down that path with her husband. She is very knowledgeable. She is apart of the Melanoma Caregivers group; as well as I. But I follow this forum to see how everyone is dealing with treatments. Feel free to go look at the other forum! She has amazing information.

[TT10 in reply to kellyOd]

Thank you! I searched the other boards and found some information on open trials.

[Robynfine]

I know someone that has been NED for 5 years from TIL. Don’t give up!

[Robynfine in reply to Robynfine]

Let me know if you want his contact info

[ohdot50 in reply to Robynfine]

Hi Robyn, I am interested in your contact information. My son is meeting with his oncologist next week to discuss this trial. Thank you so much.

[Robynfine in reply to ohdot50]

[e-mail]

Bill Heyman is his name. Let me get his phone number for you

[ohdot50 in reply to Robynfine]

Thank you. My son was originally 2A in 6/16; went to 3B in 3/18 and ultimately stage 4 in 8/18. He continued to progress on Opdivo, after 2 of the Opdivo/Yervoy combos he had to stop due to thyroid and liver adverse reactions. Started a clinical trial of cobimetinib and atezolizumab early December - scans 1/30 should mixed response - lung mets stopped growing; pancreas and kidney tumors decreased in size, liver remains clear, but bone mets to hip increased. He is receiving radiation for bone mets; scans today and will meet with oncologist next week to discuss the LN-144 trial depending on what new scans show. Such an unpredictable disease. He has an amazing team, so thank you for the contact info - I’ll pass on to my son. You are an inspiration and a living hope that people can live and thrive with Stage 4 Melanoma.

My son is 44. So much of life yet to be lived.

[Robynfine in reply to ohdot50]

6127517906

Bill Heyman

[TT10 in reply to Robynfine]

That’s really encouraging! Thank you!