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Xeroderma Pigmentosum UK

XP Siblings - Reading Reference.

A friend send me this link to a book written for parents to help with issues around siblings and he complex issues arising from having a special brother or sister. Looks like an interesting read for those of us with XP children and siblings x x


Special Brothers and Sisters: A book review - Special Needs Jungle


Might be one to consider for the recommended reading list?

1 Reply

I have also just been given and read a book called Wonder by P.J Palacio. Its not about XP as such, but tells a story about a child with a facial disability from various people view points. Here is a link about it-


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