How do you see the XP support group h... - Xeroderma Pigment...
2
As a way of contacting others living with XP
2
By keeping up to date with XP by receiving a newsletter
2
Meeting others with XP via yearly camp (Owl Patrol)
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Advice about living with XP
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Providing assistance and help with transport/hotel bookings for clinic
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A chance to help fundraise for a worthy charity
0
Meeting an XP support group rep during clinic appointments
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I do not see the XP support group helping me
1 Reply
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That's a pretty clear result 
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