How do you see the XP support group h... - Xeroderma Pigment...

Xeroderma Pigmentosum UK

How do you see the XP support group helping you?

Luna2010 profile imageLuna2010Administrator••4 Voters
2
As a way of contacting others living with XP
2
By keeping up to date with XP by receiving a newsletter
2
Meeting others with XP via yearly camp (Owl Patrol)
2
Advice about living with XP
0
Providing assistance and help with transport/hotel bookings for clinic
0
A chance to help fundraise for a worthy charity
0
Meeting an XP support group rep during clinic appointments
0
I do not see the XP support group helping me
1 Reply
•
James-XPD profile image
James-XPD

That's a pretty clear result :-)

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