World According to Lupus
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PIP tribunal - awarded then taken away all within 2 months!


I have just submitted forms to go to tribunal to appeal my PIP decision.

I applied in June (ish) time last year, had a medical (Capita) in October last year and was awarded Standard Daily Care and Enhanced Mobility. I rang to 'query' a couple of things where they had given me 0 points but I felt I should have scored some. I was only 1 point off Enhanced daily care and if the report had recorded what I had explained to the assessor I would have got this!

What I didn't realise was that they would do a full reassessment!!! All they said on the phone was that my query had been recorded and someone would be in touch after they had investigated!!

The next thing I know I receive a letter to say they have done a full reassessment and following receipt of my Rheumatologists report which they had only just received they were only awarding me Standard Mobility and no Care at all!!!

I asked my MP to contact them to ask them to reconsider and he did and they still said no and that I had to take it to tribunal. After speaking to CAB they gave me some advice for filling in the forms so I did and now I am awaiting the tribunal!

The thing is I had a similar thing when I applied for DLA around 4 years ago they turned me down flat and at tribunal they basically humiliated me (I was alone) which sent me into flare and I was in pain for days. I don't know what else I can do. I am scared of being humiliated again. In fact I think I read a story where this happened to someone else and when they went to tribunal the second time they said they should have been getting the award from the first time they applied, so it was all backdated!! (I can dream can't I??)

Any advice would be most appreciated. We had put care and help into place when I first started receiving PIP but when they took it off me after only a couple of months we have had to stop all of that as we cannot now afford it :-(

One final thing they are saying that because I still drive (only to get kids to school and apointments, (because I HAVE to) that means my cognitive function is not affected??!!! how do I explain that this is not the case? Just because I may be fine to drive at one point in the day doesn't mean I am not laid up on the sofa all drugged up for the rest of it! (You know what i mean). Thanks.