World According to Lupus

Looking for new Lupies for mutual support and understanding!

Hi there, 

I'm Suzy, I'm 23 and I've had Lupus for 12 years, I was diagnosed when I was 11 and was in the last stage of kidney failure. I was diagnosed with CNS Lupus this year after years of symptoms. I also have Fibromyalgia, an underactive thyroid and a few other things. I'm having a massive flare at the moment and will be starting methotrexate next week after trying and failing with mycophenalate. I know it can be quite lonely sometimes dealing with the fatigue and pain and it would be lovely to chat to other people who understand! Please feel free to send me a message, I'd love to hear from you 

Suzy x

2 Replies

I'm down


Hi Sara. Sorry for the late reply, I haven't been checking my emails recently. Are you feeling down? Your message wasn't too specific, but please reply here or send me a private message if you'd like to talk.