Education Before Participation: What kind of preparation should a potential participant make?

What kind of preparation should a potential participant make for the meeting with the research coordinator or doctor?

- Plan ahead and write down possible questions to ask.

- Ask a friend or relative to come along for support and to hear the responses to the questions.

- Bring a notebook or tape recorder to remember the discussion.

If you've participated in a clinical trial before what advice would you give to someone new to the process?

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3 Replies

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  • Great advice! At our organization we occasionally send informed consent forms to patients that understand the research process and I always recommend they write down any questions they have while reading the form. Deciding whether or not to participate in a trial is a very important decision and every patient should critically evaluate the potential benefits, risks and other available options before enrolling in a study.

  • I highly recommend bringing a friend or family member to the appointment(s). It is so helpful to have another set of ears to listen to all of the details and pick up information that you may miss.

  • When preparing for an initial clinical research appointment, bring along all of your medications (prescription and non prescription) so that the research clinicians know exactly what medication you take and for what reason you take them. This is important information to ensure the research study, under consideration, is appropriate for you.

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