Positive stuff !: I just wanted to post this... - Tinnitus UK

Tinnitus UK

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Positive stuff !

Allgie profile image
17 Replies

I just wanted to post this image, this is me DJing on Saturday something I thought would never never happen again. I had ear plugs in and the sound in the booth low (also open air which helps too).

A few months ago this was unimaginable to me, a total impossibility - I thought my life was over.

Things can get better, I’m not in anyway “cured” I have loud T 24/7 - but my mind doesn’t let it upset me anymore, I’m hopeful to be back on the Radio In the near future.

I’ll never be able to play big venues or sound systems again but I don’t care - just being back to the music in any form is good enough for me - I’ll always wear plugs if I’m not in control of the volume or keep it low if I am (which in Radio is the case)

For people starting out on their journey, it might feel impossible, you might have dark thoughts, you may feel your life is over but there is hope, you can learn to live with it and get back to the things you love.

❤️🎤🎧🔊

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Allgie profile image
Allgie
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17 Replies
Happyrosie profile image
Happyrosie

Allgie I’m so happy for you! I remember your first post, how much pleasure music had given you in the past and you then thought your happy life was over.You’re giving hope to others - thank you so much!

doglover1973 profile image
doglover1973

Nice work Allgie! Great to see you enjoying yourself. Proof that habituation can and does start to work it's magic - even after several months 😎

rabbits65 profile image
rabbits65

Yes I do remember you posting before .. very well done you and thank you for posting this is very good news and positive inspiration for all of us . Carry on , Carry on !!!

Allgie profile image
Allgie

Just want people to know it’s not all doom and gloom, my T is still loud and annoying but I’m enjoying my life again and there really is hope - not for a cure as such but of the minds acceptance. Stop fighting it, tackle the way it makes you feel (in which ever way you choose) and it can fade into the background whilst you spend your time having more enjoyable thoughts and experiences.

doglover1973 profile image
doglover1973 in reply to Allgie

Spot on Allgie. I wouldn't have believed this a year ago but it's true. The T won't change - unless you're one of the lucky few - but the way you react to it can transform your quality of life. You just have to keep believing everything will be OK.

EmilyD-BTA profile image
EmilyD-BTAModerator

Allgie , this is amazing! Thank you so much for sharing!

Yogachamp profile image
Yogachamp

Thank you. AllgieThese are the posts we need , I agree completely you have to let the brain know you are not worried about the noise & the brain will put stop putting it on high alert . I am only 3 months in & yesterday was probably the first day I got through without it at least once in the day putting me in panic mode . I find going for long walks & reading . I think because I did my utmost to ignore it all day when I took my hearing aids out last night & went to bed it was really loud almost like it was saying to me I’m still here but I did some deep breathing & thankfully fell asleep . I am facing recent cancer diagnosis too & waiting for treatment so my body has a lot to cope with but the Tinnitus to me is the hardest battle I have ever faced in my life . I plan to start CBT soon as I think this will be the route for me. I am so grateful for this forum as it has helped me get through my darkest days . Good luck with your DJ ing I am so happy for you & it helps to know there is light at the end of this dark dark tunnel. 😁

Lulu_Lollipop profile image
Lulu_Lollipop

So good, Allgie :D I'm very glad to see this. Tinnitus is one of my issues, it was the investigation of that which led to the discovery of my very large brain aneurysm and major surgery for it. In no way related to the tinnitus, I hasten to add. I still have that. This is a very musical household - son's a musician and so is my fiancé and my younger son loves music as much as the rest of us - it helps me hugely. Silence is a rarity in this house. I say silence, but I never have that with the tinnitus.

Keep up the good work :D

Allgie profile image
Allgie

Music ❤️

This is exactly how I feel about music, I have it framed in my studio
Matt489 profile image
Matt489

Hi mate.

Great to see.

You owned it, gripped it, smashed it.

1966366 profile image
1966366

Excellent to hear! All the best for the future

Blonde600 profile image
Blonde600

So glad to hear this and happy for you, music has always been a huge part of my life and when I had T, thought what do I do now? thanks for this, gives a little more confidence more confidence. Thoughts are always with you all xx.

Jdaniel123 profile image
Jdaniel123

man, this is one of the best posts i have ever read. i think that we all see so much negative about T that we get bogged down in it. thanks for sharing.

Allgie profile image
Allgie in reply to Jdaniel123

Agreed, you don’t see many positive posts because people who are getting on with things aren’t posting so it’s all Negative.

I know what it’s like and what it does to you - I’m not cured but I’m doing ok and I want to support people who are not doing Ok, there’s hope that things can and will get better.

elsieadams profile image
elsieadams

I am a musician [pianist and organist] and have been struggling for the last seven years. Some days not so bad and other days really loud and high pitch. My love of music does help a lot. I find that listening to music is a great help and is very relaxing. The pitch levels also go down to almost zero when I go to the country and walk along trails listening to the sounds of nature. This unfortunately something we all have to live with and the more ways we can find to relieve the stress of T the better our lives will be. Take charge and thanks to all who share their experiences.

RONf profile image
RONf

Brilliant news Allgie. As a dj I too successfully went back (after six months out) - being so much more careful & aware of volume levels. Still have T - but I have habituated and currently am in a safe space in my mindset. Good luck and thanks for posting.

Keoni profile image
Keoni

Hi, Allgie,

I'm really pleased for you. Thanks for sharing. Long may it continue for you.

Respectfully submitted,

Keoni

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