Frustrating

[Tilly9]

I've had Tinnitus for 10 months, which I'm slowly getting used to. Other people don't understand how frustrating T is,as they can't hear the humming sound ( unless they have T themselves) Does any body have dry itchy ears ? I sleep with ear buds which maybe the cause. Or is this part of T ?

[Chilledartist]

Not herd of this, maybe put a bit of olive oil around them, morning and night

Good luck

[Whine]

Why not locate your nearest Tinnitus Support Group, or visit the British Tinnitus Association website?

There is quite good information available.

[Bellarose21]

Your so spot on people just don’t get it. It’s so frustrating. I use an MP3 with white noise playing 24/7 and I got the dry ears. It was sore doc said it was the earbuds and advised to put some cream on bugs. Took a good few weeks to get rid of all the dry crust and the pain. I couldn’t put my ears plugs right in for ages. So annoying.

[Tilly9 in reply to Bellarose21]

That's a good idea as I don't need an ear infection as well as T.

[Bellarose21]

Thank you for your reply. I was always scared to comment anything about tinnitus on Twitter and now with this new support to help each other is a big relief. I have hyperacusis to.

[Tilly9 in reply to Bellarose21]

Hi Bellarose 21 , This is is a lovely group for people with tinnitus with lots of good advice. My tinnitus is annoying and I still ask my Husband `what can you hear`especially at night . My ear buds don't block out the tinnitus, just him snoring! Making it easier to sleep.

[Bellarose21]

Hi Tilly My husband snores as well and I can’t sleep in the same room as him. I sleep in a wee room with a single bed. I have a daughter who lives with me. She moving into her house soon. She feeds my tinnitus with frustration. Tinnitus is so bad at night. It must take you ages as well to get some sleep. And then waking up exhausted. For mths I couldn’t even get ready. Trying to keep tinnitus low is a job itself. Iv not been able to work. Every day noises are bad. I have hyperacusis. Another thing no one understands and all the things that come with tinnitus. Depression, anxiety, stress , fear. I hide my depression from every one. Every day is a battle. Tully how is your days living with tinnitus. Thank you again for replying.

[Tilly9 in reply to Bellarose21]

Your home life can't be easy with all the stress and lack of sleep, which is difficult as you struggle to do everyday things. Antidepressants helped me deal with the loudness of T as when it first began I didn't want to go to bed as that's all I could hear. Try deep Yoga breathing as this helps me to relax at night. During the day the t.v or radio are on so I don't sit in silence or concentrate on the sound.Try listening to something relaxing.

[Green68]

Don't use earplugs or earphones but do get itchy dry flaky skin inside my ears, it's a form of eczema, I use warm olive oil or a very light application of E45 cream to relieve it. As for those who have never experienced tinnitus it's the same lack of understanding shown for all hidden disabilities. What people fail to realize is that it can strike anyone at any time. My advise is don't try to explain and just ignore or better still cut out the unsympathetic and get on with life.

[Tilly9 in reply to Green68]

Thanks for the advice. I've given up trying to explain how stressful and annoying T. can be. When it first started I stopped going out, and let it control me. Once I understand I wasn't going crazy I've started to get my life back.

[Bellarose21]

Hi Tilly9 & Green68. I no about the explaining. 3 and a half years of trying to explain I had to give up because I was getting so angry and getting myself upset when no one was about. So true people don’t see what it’s like to have a hidden disability. Today I’ve not even got ready because I got visitors when I was on this site watching Sean’s video. Family. Who all make different noises and all talk and I can’t keep up with the conversation because I can’t hear what they are all saying. They don’t realize that for us to hear it has to get through our loud noise before it actually registers in our brain. They just away and my ears screaming. I’m listening to white noise very low to try and get it calm. I was the same didn’t go out at first for 3mths even longer and when I went out it was only to the supermarket to get food. For 3 mths I was ill. I was waiting on MRI and results. I thought I was dying. I had never heard of tinnitus. I got so wrapped up in learning how to live with it and why could I no go out the door because I was scared and full of dread and fear. My family think if we all come to see me that will help and cheer me up and help me get out the door. 6 of them at a time all talking drinking tea , bags ruseling , heels walking across the floor, walking around while talking list is endless and they don’t see I’m sitting there just hoping they are leaving soon and how much a visit like that leaves me exhausted and ears screaming. I can’t even eat when there is noise. I just feel sick. I lost weight at the start. I was to exhausted to eat. When I get that we surge of energy I go out myself to get food shopping or what’s needed even then my ears scream when I get back in but atleast im peaceful and stress free.