Neuromod - Four week update.

[ade-the-pade]

Folks. It has now been four weeks with the device. I have used it every day. Most days it has been the 30minutes. They suggest 30 to 60mins so I am aware that I am on the minimum level. I have used it for the 60mins about 3 times a week.

In short, no reduction in noise or benefit at this time.

I have tinnitus and hyperacusis in my left ear and just T in the right.

I mentioned before that I felt that the H in the left was getting more sensitive. I am now very sure that this is the case. This has generated some headaches. This may just be the fact that it has become very intrusive and causing tension. This has caused me a bit of upset but I feel that I will plod on with the use.

The T in the right ear seems to be about the same level. Certainly no reduction in level of noise or intrusiveness detected.

To be honest, I am a little bit disappointed. Underneath I had hoped that by four weeks that I may have felt some benefit. Not the case I'm afraid.

The company did a TLC call to ask how things are going. They suggested that I try and get the 60mins every day and reminded me that initial noise increase for others had been reported.

As mentioned, I will use as directed. Having to deal with an increase in noise is a pain. No guarantees with this product but will continue. Please feel free to ask any questions.

Kind regards

. Wishing you all peace and quiet.

[Michael8272]

Hi, thanks for the update, hopefully your noise will reduce shortly,did they say what length of time most people started to see reduced noise?

[ade-the-pade in reply to Michael8272]

Hello Michael. They were very vague with the area of time. They could not give any timescales stating that everyone was different. I am sure that my brain wiring is somewhat resistant to change as I approach 60.

[Michael8272 in reply to ade-the-pade]

Hi ade, how long do you have tinnitus for?is it very loud all the time?

[ade-the-pade in reply to Michael8272]

Hello Michael

I have had it for four years. Came out of nowhere. It is pretty much 24/7. as you know, it is hard to describe "loudness". I can hear it when I am walking down a busy street, hear it when driving a car and it is louder than the Tv when my family are watching it.

The T in the left ear mixes with the Hyperacusis. Sounds louds and distorted.

How is yours?

Ade

[Michael8272 in reply to ade-the-pade]

Hi ade,sorry for being nosey with the questions,just the therapist I used to go to was telling me that the neuromod dos'nt have great results for moderate to high tinnitus sufferers,I'm from Ireland.she said the trial participants were selected carefully but none were in the high category,mines is so up and down.its usually low in morning but by evening I can hear it over anything.sometimes I get these really loud blasts that last from 30seconds to a hour.was yours always loud?

[ade-the-pade in reply to Michael8272]

Mine was always loud. It was like a switch from zero to very loud. No build up, illness or obvious cause.

Will keep going on the neurmod.

regards.

Ade

[Michael8272 in reply to ade-the-pade]

Hi, thanks for the update and hopefully it does work 🙏

[Scarlett2013]

Hello ade, I know it’s a little disappointing but I would stick with it if I were you. Hopefully you will get some benefit soon,

I can appreciate how you feel, as much as I’m. Holding myself up for failure, I know I will still feel disappointed if it doesn’t have an effect.

[ade-the-pade in reply to Scarlett2013]

Thank you. I do get fed up as having "T" is a battle. Some days you win, some you don't.

At least Neuromod gives us all some hope. I read the article on BTA and research. This indeed will be a difficult nut to crack.

Hope all goes well for you in Ireland. Did the airport hopper work for you?

Ade

[Scarlett2013 in reply to ade-the-pade]

Was a bit confusing as both buses seem to have the same number. Found it a bit confusing trying to find where it actually stopped to get on it, and it was running 35 mins late, but asked the driver to put us off at the hotel, and from there was ok. Went to the shopping centre for lunch

Got to the hospital early. And was lucky enough to be seen early. Picked the bus up at the hotel with no problems really, and made it back to the airport in plenty of time. Hopefully will be easier next time as I know where I’m going. Thanks for your help though, it was invaluable.i found neuromod very helpful, and not money orientated at all. They seemed to really want to help.

[ade-the-pade in reply to Scarlett2013]

It will be trip number three for me. I had forgotten how friendly and talkative the Irish are. I did tell tje bus driver that it was very confusing but he just laughed. He said that he knew the route and it didn't confuse him at all.

You can get a bus from the hospital to the centre of Dublin if you wanted to make a day of it. Let me know and i tell you the logistics. i did that the first time.

I hope that the device works for you.

kind regards

Ade

[Scarlett2013 in reply to ade-the-pade]

Thankyou, I keep telling myself not to expect any improvements, but I’m sure I will feel disappointed if it doesn’t improve it at all . Fingers crossed for everyone who is going to try it. I’ve booked an earlier flight back next time so will pass on the trip to the city centre, but thankyou for being so helpful. I truly hope you start to get some improvement soon.

[Lioned]

Thanks for the update

[ade-the-pade in reply to Lioned]

Very welcome

[Ingrid-p]

Hi, 4 weeks is not that long. The brain is a very complex organ and will take some time to adjust. I’m really hoping that you can get some relief from the Neuromod device.

I’m ok with my t at the moment. It’s loud, I can hear it above everything when I haven’t got my hearing aids in. When I’m wearing my aids they definitely take the edge off the loudness.

Take care and keep us posted.

Ingrid xx

[ade-the-pade in reply to Ingrid-p]

Thank you. Sound advice and I will continue.

Kind regards.

Ade

[Ingrid-p in reply to ade-the-pade]

I really hope it works for you. Really hate t sometimes, but as I said I’m ok at the moment. Just wish there was a magic pill to stop everyone suffering.

Take care

Ingrid xx

[soul64]

Keep at it can't be easy for you really hope it works.

[TinnitusUKPat Partner]

Hi Ade - your updates are great and give us a sense of what it's like to live with the device day to day. I hope your T improves - it may just be a process which happens incrementally. Best of luck and thanks for keeping us in the loop.

[KingsHea]

Thanks so much for your update. You may have seen my post at the time you went for fitment I went for assessment and they suggested I try white noise first for a few months. I followed the advice and got a hearing aid with white noise which I wear all the time. I have single sided T. and the noise treatment has increased the volume of the T. so far. Perhaps my acceptance of it has also increased. I find myself more sensitive to noise too....I have no idea if this is Hyperacuesis or not. Please do keep us updated and I am sure we all hope you turn a corner soon. Best Wishes, Mark

[ade-the-pade in reply to KingsHea]

Hello Mark. I have a white and Brown noise hearing aid that was issued by the Nhs. it is very helpful and i wear it in the evenings. it allows me to watch the Tv.There is no hearing boost set, just the noise.

It is more of an aid to manage my T rather than a cure. It would be good to see how it works for you.

regards

Ade

[Maryanne99]

Thanks for the updates hope you turn the corner and things improve

[Ruud1boy]

Any good news yet Ade? I'm 6wks in to the treatment, as I think you are by now? I've not seen any improvement as yet, but am still hopeful. I was over in Dublin yesterday for the recalibration of the device with the adjusted settings. Fingers crossed.

[ade-the-pade]

Hello Ruudboy. Sorry to hear that things have not improved. Very similar story here. My hyperacusis in the left ear has become more sensitive.

I am back in Dublin on Friday for the first review. Not sure what happens then. I'll do a full review over the weekend to keep every one update.

All the best.

Ade

[Blonde600]

Hi Ade, have they mentioned what the success rates are with this device? thanks for your diary posting hope you have a positive result soon.

[ade-the-pade in reply to Blonde600]

Hello Blonde600. They claim that 60% of people get some benefit but state thst it is hard to measure exactly how much. Improvement is very subjective and will vary greatly from person to person. I have just had my six week review so will do a full report over the weekend.

kind regards

Ade

[Blonde600 in reply to ade-the-pade]

Ok thankyou. Will look for ward to your post.

[djv1985]

I’ve seen very few people online talk about any real difference or results from using the neuromod which is starting to lead me to thinking it might just be another false hope for the Tinny Army.

I’ve stepped back from hoping there will be some great cure or that mine will ever disappear not out of depression or even lack of hope simple because constantly hoping it’ll go or be cured was making habituation so hard that I was struggling but since moving away from the hope I’m doing better.

[ade-the-pade]

Hello. I am hopeful thst at some day that there will be a cure or something that lessens the symtoms. I am still open minded thst this device works for some people. But then again, banging your head against the wall will alsowork for some people. I honestly believe that this company has had some success but this is a difficult nut to crack. I'll give it a good go.

Fuller feedback to follow over the weekend.

Regards

Ade