Tinnitus 1st Birthday- what I’ve learnt - Tinnitus UK

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Tinnitus 1st Birthday- what I’ve learnt

LuverlyLucie profile image
6 Replies

Hello lovely people. I’ve just realised it’s my tinnitus 1st Birthday. It’s been a long time since I posted anything and you were all very helpful when I first got tinnitus. At that time I was scared and wondered how I’d get through this.

In truth I’ve some ups and downs. Mentally I have accepted that tinnitus is part of me. I do have good days and bad days and on a bad day knowing that there will be good days really helps.

Recently I was going through a very emotional time unrelated to tinnitus. I forgot about my condition and played some music quite loud. Unfortunately that seems to have made it more noticeable. So there are quite a few down days at the moment but I’m doing my best to get on with things and I do believe that just as in the beginning it was difficult to cope with and I found a way to deal with it I will do again. My life is often so busy anyway and I think in a way that helps give me something to focus on and get distracted by.

I really hope this helps.

Luverly Luciex

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6 Replies
Dave-G profile image
Dave-G

Hi Luverly Lucy

Well done for achieving your 1st birthday, I think if you can come to accept T in all its forms it really does help with the habituation process. it's difficult to accept something you didn't need or want in the first place but you soon adapt in ways of coping with this unwanted intrusion into your once quiet world.

18 years down the line I still have days when I wish I could turn the noise off, but life is there to be lived despite the constant racket I have in my ears, like you I have come to terms with T and its a part of me now and that I cant change.

If there is one thing I've learnt over the years that is to have a positive mindset, glass half full and not glass half empty attitude has been the way, difficult I know to reach when all you want is peace and quiet in your life, good days will always follow bad days you can count on that. Anyway well done you should be proud of yourself.

Dave.

LuverlyLucie profile image
LuverlyLucie in reply toDave-G

Thanks Dave. Wise and kind words. I actually stopped using the forum because, although early on it was a true lifesaver, and as I started as I started to learn to habituate I did try to help others, eventually I found it just focused on my tinnitus when the best thing was to concentrate on living. LLx

Ingrid-p profile image
Ingrid-p in reply toLuverlyLucie

I think that’s very true, the forum is excellent at the start, but as you habituate it’s best to stay away. That advice was from my hearing therapist. Constantly dwelling on what’s happening to others will bring our t to the surface and that’s not good. As people habituate you do see them less and less on here.

Take care, Ingrid

Ruud1boy profile image
Ruud1boy in reply toIngrid-p

I'd agree with this sentiment - this time last year, I seemed to do little else but search online for 'tinnitus crisis' and I was on this forum day & night, but since the turn of the year, I've found myself coming on to the forum less & less as my T has been getting marginally less difficult to cope with.

I think this is important for people at the start of their journey with intrusive, troublesome tinnitus - people told me it gets 'easier' and I didn't believe them, but it does happen.

Ingrid-p profile image
Ingrid-p in reply toRuud1boy

Habituation is a strange thing. At first the t is overwhelming, but little by little it seems to get easier. Pleased for you xx

LuverlyLucie profile image
LuverlyLucie in reply toRuud1boy

Mines been loud lately but I know it changes and I know I’ll have good days again. Some how my mind just won’t let it get the better of me. LLx

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