Cannot cope ..

[Barbara-C]

I would like to share my feelings has I am so down at the moment. I started six months ago ( I know this isn't has long as most ) with high pitched pulsatile tinnitus in left ear which Gp has put down to arthritis of my neck causing a blood vessel to be irritated. ENT said same and because mri was clear there was nothing else could be done. I get hopeful because sometimes it is bearable and then a few hours later is through the roof. I had physio but didn't help noise. The reason I am upset is that i now have a high whistle in left ear as well and high pitched squeeling in right ear. I am taking amitrip which isn't helping now . I cannot see any end to this horrible thing. Sorry for going on but you are the only people that understand..

[28dinky]

Hi sorry to hear you are having a tough time, I've had mine since April high pitch in right ear, good days an bad. Tough at mo as have pressure in both ears. Keeping busy an focused on other things help me, tv or music, I have had a lot of help from people through a chime clinic maybe you could get a referral. I have a sound machine for the night if I have trouble sleeping. Good luck.

[Barbara-C in reply to 28dinky]

Thank you for reply take care.

[Curlew]

Hello validnt, I am sorry to hear you are struggling at the moment. I know this won't be of much comfort to you, but you will find it easier to live with over a period of time. I have had loud constant T now for 9 months and was desperate in the beginning. I decided to try and just get on with as normal a life as possible. My mantra to myself was 'fake it till you make it'. I read all the advice etc from others and really didn't believe half of what they said, it I can honestly say now that they were right. It's very hard I know, but if you find something that you enjoy doing and that helps you relax a little you will find this is a start.

I use amitryptyline very occasionally if I've had a couple of bad days other than that I use herbal nytol or herbal sleep teas before bed and they do seem to help.

Tinnitus is a horrible condition to have but eventually we do learn to live with it it just takes time and finding things that keep us busy and occupied.

I hope you manage to start to feel a little more positive soon. Take care of yourself and spoil yourself a bit 😊.

Best wishes, C

[Barbara-C in reply to Curlew]

Thank you so much I do try but when it settles down and then comes back much worse I lose hope. Thank you again .

[Lynne-H]

Hi Valient.

I too have pulsatile tinnitus (for three and a half years now). Mine is due to hearing loss after having a virus. I was told that because the hearing nerve runs very close to the carotid artery that I was picking up the noise of my heart and circulation.

I too was pretty desperate at the beginning - for the first six months I was in a very bad place, then I got some hearing aids, had some counselling, joined the BTA and started attending a support group which I still go to now. It was there that I learned about a beta blocker called propranolol which someone else was taking for panic attacks. I realised then that the more stressed (and I was very stressed) I got, the faster my heart would beat so making the noise even louder.

I saw my GP and he prescribed propranolol 40mgs twice a day so only quite a low dose. This calmed me down and reduced my heart rate and so reduced the volume of my tinnitus.

I know this might not be suitable for everyone but it might be worth discussing it with your GP.

The combination of all these thing and trying to stay positive got me back on track and today I can honestly say that my tinnitus is not the most important thing in my life.

Hope this helps. I know it doesn`t seem like it now but things will get better for you.

Lynne

[Barbara-C in reply to Lynne-H]

Thank you you have been a great help. I was coping with the pulsating and was hopeful that the blood vessel would free itself from my neck. But when tinnitus started in both ears I lost hope. Thank you again this site has been a great comfort .

[ade-the-pade]

My thoughts are with you. I hope that you find some peace. I have had it for two years without a break. I get low data when the noise gets very bad.

Like others have said, it does get easier. I wish you well and hope you find some escape.

Ade

[Barbara-C in reply to ade-the-pade]

Thank you take care

[drumcraw]

dear valiant or should it be valiant! your T. sounds horrendous and why is it e.n.t .ALWAYS say for everyone with T. nothing can be done REGARDLESS of type of T. I thought mine ws bad having a whistling kettle in my ears all the time for 5 years now and its as bad today as was when I first got it just appeared over night, but yours must be driving you crazy it will improve but to what degree I don't know.im told wn your stressed it gets worse but theres times im really stressed and it goes quiet?????????? what about trying acupuncture?????????? it may help with blood flw if E.N.T. are right about your arthritis causing it???????? worth a shot even though a bit expensive I have to take tabs to sleep been to psychologist not much luck there and my doc is u/s/ too just try and hang in there I now its hard, I was a fulltime musician before I got T. that part of my life has all but gone as seldom play now and they tell you to keep doing things you like well I like playing but might make T,worse so???????????????? tale care you will always get friendly advice on here and help take care craw.

[Barbara-C]

Thank you I appreciate your answer . I was thinking of acupuncture so may give it a try . Take care .

[whywouldi]

Hi Valient, I am sorry you are feeling so down,all T sufferers go through this from time to time,the best thing to help T ihave found are NHS hearing aids even if your hearing is pretty normal when talking to people the accoustics of wearing two hearing aids reduce the volume of T dramatically they are now prescribed in Scotland automatically to T sufferers,there is also a drug on the market called SERC-16 tablets ,I take them for BPPV which is a type of menieres syndrome,although not advertised as tinnitus treatment it has had some great results ,prescription only ,as are the hearing aids so you will need a good doctor to refer you for the hearing aids ,and to be willing to prescribe the SERC-16 ,I know i will not be alone in wishing you well ,everybody on this sitewill have you in there thoughts ,god bless and good luck. Jeff

[Barbara-C]

Thank you so much I will look into what you said .god bless you to .

[jbradford42]

Hi Hun please don’t feel down I know it’s really hard but remember you are not alone. even though I’ve hat mild T for years about five weeks ago I woke up one morning and I could not believe it my hiss had turned into a scream a loud high pitch whistle then all the panic attack’s and everything else that go’s with it set in someone told me that it takes the brain a few weeks or even a month or so to figure out how to deal with this and that’s exactly was has happened to me don’t get me wrong it still bugs me to hell every day and never stops and yes sometimes i think can I really deal with this! And then well yes I can because it seems to get easier with time not better but easier I have got the doc and my mri scan and all the rest of things that go’s with this horrible thing I have even hat acupuncture and this does help but at forty quid a go it got to much to pay as it’s an on going thing so now I just put it to one side and try to get on with my life so don’t get yourself down yes my dear it is so hard but push it to one side and live your life the best you can believe me you will get used to it. And one day someone somewhere will come up with answers good luck Hun.

[Barbara-C in reply to jbradford42]

Thank you so much for your lovely words. I know stressing about it is making it worse but it's hard not to sometimes. You take care and thank you again .

[Rob_M]

Hello

just quickly about myself, I started with T in December 2016 and been constant every since

I've read a lot of things some true some not and some were just plain i want to try and make money from you

Yes i have days where T does bother me and other days it don't but i know its there

so what i did and im very much still in the process of retraining my brain

Think to something you did in the past, be it in the morning a week ago or even last year

I bet when you think of whatever it is the T wasn't there you might have trouble because you can hear it now but really put yourself in the past, this is what I do and I find it really helps

Another tip, I visualize a volume control button in my head and try turning the sound down

As for feeling down, these are your thoughts and your thoughts alone and you have the ability within you to change this. don't become a slave to T, i know its hard to be hopeful, i refuse point blank to allow this condition to affect my mental health

[Barbara-C in reply to Rob_M]

Thankyou take care.