WELCOME

[drumcraw]

hi, welcome to the forum. how long you had T?

[Dave-G]

not counting, I think 17 years

[drumcraw in reply to Dave-G]

thats a shame ive had it 4 years and im still going crazy with it!

[Hidden]

5 years.

[Hidden]

That's a shame ? 17 years is worth more than that's a shame

[Dave-G in reply to Hidden]

Gary, I'm past caring I have a life to lead

[Angela-H in reply to Hidden]

Hi Gary, Dave and Glynis in particular were the forum members who made me realise that you can still have a life with T. And it is true! Ps my builder bloke partner has had it for 30+ years because he didn't wear ear defenders. Although we've been together for 10 years he didn't tell me until I got my T! And , yes, sometimes it is too loud for him. It does settle over time Love, Angela xx

[Hidden]

12-13 years due to Menieres....lots of love glynis

Still smiling 😊

[Angela-H]

Interesting question to ask ~ 2 years, 2 months. Angela xx

[SteveFeldo]

5-6 months

[Xene]

30 years

[Lynne-H]

Two and a half years - come a long way and coping !!

[zaxdad]

About 17 years. It became severe 3 years ago.

[ejm1]

3 years on and off !!

[Mrshanson]

10 months. Caused by otosclerosis induced hearing loss-Bev x

[retired66]

Hi, I am from Canada. Funny I stumbled onto this forum. I have had T for 3 years. I am usually positive and know this is the only way to have control but today is bad I am crying writing this. My T is much better. It was torture when I first got it. I woke up in the middle of the night with this high pitched horrific noise in both ears. Intolerable noise. My story is like the rest of you. Anti-depressants ( terrible depression- 6 months) and then got high blood pressure due to the anxiety . The noise now sounds like a whistle and I have the noise in both ears and 2 different sounds. Lucky me. My right ear is the one that is the loudest now. I am so much better than I was but the sound never goes away .I just get so fed up some days. It is mental torture. I just needed to vent . Nobody can understand what we go through . Namaste xx

[SteveFeldo in reply to retired66]

Hi, have you ever tried white noise maskers? They pipe a gentle neutral hissssss into your ears, the volume can be altered according to severity, although they aren't meant to drown out T, just give your brain a distraction from it. The NHS provide them in the U.K., they are great and a lifesaver on bad days, although I tend to try hard to limit my use until I have a spike. Good luck. Steve

[retired66 in reply to SteveFeldo]

Hi tks for the reply. I used acoustic therapy for 6 mo. They match the sound of your T with background music and u listen to this 3x a day. It really helped me. Now I do not need this cause it has become lower and would aggravate the T. But u know it is always there and sometimes I forget . U have to keep busy and distracted. I just wish I could hear the SOUNDS OF SILENCE (simon and garfunckel) Maybe 1 day. I actually talk to my brain in the morn and meditate to tell it and send positive energy to heal itself. I visualize myself without T. I have to believe this will work NAMASTE

[drumcraw in reply to retired66]

hi retired you soud like me!!!!!!!!!!!! same type of T DREADFULL JUST AWHISTLE IN MY RIGHT EAR NOW IN BOTH I PLAY DRUMS WELL USED TO THATS BEEN CUT BACK THANKS TO t and your so right NOBODY UNDERSTANDS,EVEN FAMILY THATS BECAUSE THEY CANT SEE ANYTHING WRONG WITH youi compare it to that famous picture by renoir or matisse called"THE SCREAM" AS THATS HOW I FEEL WHEN IT GETS REALLY LOUD WHICH IS MOST DAYS!!!!!!!!!!!!! TAKE CARE HANG IN THERE

[Angela-H in reply to drumcraw]

Hi Crawford, that silent scream picture is the one I saw in my mind when I first had the T. I think it should be used by BTA to portray how we sufferers feel! Angela xx

[drumcraw in reply to Angela-H]

thats agreat idea angela that pic says it all i wonder if it was painted with T in mind .maybe on of his models had it or conveyed the idea to him ?

[Angela-H in reply to drumcraw]

Hi Crawford, I don't know about why that picture was painted. I believe that Vincent Van Gogh had T and that is why he cut off his ear. (I heard about that on Radio4). Angela xx

[drumcraw in reply to Angela-H]

hi angela. yes i thought that too!!!!!!!!!!!

[retired66 in reply to drumcraw]

Hi tks for the reply. I have never known anyone who has had T. In all my years and being a nurse never heard of this. But here it is and it does exist. My son plays drums and I make sure he protects his ears but they do not know. Do they!!!!!!!!! Never was exposed to loud sounds. I have minimal hearing loss like 10% but u know I am 66 so whatever. I wish I could have had someone to talk to when I first got T. I thought I was going to go crazy. It was intolerable . Tks.

[Hidden]

3 months

[Hidden]

I love the Secret Scream picture and bet it was done with tinnitus in mind.....Lots of love glynis