Experiences with

Nedocromil

I keep looking at the other mast cell stabilisers such as Sodium Cromoglicate and Nedocromil Sodium inhalers (which I believe can have brand names of Intal and Tilade).

Since the end of august we are back struggling despite his usual meds of seretide 125 2 puffs twice a day, nedocromil, flixonase and salbutamol. He had a course of steroids about 5 weeks ago and is now on another after an admission last week. We are back frequently using ventolin.

Hi My son Thomas is on seretide 125, nedocromil, flixonase and ventolin. Since the weather started turning he already has had 1 course of steroids and is now on his first admission of this autumn/winter season. Last year he had quite a few admissions.

He is still taking his seretide, Nedocromil, flixonase and montelukast and doesn't seem overly wheezy which is when I would usually get him checked over. The cough seems to be something new he hardly ever used to cough until Christmas so feel unsure what I should be doing. Thanks Jenny

Its so frustrating he only 2yrs 10mths and is on Seretide 125, Nedocromil, flixonase, Montelukast and Ventolin. Yet still he seems to be getting wheezy. You would think with all that medication his breathing would be more under control.

They are the Seretide, Flixonase and the Nedocromil. So waiting to hear what is going to happen about getting them now they are going to contact the consultant and then let me know.

Hi Just wondering if anyone elses children are on either of these two medications? Thanks Jenny

My cons has just added in Tilae / Nedocromil Inhaler, 2 puffs, 4 times a day. I took it for the first time this morning but it is such a strong puff of medicine that firstly it made me choke, then secondly, it takes foul and made me gag! Has anyone else has similar issues? Thanks Hev x