Experiences with
Berinert

2 public posts

Anti c1q UV with Angioedema

I've just received my diagnosis recently and have been told that my Angioedema attacks need to be treated with IV hydrocortisone and c1 inhibitor (berinert). Does anyone else use bradykinin or c1 inhibitor as part of their acute emergency treatment? Thanks Jane

I've just received my diagnosis recently and have been told that my Angioedema attacks need to be treated with IV hydrocortisone and c1 inhibitor (berinert). Does anyone else use bradykinin or c1 inhibitor as part of their acute emergency treatment? Thanks Jane

in Vasculitis UK

8 years ago

Any HUVS suffers with experience of being treated with C1 inhibitor - e.g. Cetor, Berinert Ruconest?

I have suffered from HUVS for over 5 years with attacks generally occurring every 3 months - generally severe or very severe. I have now been treated for about two years with Cetor and subsequently Ruconest. Attack interval is about 8 months and attacks have been extremely mild. Treatment is not in the

I have suffered from HUVS for over 5 years with attacks generally occurring every 3 months - generally severe or very severe. I have now been treated for about two years with Cetor and subsequently Ruconest. Attack interval is about 8 months and attacks have been extremely mild. Treatment is not in the

in Vasculitis UK

12 years ago

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