What is your reaction to people who s... - St Thomas Lupus T...
What is your reaction to people who say 'but you don't look sick'?
Please select one:
it is so frustrating that you need to explain yourself because people think you look so well.its such a cruel disease as it is,let alone having people think you are blagging.x
Yes very true - the only way is to keep educating people what lupus is.......
Is this a compliment ?
I suppose it could be in some people's minds. I am torn between whether I like the fact I don't look sick - so I don't have to admit to it if I don't want and then sometimes I wish I turned green or something, when I have a flare, to stop people thinking I'm being lazy...difficult one.....
I actually feel good hearing it, I'm fed up feeling awful, I don't want to showing too. But I do tell people that I'm ill despite appearance.
I work in an Oncology centre so luckily my colleagues have lots of experience of people looking well whilst being quite unwell. In saying this, I havent disclosed my lupus to many colleagues as I want to feel on an even par (this probably sounds a bit silly) and feel that if I am more open, I will allow myself to slow down more. I find as work becomes more difficult, I am having to share with more people.