PPH, OH, PD: I am not POTS. I have... - Unexplained Faint...

Unexplained Faints and Consciousness

1,277 members682 posts

PPH, OH, PD

aspergerian13 profile image
4 Replies

I am not POTS. I have severe postprandial hypotension, and orthostatic hypotension. I have fallen many times, three seriously: broken hip. Suggestions regarding midiodrine use would be appreciated.

Written by
aspergerian13 profile image
aspergerian13
To view profiles and participate in discussions please or .
4 Replies
aspergerian13 profile image
aspergerian13

Midodrine

Hi. I too have the post prandial hypotension, and it's getting worse for me when I'm under stress, I also have ortostatic intolerance and failed the tilt test, I'm not on any medication, but I'm starting to get nervous about dining out now as I've had episodes in restaurants and it's sooooooo embarrassing, does this thing ever go away or are we stuck with it, I hope you are doing well

Boeingbabe profile image
Boeingbabe in reply to

Abdominal binder, orthostatic stockings, cup of coffee before eating, and anti inflammatories help. Low carb meal essential. I'd change gp if I were you. Go to an endocrinologist, most God not au fair with o.i. and pph. Best of luck!

Boeingbabe profile image
Boeingbabe

Hi there, I was finally dx with o.i. and had suffered from frequent pph, it's awful. Now on midodrine 5 mg 3 times daily, helps alot but my scalp is so itchy and have noticed some thinning of hair. I couldn't operate without it. Still not back at work though. Still tired and no energy. Waiting on a tilt, cortisol test was ok he said though he took it at 12 noon, is this late for cortisol?

Not what you're looking for?

You may also like...

What is your condition

We at STARS are interested to hear why people have joined the STARS forum. Have you been diagnosed...

Syncope

I have some kind of syncope. Some days worse than others. Start to black out about a minute after...

Reflex anoxic seizures HELP!

Hi I was wondering if anyone could offer me some advice? I'm currently in hospital having some form...

Deperate newly diagnosed pots sufferer

Good evening I am new to the group recently diagnosed with pots after a 2 year battle. I have...

Any advice?

I have had a few faints in the past years. I am currently going through various tests but no...