My 16 year old had a Tilt Table test but never had an episode, since coming home she has had 3, she had 10 yesterday.

[Westie-love]

Can anyone help in what next step might be heart traces have been clear, but it is now normal for her to have several episodes in a day, she also has started getting a tingling sensation in her hands and face.

[SyncopeTrust-STARS]

Hi Kirsty

It is very upsetting for you as a mother to witness these episodes. I wonder if Kirsty has been upset by the tilt table test. Sometimes being traumatised by an event can trigger these episodes but it is stress and anxiety which are the triggers rather than physical. It is a very real condition and is referred to as psychogenic blackouts. This is only a suggestion to discuss with the doctor but if you would like the booklet email [e-mail]

You can also call me if you want to discuss anything.

[BooRadley]

It's not likely to be because she was emotionally "upset by the tilt table test." If she is prone to postural hypotension, as the test confirmed, the explanation is likely physical. If it was psychogenic, she would have experienced episodes prior to the Tilt Table Test, every time she experienced significant "stress and anxiety." The test puts a huge strain on an already compromised Autonomic Nervous System, so it may take her a few days/weeks to even out. Hope this helps!

[Westie-love]

She has now been refered to a specialist neurologist ,waiting for an appointment

[Diazimuls]

Hi Kirsty,

Ask your hospital Dr for a 24 HR ECG tape which monitors her heart rhythm continuously.

The ECG is a snapshot of the electrical function, whereas the 24 HR tape will monitor all the time.

There is a loop recorder (goes under the chest wall under local anaesthetic) which monitors the heart rate and continuous rhythm for weeks/months at a time. This will pick up any significant rhythm problems if there are any, during her episodes.

Keep a diary of symptoms, any triggers, the episode in terms of length of time it takes to recover etc etc. keep asking for tests like tilt table and the ones I've suggested.

Keep going until your child is fully assessed.

It's so hard getting the tests and support. It feels like forever but it will happen.

I'm on another aspect of this journey now that my son has his prescription for Midodrine.

Di x x

[Westie-love]

She had trace on for 3 days, with nothing showing before she had Tilt Table, she has now been diagnosed with disociative attacks, and is on medication to help with these attacks, biggest problem has been school as they struggle to deal with the frequency of her attacks xxx