Hello my name is Julie. I had a beautiful baby boy back in 2003 who was diagnosed with full Edwards syndrome after his birth. He died in my arms when he was 5 days old, and I miss him to this day. This is a hard path, and time doesn't heal the wounds - you learn to live and encompass it into you instead. Wishing you all well on your journeys, especially those who have children still alive, or those who have found out or are recently bereaved.
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