Baby Christian

Hello my name is Julie. I had a beautiful baby boy back in 2003 who was diagnosed with full Edwards syndrome after his birth. He died in my arms when he was 5 days old, and I miss him to this day. This is a hard path, and time doesn't heal the wounds - you learn to live and encompass it into you instead. Wishing you all well on your journeys, especially those who have children still alive, or those who have found out or are recently bereaved.

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  • I am sorry about your loss Julie. Thank you so much for sharing your story with this new community, I have no doubt your words will help others going through similar challenges. The community is just getting started, so please stay with us if you can...