Tesaro is looking for empowered patients to share their stories

[joann86]

Hi all,

I wanted to alert you about a new patient initiative being developed by TESARO. They are currently looking for patients being treated with Zejula (niraparib) to share their experience with other patients and healthcare professionals about what life on the drug is like. Caregivers of those taking Zejula are also welcome to participate.

Qualifications for the initiative are as follows:

1.) Patient prescribed ZEJULA according to its FDA approved indication

2.) Adult 18 years of age or older

3.) At least eight weeks on treatment

4.) Is articulate, comfortable, willing, and excited to share her experience

5.) Has high cognitive functioning (i.e., memory, concentration, reasoning and thinking, focus, etc.)

6.) Positive but realistic experience on how patient has integrated ZEJULA into everyday life

7.) Able to travel for a two-and-a-half-day live training which could involve airline travel

8.) Good relationship with their healthcare team

Sound like you, or know someone who might be interested? Please call 1-888-756-2841, or email [e-mail] to set up an interview (please note that an interview does not guarantee participation). Tesaro staff will also provide free training to anyone who needs help in sharing their story.

This is an excellent opportunity to have your voice heard. Please feel free to reach out at the contact information above if you qualify.

[Sherryp]

I am a stage IV ovarian cancer patient that was in remission after initial diagnosis, chemotherapy, and surgery. Had an recurrence last year after 6 months. Had more chemotherapy and am in remission as of June of this year. My oncologist decided to try me on Zejula. I have been on it for about 7 weeks and other than morning nausea and low red blood counts it hasn't be bad. This weekend my counts got so low that I had to have two pints of blood and stopped the medication until everything is better. I had been on 300 mg. a day and when I start back on Zejula it will 200mg. My Ca 125 has gone down while taking Zejula from 54 to 37.

[joann86 in reply to Sherryp]

Hi Sherryp , thanks for sharing. If you like, you can also send this to [e-mail] as this might be an example of one of the stories they're looking for. Wishing you all the best in your treatment- please keep us updated!

[Cjbloomq]

I have been on Zejula for about 2 months now. So far all is good. Just minor bloodpressure issues which I got from being on Avastin 2 years ago. I have had stage3 ovarian since 2013. Did all the treatments, surgery,a trial that didn't work for me. I just keep living each day and hope for the best. Staying positive helps.