Are there others with these symptoms?

[Sabbymin]

I just wondered if there are any other members of this group who have experienced pelvic, hip and or lower back pain that radiates into the thighs after undergoing pelvic radiation for uterine cancer , please? Thank you for any replies.

[Oonsy]

Hi there, I'm 3 years post treatment and this started to happen to me about a year ago. I knew it wasn't bowel related as it was a very different type of pain. Turns out I have some damage to my pelvis bone from treatment, it has little fractures where it has weakened. It was picked up on an MRI, so it might be worthwhile speaking to your medical professional to explain these new issues.

[Sabbymin in reply to Oonsy]

Hi Oonsy.

Thanks for that. I'm only 4 months post treatment and therefore I wondered if it was too early for these symptoms, which I am aware can happen.

Unfortunately, here in Spain, none of the health professionals I'm seeing seem to want to know. However, I have an MRI scheduled for November, so maybe something will show up then.

Can I ask if you have been given any help or advice?

Thank you so much for replying, as at least it means I may not be imagining it!

[Oonsy in reply to Sabbymin]

You'll probably feel a lot of little niggles and pains with being so soon post treatment, it's very normal as your body heals and recover. So it might not be anything, it could go away! The MRI will show everything and mention the area.of pain to whoever is carrying it out so that they know to keep an eye out for anything.

Unfortunately there isn't much that can be done. I've been given medication to help strengthen the bones (Alendronic Acid), however as I have several bowel issues I am unable to take it at present. I manage the pain with co-codamol and paracetamol, however it's becoming worse so I have been referred to my local pain management team for their help.

Try not to focus or worry about it and if the pain is becoming unmanageable definitely speak to someone about pain control as you shouldn't have to suffer x

[Sabbymin in reply to Oonsy]

Thank you so much for all that information. I hope you get all the help you need

Take care.

[Dustyangel in reply to Sabbymin]

Hi sabbymin

I too have what you are experiencing, I'm almost 3 years post treatment for cervical cancer. My effects started almost immediately after treatment stopped (Dec 2019) At first they thought it was just general symptoms that can happen after treatment, so long story short I happened to have 3 pelvic insufficiency fractures that they found out by MRI. And it's gone on from there really still in pain everyday since, going for another scan today as now they think it could be another fracture or actual arthritis now brought on by the radiotherapy. Also started to have radiation cystitis which Began in Jan of this year and still getting treated for it now. Everyone is different though, but we know our own bodies it's been a journey right enough! But you've gotta turn the negatives into positives, we have made it through one of the toughest battles that we have had to face. I'm on Co-codomol 30/500 4 times daily and I take 1 amitriptyline at night so I can get a few decent hours kip! Still wake in pain though but I'm glad that I get a decent 5/6 hours out of it. On various other medication too but that's another story ! All the best to you x

[Sabbymin in reply to Dustyangel]

Thanks Dustyangel.My symptoms are not nearly bad enough to warrant medication yet. Fingers crossed they won't get that way. Wow, you seem to have lot to cope with. They don't mention any if this pre radiation, do they - or they didn't to me!

Thank you for your reply.

I wish you well and hope you continue to manage things with as positive an outlook as you currently seem to have.

Take care and thanks again for your time 😊

[Dustyangel in reply to Sabbymin]

To be honest I don't think they did explain the after effects other than possible bladder and bowel issues ( I have them too) or I just can't remember so much info to take in at the time.I think they wait to see if any symptoms do occur then treat if they do. Also I have a persistently low white blood cell count so have to be careful about picking up infections. Some foods don't agree with me either ,and still get fatigued. Treatment also put me into premature menopause which they did tell me about so take HRT for that, there is so much that can get you down if you let it , I just try and get on with it ,but it's hard sometimes , this group is amazing I'm glad I found it. Thank you and all the very best to you in your recovery x

[Sabbymin in reply to Dustyangel]

It's a little more difficult for me, as I live in Spain and am not fluent in the language, despite all my efforts to learn, and you have to ask pretty forcefully here, if you want any help. However, I'm fairly upbeat about everything. It's just comforting to know I may not be imagining things, so I'm glad I found this group.Onwards and upwards as they say.

I was a natural health practitioner, so am using lots of natural ways to help.

😊

[Renee1964]

Hi , yes !!

[Renee1964]

I live in Spain too , the oncologist referred me to a reumotologist who has given me prolia , 1 inyect. Every 6 months. She is in charge of my bones

[Sabbymin in reply to Renee1964]

Thanks for that Renee1964. None of the consultants I am seeing are interested in my symptoms. They all refer me to someone else......I'll wait a while longer before looking for help, as it's only a few months since I finished treatment.

[Renee1964]

Hi again , my symptoms started close to a year after treatm had finished. The onc. will look at your mri and ask for a referral to reuma or traumatologist. It takes a bit of time but once you're in everything goes quick. For pain relief , I use hot water bottles and morphine.

[Sabbymin in reply to Renee1964]

Thank you 😊