Fatigue! 😴 : Does anyone else suffer... - Pelvic Radiation ...

Pelvic Radiation Disease Association

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Fatigue! 😴

SpaghettiBetty profile image
5 Replies

Does anyone else suffer with bouts of fatigue?

I try so hard not to ‘over do it’ even though how much I can cope with seems to vary from one week to the next.

Did a bit too much yesterday and now paying the price 😴 💤

Any tips for boosting energy more than welcome!

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SpaghettiBetty profile image
SpaghettiBetty
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5 Replies
HarleyQuinn82 profile image
HarleyQuinn82Community Pioneer

I get weird episodes where I feel so exhausted that I can’t force myself to stay awake and at the same time I feel freezing cold, even with lots of clothes and duvet but skin burns and I get a weird facial flush. I pass out for a couple hours then feel fine when I wake up.

So weird and no health professionals have been able to explain it. I think it’s an inflammatory response as it’s often when I get a flare up of bowel issues and I often have horrid pain in hips 🤷‍♀️

SpaghettiBetty profile image
SpaghettiBetty in reply toHarleyQuinn82

Yes I get the cold feeling as well. It can sometimes coincide with a general malaise 🥴 I’ve just noticed my B12 injection is overdue so I’m hoping the sudden return of fatigue episodes could be due to that 🤔

Vixxen profile image
Vixxen

How far out from radiation are you? I finished in April and am now starting to feel able to do things, my legs still feel like jelly alot!

jude-the-obscure profile image
jude-the-obscureCommunity Pioneer in reply toVixxen

It takes at least a year to get over the radiation therapy. A lot of tissue healing has to take place. Do what you are up to and no more. At 76, 11 years on, I have times when I feel exhausted and times when I have lots of energy! A flare up of bowel symptoms forces me to take it easy for a while. Take good care of yourself. You deserve it!

SpaghettiBetty profile image
SpaghettiBetty in reply toVixxen

I had treatment nearly 7 years ago but I have severe side effects.

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