I have read and posted in this forum for 2.5 years. In the beginning i was accused of working for big Pharma because i thought people should take RX meds. At that time this forum was a haven for "Conspiracy, suspicion, motives". Now by most people posting mostly positive and up lifting reports of how they are dealing with their PD it has become a much better forum.
Don't let a few idiots drive you away if you do then they will be the only ones left.
Let me get this straight, hidden called me an idiot for my post, you agree with them ?
DID you even read my post and the replies ?
PD medications are pitiful at this point, NOTHING is PROVEN to STOP PD !
I AM ADVOCATING for GM1 to be available as an Rx medication FFS.
IT was for years available and if you read the post you will understand GM1's story.
But of course that would require you to read the studies and watch the videos with the scientific presentations and if you are anything like Hidden you have no patience for that.
ALL THE "HUGS AND SUPPORT" WILL NOT CURE ONE DA NEURON,
HARD CORE SCIENTIFIC APPROACH WILL DO THAT.
SCIENCE IS THE HARD LANGUAGE OF THE TRUTH, AND IF THAT BOTHERS YOU, OR HIDDEN, SO BE IT. BUT I HAVE THE RIGHT TO VOICE MY OPINION AND I AM GROUND IN REALITY AND HARD CORE SCIENCE
You and Me both have the right to have our opinions we do not have the right to voice it here it is a privilege that can be revoked by the people who run this forum.
We are guests here.
If my opinion bothers you so be it.
ITS NOT YOUR OPINION THAT BOTHERS ME !
ITS YOUR IGNORANCE OF GM1 AND ITS P R O V E N HISTORY,
I ASKED IF YOU READ THE STUDIES AND YOU DID NOT RESPOND....
....YEA THAT'S WHAT I THOUGHT !
What studies are you referring to you have not given any in your post. Not even the name in your first post. Please post your references. I could not find where anyone called it a cure. It is still being studied as late as 2015 from what i could find. Are you referring to GM1 ganglioside
.
Why are you mad or upset. Your defense of you opinion is to attack me. I did not agree or disagree with hidden just stating my well informed opinion based on 2.5 years of reading post here.
Just post what you want back it with references and let us have our opinion.
I do not set in front of my computer all day. I have other things to do.
I can't find the links (you've posted) that site the "hard" scientific data. Because there are many, many qualified PD specialists who take opposite positions from each other, one person's assertions (one video) don't constitute hard data.
Let’s do the math. The pharmaceutical industry is $1,072,000,000,000/year. If all the people who have, or ever will, read your posts and everyone they have, or ever will know, stopped taking drugs tomorrow, big pharma would never know the difference. All of you wouldn’t amount to a fly on the ass of an elephant. There is no conspiracy.
Who’s the truth teller, anyway? Given a choice between ‘never before revealed,’ alternative therapy rants I read on PD forums, and there is a new one every day, and the science and hard data of clinical trials, each of which has been reviewed by many panels of molecular biologists, brain scientists, neurologists, pharmacists, hematologists and hospital, foundation, and government health care executives, who have approved spending millions, all subject to peer review, and then reviewed by the FDA, I’ll take their version of the truth every time.
Asserting that Micheal Fox isn't buying into your cure theory because he prefers sympathy is offensive and makes you a screwball.
Stop this shouting.
That is my last word on the subject.
Dear Bailey, I have been wondering what happened to all the people who were contributing to this forum. I learned so much from everyone....Theresa Curley , Hickoi and many others, yourself included. Where has everyone gone? I miss them and would like to encourage them to rejoin the ranks. It keeps spirits high when you know that we are all fighting the same battle.
Stll here just not as active. Busy making money buying repairing and selling riding lawn mowers.
I enjoy reading the posts and hope that i would never offend or upset any pwp on this site.
It would be a shame if pwp left this site because of disrespect and personal attacks and name calling.
Our lives are too short - kindness even when we disagree should prevail.
Blessings to all.
I still don't understand why you won't exercise? There have been many types of exercise that slow the progression of PD. Why not try some of them? This question is for QNTT.
The acrimonious back and forth should have no place here. We all struggle and don't need more stress in our lives. I've gained a lot of insight here as well as support -- please don't spoil it for others -- be respectful in your conversations.
Bailey, you are one of the reasons I participate in this forum. Your posts are informative and positive even though I have taken issue with the some of your ideas about meds. I now recognize people are different and in different stages of this disease, but I will follow the advice of someone who appears to be in your shape and has a long history of managing the disease effectively. Stay and keep up the inspirational posts.
As soon as someone starts yelling I pretty much lose all interest in what they have to say. It's a very ineffectual way to be heard and usually has more to do with the desire to yell at somebody then to communicate.
My responce was not aimed at QNTT just a broad statement aimed at any one making claims of Conspiracy, cover ups , and untruths.
He attacked everyone.
Let's move on.
I've been treated for PD for 16 yrs and have a new Neurologist who doesn't think I have PD because I didn't show "The Signs"
Over the last few months I have eliminated 1mg azilect and 8mg requip.Monday, 3-15-21. To those who have recently joined the forum, we have ZOOM meetings for HU PWP every Saturday and Sunday.
I wanted to share this infomation, made the pain thing a little more understandable for me
And the beat goes on, and on
