Hi,
I have a aunt with Paget's disease on the rear, right side of her skull. After a bisphosphonate infusion 5 years ago, the condition has remained stable. Recently, she has begun experiencing sharp nerve pain diagnosed as trigeminal neuralgia on the right side of her face. I'm wondering if the damage caused by Paget's contributed to or caused the nerve damage resulting in this nerve pain. Do you know any Paget's sufferers that also feel facial nerve pain? I would greatly appreciate replies.
Thank you.