My orthopedic dr. tells me there is a spec... - Paget’s Support

Paget’s Support

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My orthopedic dr. tells me there is a special Dr. who treats pagets, can you give me that name?

Annahebl profile image
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Annahebl profile image
Annahebl
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Moggie profile image
Moggie

Which area do you live in and are you willing to travel?

Moggie x

Moggie profile image
Moggie

Sorry think I may have misunderstood your question - I saw my endocrinologist for Paget's. Hope this is what you were asking. Maybe do some research on endocrinologists in your area that specialise in Paget's as they normally specialise in diabetes.

Found this link that might interest you - scroll down to see who deals with what as far as Paget's is concerned.

webmd.com/osteoporosis/tc/p...

Moggie x

Those with Paget's are often (but not always) looked after by either a Rheumatologist or an Endocrinologist. However, it will depend on the services in your area. Sometimes there is a consultant in another department with a special interest in Paget's.

Diana at the Paget's Association. Email: helpline@paget.org.uk

HelenSahib profile image
HelenSahib

I am looked after by DR Keen at the Royal Orthopaedic Hospital and he is said to be one of the leading specialists in Pagets - his waiting list is long but he is very good.

london1234 profile image
london1234 in reply to HelenSahib

Why do you say Dr Keen is very good?How long did he take to diagnose Pagets? What treatment did he recommend? Thank you for your help

reddon profile image
reddon

please advise did you find the special dr reddon

reddon profile image
reddon

Annahebl  PLEASE ADVISE DID YOU FIND THAT DR,, I HAVE ONLY BLANK WALLS WHO DONT KNOW A LOT REGARDS REDDON

Mandy5 profile image
Mandy5 in reply to reddon

Hello Redon. The Pagets Support answer explains its usually a rheumatologist or endocrinologist, depending where you live. If you are in the UK, there are hospitals that are designated Pagets Centres of Excellence. The Pagets Association website is a goldmine of support and research-backed advice about symptoms, treatments, hospitals etc. We drive 3 hours from Dorset to RNOH Stanmore but it’s worth it : )