Do you take part in any patient voice/campaigni... - My Ovacome

My Ovacome

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Do you take part in any patient voice/campaigning activities?

OvacomeSupport profile imageOvacomeSupportPartnerMy Ovacome Team75 Voters
38
No - but I would like to
17
No - this doesn't interest me
11
Yes - I campaign nationally through a charity or other organisation
8
Yes - I write to my MP
7
Yes - I'm a member of my local GP/hospital patient user group
6
Yes - other (please explain in comments below)
2
Yes - I'm a member of my local commissioning group (CCG) patient user group
0
Yes - through my local Healthwatch
7 Replies
rppizio profile image
rppizio

Yes, Other- I blog about awareness share through facebook & twitter. Anytime I can have a one on one with a woman or even a man I educate and encourage to have a baseline ultrasound done so that they have a good starting point if / when things start changing.

I share info with my Dr's to make them aware as well. I actually had one PA say to me- well they removed your ovaries so you don't have ovarian cancer any longer- how uneducated is that?

SamJD profile image
SamJD

Cancer research patient participation forum

Barlow1951 profile image
Barlow1951

I am involved in the Ovacome Survivors Teaching Students project and also managed to place symptom leaflets in my GP surgery.

citrine profile image
citrine

Yes, I take part in Ovacome's Survivors Teaching Students programme.

Ovacome Survivors Teaching Students programme; patient voice in a clinical trials unit; patient voice at a pharmaceutical conference

Humbug12 profile image
Humbug12

I've also just been given permission to talk to my school colleagues about oc and the symptoms to watch out for.

OvacomeSupport profile image
OvacomeSupportPartnerMy Ovacome Team in reply to Humbug12

Hello Humbug12

Thank you for your reply - I'm sorry for the delay in responding to you, I've been on leave. If you would like any of our BEAT materials to support your talk, please do get in touch with me, either through the forum or email support@ovacome.org.uk or call 0800 008 7054. I hope your talk goes well - thank you for helping raise awareness of ovarian cancer.

Best wishes

Anna

Ovacome Support Service Manager