Pete update : Hello everyone well pete... - Oesophageal Patie...

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Pete update

Valerie01
Valerie01

Hello everyone well pete hasn't been very well again lastnight he has a chesty cough he still brings up bile and he said he has no pain at all even when the asid is coming up I think he has a chest infection so I'm going to ring doctor and get him to come have a look at him I will see what the doctor thinks he is very chesty and has a rattling chest has anyone else had this and not had chest infection and am I just worrying for nothing

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Hi so sorry to hear that Pete is still struggling, I have had the same experience after a terrible night of bringing up that horrible bile which then has led to a rattling chest and can be quiet painful , it has then taken a few days to clear and can be very tiring.

Tina x

Valerie01
Valerie01
in reply to hunsdon

Hi the covid team came out to him he hasn't got covid but she said he has pneumonia his lung on the left side is bad he has been given antibiotics and steroids so should be feeling better in a few days x

I am 3 years post surgery in October.

I often get aspirational pneumonia from bringing up and aspirating bile during the night. I personally have found drinking a glass of water about 10 PM helps me somewhat with the bile.

I am sleeping inclined and since I usually bring up the bile in the morning after 5 AM, I now move to a recliner I have in my bedroom each night about 4 AM and complete my nights sleep in the recliner. It has really helped as before I was getting aspirational pneumonia sometimes about every month to every other month this year.

I find that the bile issue is one of the worst parts of post surgery for me.

Good luck Pete. The antibiotics make a quick world of difference.

Thanks for your reply he has a adjustable bed and sleep at a tilt he is still just on sips of water and I put water through his feeding tube to help hydrate him

I sometimes slide down in the Inclined bed as the night went on. And when I ended up flat, that was when the bile came up. That’s why I have chosen to move to a recliner about 4 AM as it prevents me from lying flat.

hunsdon
hunsdon
in reply to petercaron

Hi petercaron I am 7 years post op Ivor Lewis , and I can suffer the same regarding the nasty bile, I sometime wake up quickly and pop a locket ( honey & lemon flavour) anytime during the night which can help break down the nasty bile, I also now take esomeprazole one a day and this has helped heaps.i hope it also helps you.

Tina

hunsdon
hunsdon
in reply to petercaron

Hi peter I am 7 years post op and I can suffer the same regarding the bile, I have now again quickly used lockets (honey&lemon) flavour any time in the night which has helped to break up the nasty bile, also I now take esomeprazole one a day and it has helped heaps. I hope helps you also.

Tina

Valerie01
Valerie01
in reply to hunsdon

Thank you for your reply he said he will certainly give the lockets a try

Hi. I’m sorry for Pete’s continuing struggles. I think you were wise to be concerned & get the doctor to take a look. Better safe than sorry. I hope the antibiotics & steroids have done their work & that Pete is feeling better.

My prayers continue for Pete & you, too.

Linda

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