My dad had an appoitnment with the oncoligist last week which they seemed pleased with his pathology results and said the post op chemo is the icing on the cake. However i honenstly dont think my dad is well enough to take it, which is a shame because I think he would of had it and this worries me.
My dad has his post op appoitnment with his surgeon tomorrow & he also has an appoitnment in the chest clinic the day after ?
I dont understand why he has to be seen in a chest clinic ? Is this normal ?
What will these 2 appoitnments be about ? Are they just routine check ups ?
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Hope1972
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Sorry, I do not remember most of this. I was too ill post the surgery to have the post surgery (I had pneumonia, acute kidney failure and a few other things). So I missed the window (I had the chemo before) but I am still here.
They thought mine was stage 3 query stage 4. They fought mine with everything they could, I had waited several months for diagnosis as they thought that I was too young to have had it (was 32 when finally diagnosed). Sorry, busy with my 6 and 7 year old here)
I only had one IV Chemo after the Op and it nearly killed me, its true after the Op you're really weak and just when you should be eating and building up your strength, they expect you to do another 9 weeks its crazy. I had and 11cm tumour thats about 4 and half inches, the Chemo shrunk it by half, my logic is, if it shrunk that by half what did it do to a few Cancer cells knocking about? I went to my Oncologist with a list of about 6 questions to ask him. My doctor actually advised me to do this if I had any concerns about the Chemo. Not only was my Oncologist evasive in not wanting to answer the questions, he was damn right rude and walked out the room wihout saying goodbye or anything, You have to weigh the pros and cons after all Chemo can give you Cancer, I had Sepsis from it which they didn't tell me, I only found out when I read my notes when I got home.
Regarding the chest scans, I had those and they found 3 small lumps/lesions I don't think they really knew what they were being of a small size, we were all worried that it had spread, but the end conclusion was that the Chemo can cause this to your lungs and probably other organs in the body. This was prior to the OP but they went ahead anyway. best wishes for the future.
It might be that the doctors are taking on board your concerns about whether your Dad is well enough to take more chemo, and it is a chest appointment to assess his fitness.
The doctors will explain better than I could, but the general rule about post op chemo is based on large scale statistics from medical studies, and always have to be tailored to suit the individual patient. The lack of benefit from missing out a particular round or course of chemo is sometimes difficult to judge, and quite a lot of patients get on perfectly OK with less chemo. Individuals react so differently to chemo on an individual basis anyway . The reason why the chemo started to be given before the surgery was because of the fitness of the patient at that stage, and to shrink the tumour before the surgery. The chemo afterwards may not be necessary. It all depends on the individual situation.
My dad seen proff Griffin today at the RVI & he is happy with my dads progress he said he is about right with the post op progress.
He said he would like my dad to have the chemo and advised my dad had a good response pre op getting rid of the lymph nodes. He went onto to say its better to have it to ensure it does not reoccur. My dad held onto every last word.
Im terrified that the post op chemo will made my dad really poorly or worse ... or worse still end off in hospital... Proff Griffin said even just 1 round is better than none and they would stop it if he became ill with it. .... it still worries me as i dont know anyone from here or mcmillian site that have tolerated it post op & plus my dad is in his 70s.
Prof Griffin did my op. too. He is brilliant, he knows exactly what he's doing, and I'm sure he wouldn't say your Dad needs chemo unless he was sure. I would never query anything he said.
After all, you don't want your Dad to recover from the op. then find there was some cancer cells left behind in him.
Post op chemo is tough so the fitter he is the better. My Dad has struggled with it post op.. he's 69 yrs old.. however he managed all but 12 days of it and I think no matter how pleased he is it's over, he will also be glad he did as much as he could because if he hadn't he would've always worried that he hadn't given himself the best chance. If your Dad wants to go ahead with it then he can do it with the attitude that should it become too much he can always stop x
Prof Griffin is a fantastic surgeon, he is so gifted and ill be in his debt forever. Did you have post op chemo ?
When did you have your op ? We have been invited to a Christmas coffee morning which they hold yearly. Do you attend these?
My dad is doing great but he is sleep deprived apparently.
Quite right. You could not be in more experienced hands than Prof Mike Griffin's.
I do think that worry over how one's loved one would cope with more chemo is a perfectly natural thing. But the doctors will have seen many other patients in his situation and will be monitoring things very carefully.
There is a large amount of trust involved in this isn't there!
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