Had an Ivor Lewis Procedure in June last year (1917) I was 109 kg pre surgery but on the advice of my surgeon Simon Bann lost 10 kg before the procedure, It all went well , Its certainly major and wasn't without complications but one year later I have just spent a month in Thailand , loved the spicy food. I still have some dumping problems but I have learned to choose my food types carefully and certainly anything soup style is fine. eggs are good . keep up the carbs and protein to avoid weight loss. Salads can be a bit challenging but mashed spuds are fine and avoid bread and things that might ball up.
Its a bit of management but live and enjoy.. I hear so many stories of those who were not diagnosed in time and did not have our lifeline,
Written by
MarkMacL
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I'm glad to read your post. I had the standard oesophagectomy op in May and I find that here in August I still have issues with bread and rice in particular and wasn't expecting to have issues three months on. Otherwise in general I can eat what I want just in slightly smaller portions.
Glad to hear that you are doing well, everybody is different and every story shows how we have to adapt to changes. I think we will have certain issues for the rest of our lives but we have those lives to live whereas others have no options. So glad I had the surgery.
Well done yes we have had another chance of life so we should live it with our adaptions. The op is life changing but we can have a new normal. I am 3yrs 5months still under the hospital with a few setbacks along the way. My issues are still with dumping sugar/fat. I like my holidays but book last minute ,enjoy days out and going for a walk.
You mention sugar, please do read up the symptoms of hypo, hyperglycaemia and cross check with your observations. If required get blood glucose reading fasting, pre-meal, immediately post meal for every 5 min to obtain pattern. I managed to get 60 readings and found hyper pattern, the dumping mostly resolved with Creon25000. I will make a separate post on this.
Glad to hear you are OK with spicy foods and whilst I am sure it is no pleasure for you, that you still have dumping problems, it gives me some hope that my dumping will improve, I seem to go 3 days just fine then for no real reason that I can think of have 1 or 2 terrible dumping days
Yes I find that eggs, mashed potato, toast and noodles are fine, how do you get on with full cream milk ? it seemed to be OK with me and then it seemed to be a problem.
I am one of the lucky early diagnosis cases too eating well 4 months out skinny but happy to be alive everyone. Is different you just have to find out what works for you
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Dumping
Supercharged jejunoscopy
Outcome
12 Years Post Oesophagectomy (achalasia) Breathless
