Living The Life: Had an Ivor Lewis... - Oesophageal & Gas...

Oesophageal & Gastric Cancer

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Living The Life

MarkMacL profile image
7 Replies

Had an Ivor Lewis Procedure in June last year (1917) I was 109 kg pre surgery but on the advice of my surgeon Simon Bann lost 10 kg before the procedure, It all went well , Its certainly major and wasn't without complications but one year later I have just spent a month in Thailand , loved the spicy food. I still have some dumping problems but I have learned to choose my food types carefully and certainly anything soup style is fine. eggs are good . keep up the carbs and protein to avoid weight loss. Salads can be a bit challenging but mashed spuds are fine and avoid bread and things that might ball up.

Its a bit of management but live and enjoy.. I hear so many stories of those who were not diagnosed in time and did not have our lifeline,

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MarkMacL profile image
MarkMacL
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7 Replies
Hon-Moonraker profile image
Hon-Moonraker

I'm glad to read your post. I had the standard oesophagectomy op in May and I find that here in August I still have issues with bread and rice in particular and wasn't expecting to have issues three months on. Otherwise in general I can eat what I want just in slightly smaller portions.

slobjohnb profile image
slobjohnb

Glad to hear that you are doing well, everybody is different and every story shows how we have to adapt to changes. I think we will have certain issues for the rest of our lives but we have those lives to live whereas others have no options. So glad I had the surgery.

kiddy profile image
kiddy

Well done yes we have had another chance of life so we should live it with our adaptions. The op is life changing but we can have a new normal. I am 3yrs 5months still under the hospital with a few setbacks along the way. My issues are still with dumping sugar/fat. I like my holidays but book last minute ,enjoy days out and going for a walk.

Best Wishes

Debbie

Mauser1905 profile image
Mauser1905 in reply to kiddy

You mention sugar, please do read up the symptoms of hypo, hyperglycaemia and cross check with your observations. If required get blood glucose reading fasting, pre-meal, immediately post meal for every 5 min to obtain pattern. I managed to get 60 readings and found hyper pattern, the dumping mostly resolved with Creon25000. I will make a separate post on this.

Garysreflux profile image
Garysreflux

Quality post mark. All learn from that attitude. Cheers. G

jeffw663 profile image
jeffw663

Glad to hear you are OK with spicy foods and whilst I am sure it is no pleasure for you, that you still have dumping problems, it gives me some hope that my dumping will improve, I seem to go 3 days just fine then for no real reason that I can think of have 1 or 2 terrible dumping days

Yes I find that eggs, mashed potato, toast and noodles are fine, how do you get on with full cream milk ? it seemed to be OK with me and then it seemed to be a problem.

Horses444 profile image
Horses444

I am one of the lucky early diagnosis cases too eating well 4 months out skinny but happy to be alive everyone. Is different you just have to find out what works for you

CJ Mudgee NSw Aust

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