Well I might be going on infusion of rutiximab anyone else had it ??. I’m a little bit apprehensive 😩
Rutiximab: Well I might be going on infusion of... - NRAS
Rutiximab
Written by
Deejojo
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10 Replies
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I am on this and have good results. You usually have an infusion every 6 months depending on your blood results. It has been 18 months since my last one and only now do I feel that maybe I need another one. Good luck with yours. Keep an open mind and go by your gut feeling. Have a good day xxxx
Hi.don't worry you will be fine.took most of day at hospital and staff brought magazines and even food n drinks. Kept checking to see if any reactions .made me very sleepy next day .didn't work for me so hope it does for you
Hi, I started RTX around three years ago with good results, switched to Truxima three months ago and the benefits are only just apparent. Give it a go, RA that is not controlled or getting the right treatment is very damaging to the whole body, as well as excrutiatingly painful. Hope it goes well.
Am on it too it’s a long day in the hospital so take a book or some headphones and a tablet with some tv to watch or something.
Am having second round in January as results can sometimes take two rounds to show full benefit.
It’s like any other treatment choice u just have to do it and see what happens.
Hi I've bee on this for past 6yrs and have it every 6-7mths. Having 1st of 2 rounds next week and agree with what's been said about taking a book or iPad to make day go guicker normally I'm there from 8-30 to 4pm. Also I take a warm cardy or warm wrap as I tend to feel cold half way through. Also I take my own packed lunch.
It's a long day cos before they start infusion bloods and wee sample are checked then cannula fitted ,paracetamol given,intravenously antihistamine for itching,then infusion starts.
You'll be ok the nurses keep a close eye on you. All the best xx
Hi Dee I had my first one yesterday I went good I feel a little wiped out today, hopefully it’s my miracle drug 😘
dont worry.It may be your wonder drug.On the other hand it may not work for you. Worth a try. I have been on it for ten years.I am free of pain.Good luck
Brilliant -been on it 5 years. No side effects other than a headache on infusion day. Last infusion lasted 11 months. Now agreed with consultant to wait for a flare up
Hi Dee how are you going in your rtx plan ?
