If you are on biologic treatment we want to know if a... - NRAS

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If you are on biologic treatment we want to know if and how you are being possibly switched to a biosimilar. Tick all that apply.

199 Voters
117
I have not been switched and know nothing about biosimilars
34
I am aware of biosimilars but I have not been switched
21
I have already been switched and I was happy with the process
9
I am in process of being switched and have been informed by a letter of this
9
I am in the process of being switched and have had a face to face meeting with my team about it which I am happy about.
7
I have already been switched and was not properly informed about it
4
I am in the process of being switched and have been invited to attend a meeting with other patients to find out more
2
My treatment has been switched but I knew nothing about it until I received delivery of the new treatment
30 Replies
diclidophora profile image
diclidophora

Rather sudden

Mimi21 profile image
Mimi21

I am aware of biosimilars but no one has discussed me being switched and I haven't been as yet. Next medication batch being delivered in 2 weeks time so will be interesting to see what I receive now!

TerrilouiseS profile image
TerrilouiseS in reply toMimi21

Same and that wasn't an option in the question

bpeal1 profile image
bpeal1 in reply toMimi21

I was looking for that option in the survey too!

Chezza56 profile image
Chezza56

Even though I was happy with the procedure of being switched, I had a reaction to the biosimilar and have now been put back on Enbrel.

I should of had the choice to switch or not. No guarantee that new biosimilar will work the same.

AgedCrone profile image
AgedCrone in reply to

It's all down to cost......because the original Biologics were the first they were extremely expensive to make.

As I understand it (?) now the patents on the originals (like when we started buying paracetamol instead of Panadol) are expiring & scientists can now 'copy' what they can find in the original.....but it won't be exactly the same.....but should have the same effect.

So because most of the expensive research had been done the biosimilars aren't as expensive....I think by about 50%!

So good old Dr NHS is taking this route ....I suppose it might be one way of more people being able to access Biologics?

That is how it was explained to me....hope I didn't get the wrong end of the stick!

Matilda7 profile image
Matilda7

I have not been switched but DO know about biosimilars

Neverwell profile image
Neverwell

May I'm being a bit dim but what is biosimilars?

wickedone profile image
wickedone in reply toNeverwell

I must be a bit dim to I have not heard of biosimilar either I take Simponi and its the only one so far that hasn't made me ill so they will have a fight on there hands if they change it. I guess its a cheaper version drug to save money.

Esteratsky profile image
Esteratsky in reply toNeverwell

See AgedCrone's explanation above. I could not have explained it any better .

in reply toNeverwell

nras.org.uk/data/files/Publ...

You will find the above article worth a read to introduce or visit the NRAS website for other information on biosimilars

nras.org.uk/biosimilars

Beverley_F profile image
Beverley_F

Not heard of this but have an appointment at hospital in December so maybe they will say something then. We have enough to put up with without our meds being messed about with.

SandE profile image
SandE

I no nothing about biosimilars. I guess I need to research!

bdunsmuir profile image
bdunsmuir

although I selected know nothing about biologics this is incorrect but the closest to fit my reply. I am aware of them but my rheumatologist is not switching people who are currently on biologics and having a successful response.

Dave74 profile image
Dave74

I'm switching in 4 weeks, no option just being told ur going onto this, no meeting to discuss! been on enbrel 6 years no probs at all!! told rheumy not happy, they said we have no choice it's come from higher up!! won't even give me a steroid injection in wrist now even though I can't move them, all because it's not red and inflamed!! same crap every year!! how I love cut backs!!!

Hobbits profile image
Hobbits

The options for the poll should have one that reads:

I have not been switched but am aware of Biosimilars......the only option was not

switched and know nothing....So I checked it but, I do know about Biosimilars

fizbom profile image
fizbom

only just gone on Enbrel hope they don't change me as for the first time in 6yrs I feel much better

michaelegan profile image
michaelegan

switched from Enbrel with disastrous relapse oh the pain!

Pollybess profile image
Pollybess

Was discussed with me and given the option to switch, so far I have been allowed to stay on Enbrel as I expressed concern about switching given my condition is currently well controlled under Enbrel and mtx

hellykay profile image
hellykay

None of the above. I had a long discussion with both my consultant and biologic nurse and have agreed I'm not being switched while current medication is working. Will be reviewed if or when the situition changes.

bluetit33 profile image
bluetit33

have not been informed. at present on Cimzia, not due to see Rheumatologist till May, so may hear then

Moomin8 profile image
Moomin8 in reply tobluetit33

I was told that currently there is not a biosimilar for Cimzia.

Lesley_ann profile image
Lesley_ann

I read through a few posts as I wasnt aware of biosimilars. I've been on embrol over 10 year's and it changed my life so hopefully I won't have to change Linda

melissa6140 profile image
melissa6140

just started on xeljanz cause others were messing with my liver or was allergic so far so good but it is expensive and am hoping they will help with cost can only work part time right now and have no insurance. The pain and fatigue makes it hard to think about working full time right now.

Astral profile image
Astral

I was switched without being given an option and was a bit concerned but the changeover was easy and i have had no problems with the biosimilar. When I thought about it, what is wrong with being given a cheaper drug if it works as well as the original? I'm all for the NHS saving money ,especially if it means more people will have access to the drugs.

Bluebird335 profile image
Bluebird335

I was switched to a biosimilar, Benepali, from Enbrel about 3 months ago. I had a letter from my specialist to advise me about a month before. Evidently they have researched and decided, there was no choice.

I was dubious about changing, would it be as good? Anyway, I decided to try to keep an open mind, if they have the same drug manufactured cheaper, then the NHS has more to spend on others. ( I always felt rather guilty that the NHS had to spend so much on me) but I was eternally grateful that they did, it gave me my life back!

So, 3 months on I can report that the Benepali works just as well for me and is actually far easier to administer. It works by just pressing down on my leg, which triggers the injection. I used to struggle pressing the trigger on the Enbrel. I also find it stings less as it enters the system.

Looking back, it may be purely cost that drives their introduction, but isn't it right that the NHS gets best value for money? If there were any adverse effects, I'm sure your consultant would consider returning to the original drug.

Hope this helps to reassure a little.

Og69 profile image
Og69

I had my first infusion with Remsima (a biosimilar) a short while ago. I am not sure if it is connected, but I developed a chest infection shortly thereafter, which I cannot shake. My RA team were very informative with regard to the economic reasons for switching, and I am trusting the infection is not related, and await my next appointment with a positive outlook.

Cathy777 profile image
Cathy777

I am on rituximab but not heard about this.

I am aware of biosimilars, but I'm on MTX, Leflunomide and Rituximab.

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