Are supplements a good idea? - Non Hodgkin's Lym...

Non Hodgkin's Lymphoma Friends

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Are supplements a good idea?

jack23 profile image
8 Replies

Has anyone tried the supplement called Moducare? It claims to balance the immune system and is all natural, however my oncologist would not recommend it as she had not heard of it. As lymphoma survivors, perhaps our immune systems need a little help one way or another? Would appreciate hearing from anyone who has heard of this or found something else that helps.

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jack23 profile image
jack23
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Shar0n profile image
Shar0nVolunteer

I haven't heard of Moducare so can't comment on its efficacy but I take vit c (550mg) + zinc (10mg), vitD3 1000 ius, a general B complex at recommended levels, kelp for iodine at recommended level also (I'm wary of megadosing as it might have a see saw effect, increasing one nutrient at the expense of another) Probably need fish oils as well but I eat a lot of sardines/mackerel.

I hope what I take is supporting my immune system combined with plenty of vegetables, a bit of non sweet fruit (Bramley apple) and moderate protein, higher good quality fat and lower carbs, no added sugars. Really, we only have how we feel and the blood tests to tell us whether what we're doing is helping our immunity.

Exercise, preferably twice a day e.g.brisk walk for 20-30 mins to keep the circulation (blood and lymph) going and the mood up, is vital too.

Felix_2010 profile image
Felix_2010

I saw my Haematologist yesterday and told her I'm taking Vitamin D, multivitamins and Turmeric. She said it won't do any harm when I'm not on treatment and my bloods show my immune system is recovering after my chemo - I like to think I'm doing my bit to support my Health.

Josie2rulrs profile image
Josie2rulrs

I really like to know more on this....Whenever ask I doctors about supplements, they don't seem to believe in them. I would like to find a good nutritionist to help direct me on what should I take. a fellow LGFL survivor went to a nutrition and he was told only to take a multivitamin...I believe there has got to be more...I also read a lot about Iodine...pls. advise. We will all beat this you know!!!

jack23 profile image
jack23 in reply toJosie2rulrs

Hi, Frustrating isn't it! I asked my oncologist/immunologist about a product that I had seen in a health food store. She said that she had not heard of it but did recommend a web site . She said that if you look up Dr. Andrew Weil his information is helpful. She said he was a medical doctor who is doing a lot of work with supplements and natural products. I did look at his site and was impressed, but unfortunately for me, his products are not shipped internationally. (I am in Canada) So if you are in the U.S. you will have access , but if not, there is still good information there. (Interestingly enough, my chiropractor also suggested him to me) I am going to try some of the products in the health food store for now, as my doc. says they may not be helpful, but certainly won't be harmful. I think we need to be careful, yet open minded as well. Please let me know if you stumble across something that helps.

Josie2rulrs profile image
Josie2rulrs in reply tojack23

will do.....we're all in this together...

KaLoOM profile image
KaLoOM in reply toJosie2rulrs

Folic acid and red blood cell boosting food helped.

Rraasch profile image
Rraasch

Research Moringa. It's a plant grown in India. Google....Discovery Channel Moringa. You will find a great video that details all the nutrients, vitamins, antioxidants etc that come from this plant. I found a SuperMix that I've been using for 9 months now. This is a food, not synthetic made vitamin. I'm in a complete remission from Diffused Large B Cell Lymphoma since February. At my 3 month and 6 month visits my blood work was absolutely great and surprised even my nutritionist. I have energy, I exercise regularly, drink lots of water, but I know I don't always eat the right foods. Drinking Moringa everyday ensures me that I'm getting all the nutrients my body needs to aid in the recovery from chemo and to boost my immune system. I could go on and on about the great results I've had since incorporating this food into my diet. If you want any further information please email me at rhonda.raasch@gmail.com

Josie2rulrs profile image
Josie2rulrs

thank you

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