What are you doing this month to raise a... - My MSAA Community

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What are you doing this month to raise awareness of MS? (select all that apply)

johnMSAA profile imagejohnMSAAPartner44 Voters
26
Attending support groups / online chats
21
Sharing MS information on social media
13
Participating in MS educational programs
6
Volunteering to spread awareness of multiple sclerosis locally
5
Distributing MS information in the community
9 Replies
JTZES profile image
JTZES

Answering questions from newly diagnosed patients.

johnMSAA profile image
johnMSAAPartner in reply toJTZES

That's great, JTZES ! And I'm sure you do that not just during MS Awareness Month but all year. Thanks for the feedback.

- John, MSAA

1RiskyRich profile image
1RiskyRich

Doing the same as the last few years. ABSOLUTELY NOTHING! What awareness anyway? Approve HSCT already. Stopping the progression till a cure comes out is way better than slowing it down till a cure come out.

johnMSAA profile image
johnMSAAPartner in reply to1RiskyRich

Thank you for your feedback, 1RiskyRich . Our goal in raising awareness about multiple sclerosis is to let others, who may be unfamiliar with MS, learn more about the disease, while also providing free educational resources and programs to help the MS community.

We also appreciate your comments regarding HSCT – while MSAA does not fund research, we have reported on the progress of HSCT, including in our latest edition of “What’s New in MS Research,” which was published in January:

mymsaa.org/news/new-in-ms-r...

We will continue to report on this important area of research as new data becomes available.

- John, MSAA

1RiskyRich profile image
1RiskyRich in reply tojohnMSAA

So why raise money? It’s not like the funds are going to those suffering. We also go going towards a cure. Letting other know about MS? Are they gonna dolce are problem? Half really don’t care & most of the other half are glad it’s us & not them. HSCT stopped my progression in 2016. Why doesn’t everyone push that till a cure comes out? I realize there is more $ to be made treating someone for the rest of there life than a one & done immunization shot.

luvhair profile image
luvhair in reply to1RiskyRich

Wht is hstc

TaraKG profile image
TaraKG in reply toluvhair

HSCT - hematopoietic stem cell transplant

1RiskyRich profile image
1RiskyRich in reply toluvhair

Google HSCT for MS. If you Facebook follow my progress on my Richie’s MS Journey page.

purplehorses profile image
purplehorses

Which I don't belong to, i stopped when group leader told me kiss her arse. Sorry not a GROUP to belong to when asked for ideas to help group.

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DanaMSAAPartner

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