What are you doing this month to raise a... - My MSAA Community
What are you doing this month to raise awareness of MS? (select all that apply)
Please select all that apply:
Answering questions from newly diagnosed patients.
Doing the same as the last few years. ABSOLUTELY NOTHING! What awareness anyway? Approve HSCT already. Stopping the progression till a cure comes out is way better than slowing it down till a cure come out.
Thank you for your feedback, 1RiskyRich . Our goal in raising awareness about multiple sclerosis is to let others, who may be unfamiliar with MS, learn more about the disease, while also providing free educational resources and programs to help the MS community.
We also appreciate your comments regarding HSCT – while MSAA does not fund research, we have reported on the progress of HSCT, including in our latest edition of “What’s New in MS Research,” which was published in January:
mymsaa.org/news/new-in-ms-r...
We will continue to report on this important area of research as new data becomes available.
- John, MSAA
So why raise money? It’s not like the funds are going to those suffering. We also go going towards a cure. Letting other know about MS? Are they gonna dolce are problem? Half really don’t care & most of the other half are glad it’s us & not them. HSCT stopped my progression in 2016. Why doesn’t everyone push that till a cure comes out? I realize there is more $ to be made treating someone for the rest of there life than a one & done immunization shot.
Which I don't belong to, i stopped when group leader told me kiss her arse. Sorry not a GROUP to belong to when asked for ideas to help group.