What type(s) of MS support resources wou... - My MSAA Community
What type(s) of MS support resources would you recommend for someone who is newly diagnosed with MS? (select all that apply)
Interesting poll. I am sure that any are suitable. It all depends on which one is most comfortable method to you. There is not right or wrong. I answered based on what I currently use. I would certainly encourage individuals to reach out because we are all in it together, and together, we learn so much more than going at it alone.
I said first 4, not religious, but l use a peer support group. We have the stupid disease, not outsiders. They may mean well, but they haven't experienced the disease's setbacks, we have.
John, thank you for all you and your staff do. So greatly appreciated! Kelly
I also tried 3 of the selections when I was newly diagnosed 13 years ago. Now I regularly use the MSAA chat room. It is the easiest way to stay connected and learn about the disease.
I am on several Online groups including this one; I like to hear what people say and I think people are pretty honest in their opinions of what’s going on with their MS. I belong to groups on Facebook, MSAA, MS news today,MyMSTeam, CandoMS, Narcoms, Stu’s MS news and Views; that’s the bulk of them all I can remember right now.
I believe that the internet is what the new generation uses. Be it cell phone, computers, and I-pads They do not communicate one on one like we use to. Thier form texting not even phone conversation is the thing now. 🤷🏼♂️ The MS chat room is great information from MSers living with MS with experience.
All the choices are very helpful. In person support groups are great because every one there gets it. We've all been through it and understand what you're going through so we can tell a person what worked for us. Knowledge is very powerful. When I was diagnosed in 1984, no one knew anything about MS. There still is no cure, yet, but , with a the advancements, there probably wi be. The internet can be a great help If you're not able to get around, you can go almost anywhere and find out almost anything online. Personally, I find that my faith community is such a blessing. Whenever I'm feeling discouraged or over whelmed, there is always some one to pray with me. My church family also helps in practical ways. If some one is tired or sick, we help each other by providing meals,doing chores, and especially, we pray for and encourage one another.
TY Im grateful also that I can pray and get relief that way, meeting needs is an "our situation" somehow we all can help out some way..ty for the post.
I believe in using or trying all that feel right for you. Personally, I believe faith is the most important thing in our lives. Give it all to the Lord and he will guide you. Prayers 🙏 to all. Good Bless.
Personally for me and something this important I would (as I did with my diagnosis and do with all things I'm not familiar with) will research online to self educate myself and gather questions for next step meeting with "MS Specialist" to go over my understanding of what I got from my self education and questions in-person!
this disease is so overwhelming when you first get diagnosed. Having good, credible resources at hand is the best. And in this case, being able to connect with folks with the same predicament is priceless. This community is amazing and a great resource.
I believe doctors can help but there's nothing like someone who has the same crazy disease. This is a place where I feel safe, even if when I'm not sure what I'm saying makes sense.
