What commonly overlooked MS symptom woul... - My MSAA Community
What commonly overlooked MS symptom would you like to learn more about from MSAA?
Pain
Cold feet.
Pain - Specifically burning fingers and toes in the cold months despite gloves and wool socks worn.
Welcome Lyndadwilkie ! I believe you are new here. We hope to get to know you better. Please feel free to post whenever you feel comfortable doing so. I hope you find many new friends here. I find this forum to be filled with people who share their hearts and experiences. Welcome!💕
Neuropathy
trouble walking
Neuropathy
hearing loss
Pain and sudden weakness resulting in a near fall.
Wow! It's amazing to see that cognition, which I voted for, is the highest voted symptom. Despite being a full time wheelchair user, cognition is the main reason why I can't work again.
I quit work because of cognition and fatigue. I felt incapable of doing my job correctly. My co-workers treated me as if I was stupid. I do understand what you're saying about not working.
Try to get a solid 7-8 hours of sleep a night. That helps me concentrate better to what i have going on. I keep a pencil and pad with me to take notes and I carry a year calendar to keep track every appointment, meeting, MS drug dinners/luncheons and everything else you have to do! You can do this!!
Thanks for replying DianneB. I will definitely have to keep better notes. I do keep my appointments on a calendar but I don't always carry it with me. I used to be more organized but I think MS has affected my organization skills too. Focusing and concentrating has become a big problem for me.
8 -9 hours has helped me tremendously. And Provigal if I get those 8 to 9 hours. I was on it today at work laughing and multi tasking. With those two working together.
Pain
I am 74, diagnosed 2 years, and agree fully with this poll. Cognition, sleep issues and fatigue. Why wasn't fatigue in your poll?
Thank you for responding, 4fishylady ! For this particular poll, we were trying to gauge interest in the more commonly overlooked MS symptoms as far as coverage; Fatigue is one that pops up more often both here on My MSAA Community and on our website and publications. But "fatigue" is certainly an important MS symptom topic to cover, agreed!
- John, MSAA
Can I change my vote? 😂
What do you want to change it to?
I would like to know more about constipation, insomnia, and pain. The only time I have read anything about these symptoms, was on this site.
fatigue
fatigue
I would like to know more about the MS hug, I have been experiencing a little tightness around my rideside (around ribs)
Thanks for your feedback, RoseySawyer ! In the past year, we've had a number of discussions right here on My MSAA Community about the elusive "MS hug" idea.
Feel free to read through some of them and contribute to the conversation here:
healthunlocked.com/search/m...
- John, MSAA
Fatigue
Uhthoff phenomena
I would like to learn more about dizziness / equilibrium issues and how to better manage besides taking medication that makes me groggy or doesn't work.
