What commonly overlooked MS symptom woul... - My MSAA Community

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What commonly overlooked MS symptom would you like to learn more about from MSAA?

johnMSAA profile imagejohnMSAAPartner154 Voters

Please select one:

28 Replies
sophiekerr1977 profile image
sophiekerr1977

Pain

Doubled51 profile image
Doubled51

Cold feet.

Lyndadwilkie profile image
Lyndadwilkie

Pain - Specifically burning fingers and toes in the cold months despite gloves and wool socks worn.

WAshingtongirl profile image
WAshingtongirl in reply toLyndadwilkie

Welcome Lyndadwilkie ! I believe you are new here. We hope to get to know you better. Please feel free to post whenever you feel comfortable doing so. I hope you find many new friends here. I find this forum to be filled with people who share their hearts and experiences. Welcome!💕

jackgaume profile image
jackgaume

Neuropathy

Jbahnan profile image
Jbahnan

trouble walking

Mccabetp profile image
Mccabetp

Neuropathy

agate profile image
agate

hearing loss

greaterexp profile image
greaterexp

Pain and sudden weakness resulting in a near fall.

mserinNJ profile image
mserinNJ

Wow! It's amazing to see that cognition, which I voted for, is the highest voted symptom. Despite being a full time wheelchair user, cognition is the main reason why I can't work again.

ittygirl profile image
ittygirl in reply tomserinNJ

I quit work because of cognition and fatigue. I felt incapable of doing my job correctly. My co-workers treated me as if I was stupid. I do understand what you're saying about not working.

DianneB profile image
DianneB in reply toittygirl

Try to get a solid 7-8 hours of sleep a night. That helps me concentrate better to what i have going on. I keep a pencil and pad with me to take notes and I carry a year calendar to keep track every appointment, meeting, MS drug dinners/luncheons and everything else you have to do! You can do this!!

ittygirl profile image
ittygirl in reply toDianneB

Thanks for replying DianneB. I will definitely have to keep better notes. I do keep my appointments on a calendar but I don't always carry it with me. I used to be more organized but I think MS has affected my organization skills too. Focusing and concentrating has become a big problem for me.

SometimesCrazy profile image
SometimesCrazy in reply toDianneB

8 -9 hours has helped me tremendously. And Provigal if I get those 8 to 9 hours. I was on it today at work laughing and multi tasking. With those two working together.

Kath55 profile image
Kath55

Pain

4fishylady profile image
4fishylady

I am 74, diagnosed 2 years, and agree fully with this poll. Cognition, sleep issues and fatigue. Why wasn't fatigue in your poll?

johnMSAA profile image
johnMSAAPartner in reply to4fishylady

Thank you for responding, 4fishylady ! For this particular poll, we were trying to gauge interest in the more commonly overlooked MS symptoms as far as coverage; Fatigue is one that pops up more often both here on My MSAA Community and on our website and publications. But "fatigue" is certainly an important MS symptom topic to cover, agreed!

- John, MSAA

kdali profile image
kdali

Can I change my vote? 😂

AlohaBlessings profile image
AlohaBlessings in reply tokdali

What do you want to change it to?

kdali profile image
kdali in reply toAlohaBlessings

AlohaBlessings

Tinnitus!

Sulton profile image
Sulton

I would like to know more about constipation, insomnia, and pain. The only time I have read anything about these symptoms, was on this site.

aliciab523 profile image
aliciab523

fatigue

Taylorsmom profile image
Taylorsmom

fatigue

RoseySawyer profile image
RoseySawyer

I would like to know more about the MS hug, I have been experiencing a little tightness around my rideside (around ribs)

johnMSAA profile image
johnMSAAPartner in reply toRoseySawyer

Thanks for your feedback, RoseySawyer ! In the past year, we've had a number of discussions right here on My MSAA Community about the elusive "MS hug" idea.

Feel free to read through some of them and contribute to the conversation here:

healthunlocked.com/search/m...

- John, MSAA

CloverPrincess profile image
CloverPrincess

Fatigue

MS2014 profile image
MS2014

Uhthoff phenomena

wolfspirit17 profile image
wolfspirit17

I would like to learn more about dizziness / equilibrium issues and how to better manage besides taking medication that makes me groggy or doesn't work.

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johnMSAA profile image
johnMSAAPartner

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