Does anyone else have frontal fibrosing alopecia? - MY SKIN
Does anyone else have frontal fibrosing alopecia?
Written by
pitlessie
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3 Replies
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Hi pitlessie,
If you don't find anyone on this site with your condition there is an Alopecia UK HealthUnlocked online community.
Alopecia UK community: alopeciauk.healthunlocked.com/
Pitlessie--go to alopeciaworld.com/, register; search for groups and join: Frontal Fibrosing Alopecia, created by Celia of UK. There are 56 members from UK, US, and other countries. I am Sandy in the group. I'm not very active, as there is really no one cure and my hairloss is too great, I wear a wig now---but many from the group are trying different treatments. Please check it out--it helps to discuss this among others. Good luck!
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