MPN: I have Essential thrombocytosis - My Cancer Community

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Lulu811 profile image
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I have Essential thrombocytosis

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Lulu811
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Loobylou72 profile image
Loobylou72

Hi LuLu811 I have this too. Discovered after Liver surgery as I have Budd Chiarri and the ET mutation caused issue. Diagnosed in June and on drugs to lower platelet levels . How did you learn you had ET?

Lulu811 profile image
Lulu811 in reply toLoobylou72

Just a yearly physical that showed an elevated platelet count in Jan 2016. Eight months later i was tested negative for JAK2 mutation and started daily hydroxyurea 500.

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