I go for my second round of Botox net week. I had to schedule for3.5 mths b/c of family things. My migraine now is horrible and can't get it

[Ihatemigraines]

Under control. Could it be the Botox wearing off?

[Sybille]

Yes It most probably is. Did it get better after the first round?

[glamourpuss]

After my first round of botox I didn't have great results but by week 10-13 I was in such pain with debilating migraines I could not get through each day and look after my young daughter and had to call in for help. I had the second round of botox under as recommended but still not sure how much impact it has had. After 4 weeks I decided to go on to nortriptylin and then noticed an improvement . Of course this is not what they want you to do but I was not managing with simpe day to day tasks . I would have more botox if you had results even small results as you won't ever know . X

[angelhope71]

Hi there, can you or anyone else tell me if the botox is recommended for a specific type of migraine only as I have heard various things?

[glamourpuss in reply to angelhope71]

Hi , I thought I had different types of headaches/ migraines but when I described the different ones to my neuro he said if you get migraine( which I do ) then there all migraine s but just at different levels . But one year later he hands me a new headache diary to complete which asks for the number of headaches and migraines ??? What are yours like ? I bought a great headache book from the London migraine clinic which describes all the types .

[WellTodayGirl]

Hi. I've been having Botox for my migraines for years now. I started on a medical trail for it in 2007. I have a set of injections every 12 weeks but I find that by week 10, it has more or less worn off. You cannot have it more ofter, as it is a poison.

So, it does sound to me that your Botox has worn off. I also find, that it has an accumulative affect. So by my 3rd or 4th treatment of Botox, I was really noticing a difference. However, it does not cure my migraines completely. I do have less but the main affect, is the intensity. I now score them a 1 or 2 out of 10 instead of 10 out of 10 before the Botox.

I hope this helps ihatemigraines! I wish you well!!

[glamourpuss in reply to WellTodayGirl]

Hi welltodaygirl! Gosh that's sometime you have been having it . Have you tried to go longer than 12 weeks ? I thought after so many treatments you would not have to have it so often can you tell me how many days/ weeks it took to work at the beginning ? And does it cause any pain / stiffness in the base of your head/ neck ? I've had this side effect and droopy eyelid both times even with less injections . Thanks for your feedback .

[WellTodayGirl]

Hi glamourpuss.

I will try and answer your questions as best I can. I hope it helps!!

I have been longer than 12 weeks. After the medical trial finished, I went a few months before I was able to have funding. Within, (and forgive me, I was a while ago now, so I can only estimate) 16-20 weeks after my last set of injections, my migraines were at full strength again.

As a background to this, I am, what is considered to be a chronic migraine sufferer (not something I would choose to be) and I am at the top of this percentile. I guess that was why I qualified for the trial.

Yes you are right glamourpuss, I suppose that I have had a lot of treatments of Botox! But for me, it isn't a cure. It just makes them more tolerable. If I remember correctly, it wasn't until my 3rd set of injections that I really noticed a difference but I do know that this varies from person to person. Saying that I also, didn't know at the beginning stage of the trial if I was on the placebo or Botox. My husband tells me, that I was always convinced I was on the Botox (and I was) as I noticed a difference quite soon after my first set of injections. Sorry, I can't be more specific, it was a long time ago. If I get a chance, I will dig out my diaries and see exactly what happened.

The way I react to the injections really depends on if I have a migraine or not when they are administered. The injections are a lot more painful, of course, if I have a migraine. I will also bruise and bleed if I have a migraine when the injections are done but not if I am on a migraine free day. Occasionally, I have had a stiff neck and shoulder but I find a warm wheat bag helps this and within a couple of days this has gone. I've never had any adverse affects and I sorry that you have experienced a droopy eyelid! My consultant, adminsters the injections with the upmost care and I think that this really helps!

I wish you luck with your treatments. Are you feeling a benefits at all from it?

[teadrinker]

I hope your botox is going to happen soon. I agree with you - it helps mine but isn't a cure. I also find it all depends on how I am on the day of the injections - if I'm well then I can skip out of the clinic, if not then I feel exhausted, and on one occasion I got a migraine almost instantly, but then everything settles down.

I've been able to go from every 3 months to every 4 months. Last time I suggested we try a longer gap (strictly speaking I have botox for chronic pain in my head / neck / shoulder so am not bound by the criteria for migraines) but now I'm wishing I'd stuck to the 4 month plan as I had a problem recently.

Glamourpuss - I've had one occasion where I had a lot in my shoulder and found it a struggle to lift my arm. My eyelids used to feel very heavy and droopy but I now have it higher up the forehead and that's not so much of a problem.

The thing is, when it's not working, try not to panic!

[Hidden]

Hi I’m scheduled to have Botox quite soon i have over 15 migraines a month so you can imagine how that impacts on my live, I’m getting it done via the NHS my specialist who recommended it did say that the NHS will normally only fund two or three treatments so I’m worried now that if as it seam from theses discussions that the relief from the Botox is something that needs to be regularly administer how will I get that from the NHS?