The first year, I was nervous about the anniversary and scared to get there. By the second time, I had realized how lucky I was to have survived and to still be here. Now, I want to have a celebration of how far I have come in my post BM journey. I want family and friends to be near and a nice supper with cake for dessert. A small candle lighting ceremony and some words of acknowledgement of the journey we have all gone through.
Does this sound flaky or too selfish? What do y'all think?
My suggestion is that you NOT have that celebration. Most people are very uncomfortable around illness. (That's why they always ask you, "How did you get that?") And they don't want to associate illness with you. When they think of you, they want to see a happy, accomplished, sociable, good person.
Instead, I think you should have the Recovery Celebration with US...other BM survivors. WE'RE really interested in how you coped with OUR illness. I know it seems unfair & cold but...Others really aren't interested.
If it is right for you ...... then go for it!! Congratulations on all you have achieved on your journey of recovery. Its great to hear how you have recognized how your thinking has changed positively each anniversary and how life seems to have got back to a much better place for your despite any after effects you still live with. xx
I would go ahead and celebrate the fact that you were not beaten by this horrible illness, I recently celebrated my 8th Ampuversary and look back on the journey my life has taken since this nearly claimed my life ( I was given 10 minutes to live when I got to hospital) I now walk using prosthetic legs but outwardly you cannot tell unless I wear shorts which I frequently do.
It is your battle and your victory so why not celebrate with friends and family.
Regards
Mick
Not at all! I am 16 months post BM and wanted to celebrate one year, my hubby and I spent a nice weekend together and just enjoyed being alive. I intend to celebrate the day I woke from the coma always and to remember to thank God for my life on that day. We are all very blessed to still be here after such an illness. I say enjoy your day any way you see fit!
2 years on since bacterial meningitis 
Over a year and still can't overcome some of these issues!!
Meningococcal Meningitis - 4 years on
3.5 years old boy with S. pneumoniae meningitis
3 yr old post meningitis
